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581 total results
Comments (561)
@julieahp My experience has been very similar to yours. I was diagnosed with GCA and PMR...
https://connect.mayoclinic.org/comment/1485207/
I was diagnosed with GCA and PMR in ... My treatment has worked very well. ... year, which will mark 3 years of treatment
Discussion: Are others with GCA and PMR on Tyenne Monthly Infusions?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jan 18 4:59am
@alandy233, how way your diagnosis of GCA reached? Did you have a temporal artery biopsy? I...
https://connect.mayoclinic.org/comment/1481390/
alandy233, how way your diagnosis of GCA ... didn't have any vision loss from GCA ... for a year before I relapsed and had treatment ... current doctors have had in treating GCA
Discussion: Trying To get Answers About GCA
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jan 13 12:28pm
Tocilizumab (Tyenne/Actemra) doesn't work completely for everyone. People have different amounts of the inflammatory substances that...
https://connect.mayoclinic.org/comment/1506913/
inflammatory substances that cause PMR and GCA ... roughly half of individuals able to stop treatment ... to last longer, sometimes requiring treatment ... year plan of using Actemra to treat GCA
Discussion: Titration steroids using Tyenne but now at a stuck point
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 16 3:06am
I have PMR and GCA Vasculitis since 2019. GCA is asymptomatic and was only recently Dx....
https://connect.mayoclinic.org/comment/1505379/
I have PMR and GCA Vasculitis since ... GCA is asymptomatic and was only recently ... almost 6 months before they started treatment
Discussion: Irregular heartbeat issues
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 14 7:56am
@jck51 Hi @jck51 My Rheumatologist recently told me so directly. At a recent routine appointment with...
https://connect.mayoclinic.org/comment/1500988/
recognized in retrospect) of my PMR/GCA ... relapse) I'm most worried about GCA ... said that when a person is on Tyenne treatments ... due to daily hd steroid treatment. ... GCA can cause anuerysms.
Discussion: Are others with GCA and PMR on Tyenne Monthly Infusions?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 8 1:31pm
@tuckerp You are right that prednisone can have a lot of side effects, and some of...
https://connect.mayoclinic.org/comment/1493955/
started taking prednisone to treat GCA ... s symptoms and how they respond to treatments ... bit while I had untreated PMR and GCA ... for prednisone that helps PMR and GCA
Discussion: Newly diagnosed
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jan 30 8:02am
@vjm0223 Excellent!!! Thank-you for posting this link. I think there should be warnings when treatment with...
https://connect.mayoclinic.org/comment/1465422/
think there should be warnings when treatment ... shortest time possible" for PMR/GCA ... long term prednisone to treat PMR/GCA
Discussion: PMR relapse symptoms
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Dec 21, 2025
@ndep As far as I know Prednisone was his only treatment. After he had GCA he...
https://connect.mayoclinic.org/comment/1455059/
as I know Prednisone was his only treatment ... After he had GCA he was on it for a ... prednisone to prevent a recurrence of the GCA
Discussion: Cause of PMR
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Dec 7, 2025
@mark1952 Thank you, I continue to be pain free with respect to both PMR/GCA while tapering...
https://connect.mayoclinic.org/comment/1447451/
pain free with respect to both PMR/GCA ... I am hoping that you do not have GCA ... My GCA started suddenly a few days after ... the US was normal after 2 weeks of treatment
Discussion: Adjusting to life with temporal arteritis
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Nov 25, 2025
@brightwood It isn't too surprising that doctors aren't familiar with this tapering method. There isn't any...
https://connect.mayoclinic.org/comment/1440926/
suggest Actemra (tocilizumab) for the treatment ... of GCA. ... research that supports Actemra for GCA ... It is also FDA approved for the treatment ... of GCA.
Discussion: Giant cell arteritis:I’m afraid and would appreciate any advice
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Nov 17, 2025
I've got the Kate Gilbert book, but I haven't read it in about a year. On...
https://connect.mayoclinic.org/comment/1398300/
months before I developed symptoms of GCA ... been diagnosed earlier and started treatment ... , if that would have prevented GCA. ... forum where people with PMR develop GCA ... and know the symptoms and risks of GCA
Discussion: If I choose to take no meds. What is the worst that can happen?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 21, 2025
Thank you, folks, for your replies. Tomorrow they (the practice where I have been going for...
https://connect.mayoclinic.org/comment/1358599/
(80 mg) to help with the pain for GCA ... the possible outcomes for untreated GCA ... with different doctor opinions and treatments
Discussion: Giant Cell Arteritis Diagnosis
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 28, 2025