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2,271 total results
Comments (2,165)
"I did approach my new rheumatologist (first appt with her) about checking for antibodies to Actemra…....
relapse you had while on Actemra a PMR ... It wasn't a PMR relapse though. ... When I tapered down to 15 mg of Prednisone ... I had a PMR relapse. ... control PMR.
Posted: Nov 19 4:20pm
Welcome Cyn @cyninaustria, I think a lot of us have had similar thoughts and wanting to...
similar thoughts and wanting to avoid prednisone ... mentioned having Hashimoto's with PMR ... times with 20mg prednisone which took ... fairly well but took me awhile to taper ... search=hypothyroidism%20and%20PMR
Posted: Sep 22 7:40am
I suffer from Polymyalgia Rheumatica. (PMR) an autoimmune disease. As with many autoimmunes steroids are used...
(PMR) an autoimmune disease. ... Prednisone is supplying it. ... will have to slowly restart while you taper ... off prednisone. ... You will go into extreme pain if you taper
Support Group: Prostate Cancer
Posted: Sep 28 8:20am
Hi Mike @domiha, My PMR was diagnosed by a Mayo Rochester rheumatologist. My primary care doctor...
Hi Mike @domiha, My PMR was diagnosed ... lunch and the doctor had me pick up a prednisone ... It took me 3-1/2 years to taper off ... of the prednisone for my first time ... with PMR.
Support Group: Neuropathy
Posted: Sep 30 1:32pm
Hi @anncoco57, I had pain in the feet and legs including the back of my knees...
the back of my knees for my first PMR ... there the second time around with PMR ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules ... Off Prednisone? ... connect.mayoclinic.org/discussion/any-tips-for-tapering-off-prednisone
Posted: Oct 21 7:29am
I started with Actemra (tociliumab) injections every 2 weeks. After a year, the injections were changed...
12 years to treat PMR. ... I wasn't ever able to taper my Prednisone ... taper. ... I had a flare but it wasn't a PMR ... No flares of PMR or anything else as
Posted: Oct 21 10:57am
In my opinion, prednisone perpetuates PMR after the adrenals are suppressed. I wonder how many people...
PMR after the adrenals are suppressed ... PMR is basically a condition of unregulated ... However, when we attempt to taper off ... entirely new condition that mimics PMR ... We believe it is a PMR flare instead
Posted: Oct 25 5:15pm
I am now on Kevzara for 5 months after two years of being on prednisone and...
months after two years of being on prednisone ... and finally on July 1 ‘24I tapered ... off prednisone . 14 months ago my ... and ankles It is assumed I have PMR
Posted: Oct 3 11:05pm
Hi @jenb I have both PMR and GCA. Before I was diagnosed I had severe itching...
Hi @jenb I have both PMR and GCA. ... already, and get a new schedule for tapering ... prednisone. ... GCA/PMR is a stubborn disorder that ... I'm back on Prednisone now.
I guess the thinking is that 5 days is not long enough to completely shut down...
shut down your adrenal glands, so no taper ... However, most pmr cases seem to require ... at least a couple of months of prednisone ... to chase the pmr away.
Posted: Nov 13 9:33am
I am a 6 year veteran. first couple of years had 2 courses of prednisone. Each...
first couple of years had 2 courses of prednisone ... Each time I tapered down and got off ... a flare and needed to get back on prednisone ... rheumatologist said she has never had a PMR
Posted: Nov 17 10:00pm
My GP didn't really appreciate my need for an endocrine referral until my cortisol level was...
I stayed on low dose Prednisone. ... was rather nice to be told NOT to taper ... any longer to treat PMR. ... tocilizumab) is currently treating PMR ... instead of Prednisone.
I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...
possibility that you have more than PMR ... ophthalmologist said I was very skilled at tapering ... I always tapered off Prednisone in about ... For a long time I felt PMR was caused ... use for PMR.
I am sorry you are feeling so much pain. I have had a similar experience after...
a similar experience after finally tapering ... off prednisone after 1 year. ... at the same level of pain as when PMR ... to speed after being suppressed by prednisone ... just “poof” go away after stopping prednisone
Posted: Oct 8 7:34am
"Please let me know what all the problems I am going to have?" --------------------- You might...
it becomes harder and harder to taper ... years for flares but not for flares of PMR ... When PMR was diagnosed my starting dose ... PMR was NOT good for me. ... My PMR journey hasn't ended even
Congratulations! Many of us are still on the tapper journey. I too sat for too long...
Many of us are still on the tapper journey ... 1year) and are determined to slowly taper ... discomfort against just increasing predisone ... over a year so my symptoms should be predisone ... withdrawal and not PMR.
Posted: Nov 9 8:45am
"My recent tests showed adrenal insufficiency, after I had gone down from 5 to 4 mg....
similar impasse when I couldn't taper ... to control my PMR symptoms. ... come back to see her if I could ever taper ... would NOT make another attempt to taper ... way forward that would allow me to taper
Posted: Nov 11 5:04pm
Question is how much pain is worth tolerating to keep reducing prednisone? ------------------------------- I don't think...
worth tolerating to keep reducing prednisone ... There isn't a correct way to taper ... prednisone. except to taper slowly ... for some ... slower tapers for others ... on the person, the side effects of Prednisone
Posted: Nov 7 9:21am
Hi @dadcue, I also find your posts very helpful and was hoping you could share more...
I have had significant pain with tapering—even ... not been able to get below 15 mg of Prednisone ... in my 2.5 years with PMR.
Posted: Nov 19 6:43pm