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Comments (821)

Hi. Thanks for your interest. I asked about this because I am still searching for any...

https://connect.mayoclinic.org/comment/1160555/

CIDP?

Discussion: Foot drop After Kyphoplasty

Support Group: Neuropathy

Posted: Oct 21 1:17pm

The flip side of your observation is that there are many of us who suffer with...

https://connect.mayoclinic.org/comment/1021894/

Yet another health issue I face is CIDP

Discussion: How responsible medication use can help

Support Group: Depression & Anxiety

Posted: Feb 24 5:05pm

In 2008, I started with episodes of feeling like passing out. Then symptoms went away. Month...

https://connect.mayoclinic.org/comment/238727/

I have a dual diagnosis of CMT and CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 24, 2020

Before there were statins for lipid issues there was niacin. It has been extensively studied and...

https://connect.mayoclinic.org/comment/1011975/

neuropathy is demyelination (e.g., CIDP

Discussion: Statin discontinued due to neuropathy. What are some alternatives?

Support Group: Neuropathy

Posted: Feb 8 2:23pm

I had the Shingrix vaccine in February of 2022. When she put the needle in my...

https://connect.mayoclinic.org/comment/949819/

parsonage turner syndrome in my arm and CIDP

Discussion: Side Effects of Shingles Vaccine

Support Group: Just Want to Talk

Posted: Oct 18, 2023

From what I’ve read there’s a lot of overlap in symptoms reported for long Covid and...

https://connect.mayoclinic.org/comment/701178/

been distal so I can’t classify as CIDP

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Apr 21, 2022

Reading through some of these stories is very humbling. Unlike most of you, I'm extremely lucky...

https://connect.mayoclinic.org/comment/1036521/

inflammatory demyelinating polyneuropathy (CIDP

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Mar 19 12:30pm

@cmccaffe81 I have experienced most everything you have been experiencing. Here is my journey that may...

https://connect.mayoclinic.org/comment/1055801/

out MS) and spinal tap (to rule out CIDP

Discussion: Pain, tingling and fatigue

Support Group: Brain & Nervous System

Posted: Apr 23 9:25am

I have neuropathy still - year later! I started having neuropathy throughout my entire body after...

https://connect.mayoclinic.org/comment/759666/

get me to the right Dr or test for CIDP

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Oct 11, 2022

My name is Scott Walker,In 2013 I started going to doctors with pain and numbness in...

https://connect.mayoclinic.org/comment/979192/

Taylor believes I have CIDP and he is

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Dec 12, 2023

https://www.gbs-cidp.org/

https://connect.mayoclinic.org/comment/1143287/

https://www.gbs-cidp.org/

Discussion: Has anyone tried Vyvgart for CIDP?

Support Group: Autoimmune Diseases

Posted: Sep 18 5:14am

You can find a lot of helpful information here: https://www.gbs-cidp.org/

https://connect.mayoclinic.org/comment/798267/

information here: https://www.gbs-cidp.org

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 18, 2023

Welcome to Mayo Connect. We are a community of people living with a wide variety of...

https://connect.mayoclinic.org/comment/602562/

Here is the current guidance from GBS-CIDP.org ... : https://www.gbs-cidp.org/covid-19-

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 17, 2021

Hello Lewin I am so sorry to hear the difficulty you have had with your medical...

https://connect.mayoclinic.org/comment/800274/

I frequently use GIB-CIDP.org I hope

Discussion: Polyneuropathy

Support Group: Neuropathy

Posted: Jan 22, 2023

Hello @rollins2000, Welcome to Connect. I know it's frustrating when you are struggling to find an...

https://connect.mayoclinic.org/comment/710130/

Day to the Fullest: https://www.gbs-cidp.org

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: May 21, 2022

I know i'm responding to an old post, but am looking for fellow CIDP'ers. I have...

https://connect.mayoclinic.org/comment/1065359/

old post, but am looking for fellow CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: May 10 9:58am

Sorry I gave you wrong web site. GBS-CIDP.org

https://connect.mayoclinic.org/comment/730440/

GBS-CIDP.org

Discussion: CIDP and concerns about treatment risk factors

Support Group: Neuropathy

Posted: Jul 25, 2022

Hi Kim @kim1234, Welcome to Connect. I'm not sure if your post was directed to the...

https://connect.mayoclinic.org/comment/804685/

. -- https://www.gbs-cidp.org/.

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Feb 1, 2023

Hi @taa I have been on Ivig for 9 years now. As I am stabilized, my...

https://connect.mayoclinic.org/comment/846932/

at the foundation website: www.gbs-cidp.org

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 21, 2023

@cgrogers Also a great organization to look at is gbs-cidp.org Kim

https://connect.mayoclinic.org/comment/892826/

great organization to look at is gbs-cidp.org

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 9, 2023