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121 total results
Comments (118)
When do you start the Actemra infusions? I hope you have an excellent response to Actemra....
When do you start the Actemra infusions ... you have an excellent response to Actemra ... Remission was quickly achieved for all ... when Actemra was tried. ... My rheumatologist says Acterma is an
Posted: Jul 21, 2024
@krueg and @julie4868 Being on Actemra infusions for 17 and 14 months respectively seems like a...
Actemra won't work for everyone. ... By contrast, I was on prednisone for ... During much of the 12 years my prednisone ... but you should be able to achieve remission ... I'm not so sure Actemra, prednisone
Posted: Feb 26, 2024
In the first week after PMR diagnosis, I have needed to increase prednisone from 10 to...
diagnosis, I have needed to increase prednisone ... rheumatologist I have no alternative to prednisone ... until I am in remission, then can try ... Actemra is not an option for me because
Posted: Feb 1, 2024
I think a prednisone burst for RA is okay as long as you are able to...
The reason why Actema seem to be an ... is that the goal of Actemra is to stop ... had any flares in 3 years while on Actemra ... finally achieved a "long term remission ... Hopefully I can get off Actemra too.
I have been on a monthly infusion of Actemra for about a year. I started with...
I'm probably in remission but I ... Not only did I taper off prednisone, ... I no longer have some of the prednisone ... I hope to never need prednisone again ... compared to prednisone.
Posted: Jan 10, 2024
That is a good outlook to have, I really hope prednisone is now in your past....
My rheumatologist said Actemra was my ... understanding is that PMR is only in remission ... to "go away" completely but remission ... I'm not sure what remission is. ... rheumatologist never thought I was in remission
Welcome! I'm sorry your have been diagnosed with PMR. I hope your journey with PMR goes...
. "Long term" prednisone is ... the treatment until we take prednisone ... to tell their patients to taper off prednisone ... still PMR but it "might be in remission ... " thanks to Actemra (tocilizumab
I'm not on Kevzara but I do take Actemra (tocilizumab) for PMR along with some other...
#39;m not on Kevzara but I do take Actemra ... Actemra is in the same classification ... Both Kevzara and Actemra are IL-6 receptor ... I have taken Actemra for 4 years. ... problem list but it now says "in remission
Posted: May 6, 2023
My ophthalmologist didn't like me being on prednisone either. My intraocular pressures seemed to vary depending...
a year after Actemra was started. ... Actemra allowed me to be able to stay ... I needed to stop Actemra a couple of ... responded quickly and it went back into remission ... I chose Actemra.
Do you still take Actemra for PMR? Have you been able to stay in remission when...
Have you been able to stay in remission ... I might be in remission but my rheumatologist ... I took prednisone for more than 12 years ... for PMR and never did achieve remission ... Actemra allowed me to taper off prednisone
I have tried Actemra via injection the results were impressive for pain reduction however I previously...
I have tried Actemra via injection the ... diverticulitis and it is a contradiction to actemra ... for now, i would rather stay with prednisone ... decided to battle it through with prednisone ... once in those 4 yrs and the remission
@dadcue ,@cgm You know already that we are in that same boat, unfortunately. I was diagnosed...
I was treated with a fast taper of prednisone ... And then I went into remission for 20 ... now and my doctor wants me to take Actemra ... so hopefully I can get off the prednisone
Discussion: PMR to RA?
Posted: Oct 12, 2024
Kevzara is now an option for me since it was FDA approved for PMR in February...
When I started on Actemra (Tocilizumab ... ) in January of 2019, Actemra was FDA ... The other indication for Actemra was ... I took Prednisone for 12 years. ... Now my PMR is said to be in remission
Posted: Nov 11, 2024
I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...
I have taken Actemra for PMR for a long ... Kevzara and Actemra are similar and ... Both Kevzara and Actemra are both IL ... and also whether or not PMR is in remission ... cortisol level improved and PMR was in remission
Posted: Oct 2, 2024
No real insight except to say Actemra works well for me. I'm glad you were able...
#39;m glad you were able to get off Prednisone ... I have been off Prednisone for close ... to taper off like we have to with Prednisone ... If you feel well being off Prednisone ... Many people do have a "sustained remission
Posted: Sep 20, 2024
I wasn’t on prednisone but only actemra when I got sick. I was on prednisone from...
I wasn’t on prednisone but only actemra ... I was on prednisone from 2018 to 2022 ... Took Actemra infusions from 2022 to ... not been sick for 10 months on the actemra ... It did put me into remission where I
Posted: Sep 10, 2024
When I was on prednisone alone I could never get down to 5 mg let alone...
When I was on prednisone alone I could ... that quickly when a biologic called Actemra ... per week when I was doing Actemra injection ... This assumes PMR is in remission. ... Kevzara might help to get PMR into remission
Posted: Sep 3, 2024
The following link is a good place to start. https://www.pmrandil6.com/il-6-and-pmr/ --------------------------------------------- IL-6 is a cytokine (protein...
With any luck you won't need Prednisone ... you still need to taper slowly off prednisone ... chance to recover from the effects Prednisone ... PMR has been in remission thanks to ... I have been completely off Prednisone
Posted: Aug 12, 2024
PMR struck me when I was 52. I want to forget about my 50's decades for...
rheumatologist said I was too young to take Prednisone ... Five years on Actemra has made a world ... #39;t know if all my problems are in remission ... ophthalmologist doesn't think Actemra ... My rheumatologist wants me on Actemra
Wow 😮 we are a mess, aren’t we?! When I was first diagnosed with “Reiters syndrome”...
treated with Indocin, aspirin and prednisone ... a year of arthritis , I went into remission ... period I received short treatments with prednisone ... Mostly I’ve been treated with prednisone ... effects, so now doctor wants me to try Actemra
Posted: Aug 7, 2024