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395 total results
Comments (382)
My experience is very similar to yours. I was diagnosed in late June 2024 with PMR...
diagnosed in late June 2024 with PMR and GCA ... was a little conservative with my treatment ... I had had vision problems from the GCA ... It sounds to me like your GCA is flaring
Posted: Feb 27 9:31am
It could be the prednisone, but it could also be the PMR. I had a lot...
shoulder before I was diagnosed with GCA ... a high dose of prednisone for the GCA ... shoulder problems cleared up from that treatment
Posted: Mar 21 11:49am
That forum is very good if you are from the UK. I felt alienated on that...
Also, the approach to treatment in ... Actemra is approved in the UK for GCA ... use of corticosteroids to treat PMR/GCA
Posted: Dec 29, 2024
Hi Was diagnosed with pmr a year ago . I was well , my symptoms were...
Against his advice I chose conservative treatment ... I was diagnosed with large vessel GCA
Posted: Nov 19, 2024
Hello @gee18, I'm sorry to hear you having trouble with the treatment for PMR and GCA....
to hear you having trouble with the treatment ... for PMR and GCA. ... alternatives. --- PMR: Are there treatment ... thoughts or suggestions on alternative treatments
Posted: Dec 13, 2023
While I would Never wish to argue or offer disbelief of any persons health decisions; and...
decision to take or not any med or treatment ... handicap from the recent gift of PMR/GCA ... mRNA use in a Cancer related Drug Treatment ... Wishing all of you PMR/GCA and other
It basically says the same thing I was trying to explain. I know very little about...
FDA approval for Actemra to treat GCA ... considered to be "experimental treatments ... medication that works" for PMR/GCA
Posted: Sep 12, 2024
@tuckerp I definitely got the feeling that Dadcue is the king of prednisone and PMR. He...
another two years to complete the treatment ... Dadcue could have had some form of GCA ... husband suffer through that before GCA ... to be no other options for PMR or GCA
@windyshores Thank you for your insight!! It helps me to feel that I'm not going crazy...
complicated of his issues (with PMR and GCA ... there are such limited options for treatment ... that was recently FDA approved for GCA ... has paused us on wanting to start treatment ... mouth is stable enough for years of treatment
@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...
could mean your disease has moved to GCA ... GCA is an inflammation of the lining ... The same thing happens when you have GCA ... Headaches are dangerous with GCA. ... First, if you are not happy with the treatment
At the time, Actemra (tocilizumab) was FDA approved for GCA but not PMR. My rheumatologist wanted...
(tocilizumab) was FDA approved for GCA ... #39;t usually pay for experimental treatments ... Also, if the treatment causes harm to ... required to give justification if their treatment ... patients now have an FDA-approved treatment
That’s understandable. Apologies for the delayed reply. I agree it’s frustrating treatment options are limited seemingly...
I agree it’s frustrating treatment options ... don’t have an established “go to” treatment ... there’s still the risk of developing GCA ... Forgoing treatment was absolutely not
Posted: Apr 17, 2024