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372 total results
Comments (357)
Hello @savomic, Welcome to Connect. While we wait wait for others to share their experience, I...
https://connect.mayoclinic.org/comment/778224/
the first line agents effective in CIDP ... do not respond well to first-line CIDP ... In some cases, reaching correct diagnosis ... Incorporating MAG antibody testing into the diagnostic ... workup can help identify the correct diagnosis
Discussion: DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
Support Group: Neuropathy
Posted: Nov 28, 2022
My husband also a big drinker had his legs give out. He was also given a...
https://connect.mayoclinic.org/comment/744546/
He was also given a diagnoses of Parkinson ... inflammatory demyelinating polyneuropathy (CIDP
Discussion: Falling for no apparent reason: Any ideas?
Support Group: Brain & Nervous System
Posted: Sep 2, 2022
My husband ( 71 yrs.) is no where near as ill as you poor souls are...
https://connect.mayoclinic.org/comment/744160/
After 6 days he was discharged with a diagnosis ... didn't have Parkinson's but diagnosed ... Inflamatory Demyelinating Polyneuropathy (CIDP
Discussion: Lost my legs and now both arms to Neuropathy.
Support Group: Neuropathy
Posted: Sep 1, 2022
My recommendation to anyone in your situation is to go to Mayo. There is no test...
https://connect.mayoclinic.org/comment/704053/
There is no test for CIDP, and there ... similar symptoms so it is difficult to diagnose ... it as ideopathic, while suggesting CIDP
Discussion: Has anyone had IVIG Infusions for Neuropathy?
Support Group: Neuropathy
Posted: Apr 30, 2022
I had the Moderna vaccine as well and developed similar symptoms. It took almost one year...
https://connect.mayoclinic.org/comment/702758/
multiple physicians and I finally have a diagnosis ... of CIDP possibly from the vaccine ... very vigilant in my own care until a diagnosis ... if you are not satisfied with your diagnosis
Discussion: COVID vaccines and neuropathy
Support Group: Neuropathy
Posted: Apr 26, 2022
It is actually an auto immune disease, not “caused by”. There are many Auto immune diseases....
https://connect.mayoclinic.org/comment/642986/
There is no known cause for CIDP and ... After I was diagnosed with CIDP I was ... subsequently diagnosed with Sjögren ... CIDP is indeed a very rare disease and ... The difference between GBS and CIDP
Discussion: Anyone been diagnosed with CIDP? It's very rare
Support Group: Autoimmune Diseases
Posted: Oct 7, 2021
I am new to this site- I was officially dx with Igm-CIDP/MGUS July 2019 by Mayo...
https://connect.mayoclinic.org/comment/238724/
site- I was officially dx with Igm-CIDP ... I was first dx with CMT/CIDP after starting ... I read that CIDP has association with ... Has anyone ever been diagnosed with ... cancer that has CIDP.
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Oct 23, 2020
@tjp4 That is actually one of the ones that isn’t ruled out (or maybe not even...
https://connect.mayoclinic.org/comment/281396/
am not sure about is that I thought CIDP ... body, which I believe is typical for CIDP ... How did you get diagnosed?
Discussion: Undiagnosed, numbness, tingling, Muscle weakness and more
Support Group: Brain & Nervous System
Posted: Nov 5, 2019