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Comments (893)

I do think efgartigimod is effective in CIDP al least in my theoretical understanding of CIDP....

https://connect.mayoclinic.org/comment/945211/

think efgartigimod is effective in CIDP ... in my theoretical understanding of CIDP

Discussion: experience with efgartigimod in cidp?

Support Group: Autoimmune Diseases

Posted: Oct 10, 2023

Sending my prayers for healing. So much to handle...you are such a strong person. Has anyone...

https://connect.mayoclinic.org/comment/248365/

Has anyone mentioned to you CIDP? ... I was just diagnosed with CIDP and so

Discussion: Functional Neurological Disorder (FND)

Support Group: Brain & Nervous System

Posted: Jun 27, 2019

VYVGART HYTULO for CIDP orig for Myasthenia Gravis.

https://connect.mayoclinic.org/comment/1161127/

VYVGART HYTULO for CIDP orig for Myasthenia

Discussion: Foot drop After Kyphoplasty

Support Group: Neuropathy

Posted: Oct 22, 2024

Have your Dr’s ruled out CIDP?

https://connect.mayoclinic.org/comment/871445/

Have your Dr’s ruled out CIDP?

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Jun 3, 2023

Yes I have been diagnosed with cidp

https://connect.mayoclinic.org/comment/798578/

Yes I have been diagnosed with cidp

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 18, 2023

I have been treated with IVIG for CIDP.

https://connect.mayoclinic.org/comment/606015/

I have been treated with IVIG for CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jun 1, 2021

VYVGART HYTRULO APPROVED BY FDA FOR CIDP

https://connect.mayoclinic.org/comment/1144193/

VYVGART HYTRULO APPROVED BY FDA FOR CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 19, 2024

pn is gone now? what is cidp?

https://connect.mayoclinic.org/comment/1135071/

what is cidp?

Discussion: Is there somebody who is diagnosed with megavitamin b6 syndrome ?

Support Group: Neuropathy

Posted: Sep 2, 2024

Yes, medicated induced lupus that led to CIDP.

https://connect.mayoclinic.org/comment/674482/

medicated induced lupus that led to CIDP

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Jan 24, 2022

I think there’s specific guidance with respect to this new treatment and whether it would be...

https://connect.mayoclinic.org/comment/1142225/

would be helpful as an option for CIDP ... professional guidance on this or from the GBS CIDP

Discussion: Has anyone tried Vyvgart for CIDP?

Support Group: Autoimmune Diseases

Posted: Sep 16, 2024

Sorry. it's CIDP (chronic Inflammatory Demyeliting Polyneuropathy.

https://connect.mayoclinic.org/comment/1097374/

Sorry. it's CIDP (chronic Inflammatory

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 1, 2024

I was diagnosed with CIDP in 2020 and I had 16 IVIG infusions And that was...

https://connect.mayoclinic.org/comment/1144325/

I was diagnosed with CIDP in 2020 and ... Surgeon was completely aware of my CIDP ... My CIDP affects my right foot and my

Discussion: Has anyone with CIDP had Knee replacement?

Support Group: Autoimmune Diseases

Posted: Sep 20, 2024

What is GBS CIDP FI? B MILLS MSN

https://connect.mayoclinic.org/comment/1143181/

What is GBS CIDP FI? B MILLS MSN

Discussion: Has anyone tried Vyvgart for CIDP?

Support Group: Autoimmune Diseases

Posted: Sep 17, 2024

@duh1eye Did you get tested for Lyme disease? You may want to talk to your neurologist...

https://connect.mayoclinic.org/comment/1129288/

to talk to your neurologist about CIDP ... CIDP is an autoimmune attack on nervous

Discussion: Newly diagnosed with Neuropathy - Advice?

Support Group: Neuropathy

Posted: Aug 23, 2024

Yes I have CIDP - diagnosed in 2014. Started IvIG in January 2015 and have managed...

https://connect.mayoclinic.org/comment/805423/

Yes I have CIDP - diagnosed in 2014. ... Please check the GBS-CIDP Foundation ... contacts in your area, Go to www.gbs-cidp.org ... Most of us have either CIDP or GBS.

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Feb 2, 2023

Name of drug Vyvgart Hytrulo appvd by fda for cidp

https://connect.mayoclinic.org/comment/1146804/

drug Vyvgart Hytrulo appvd by fda for cidp

Discussion: Desperate: Is there any hope for neuropathy?

Support Group: Neuropathy

Posted: Sep 24, 2024

I just saw this upcoming webinar from the Foundation for Peripheral Neuropathy that I think might...

https://connect.mayoclinic.org/comment/1176031/

might be helpful for members with CIDP ... FPN Webinar: New Horizons in CIDP Therapy ... patient advocate, Bob L., to talk about CIDP ... first-hand from a patient who has had CIDP ... She will also discuss CIDP treatment

Discussion: Current treatments and new guidelines for diagnosis of CIDP

Support Group: Autoimmune Diseases

Posted: Nov 19, 2024

Please add me to your CIDP group discussion. I have been diagnoised with CIDP and small...

https://connect.mayoclinic.org/comment/983467/

Please add me to your CIDP group discussion ... I have been diagnoised with CIDP and

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Dec 19, 2023

@amkie, I moved your question to this related discussion so you can connect with @kgitti -...

https://connect.mayoclinic.org/comment/1182408/

VYVGART Hytrulo, a new treatment for CIDP ... vyvgart-hytrulo-a-new-treatment-for-cidp

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Nov 30, 2024

It is actually an auto immune disease, not “caused by”. There are many Auto immune diseases....

https://connect.mayoclinic.org/comment/642986/

There is no known cause for CIDP and ... After I was diagnosed with CIDP I was ... CIDP is indeed a very rare disease and ... The difference between GBS and CIDP ... CIDP is a chronic degenerative form

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Oct 7, 2021