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131 total results
Comments (128)
"I know my experience with rapid pred taper is contrary to many others experiences I have...
For GCA, people doing the slower prednisone ... tapers aren't on Actemra (tocilizumab ... are several advantages to being on Actemra ... . 1) people are able to taper off prednisone ... is less, 3) a sustained remission lasts
Posted: Feb 18 7:30am
Sounds like GCA and am glad they have started treatment. Classic symptoms. Have had GCA, not...
On Prendnison January to August, then ... started on Actemra IV once a month. ... I expect to be on Actemra for another ... her how will she know when I am in remission ... Actemra can cause cancer.
Discussion: Possible GCA
Posted: Feb 21 1:19pm
@dadcue ,@cgm You know already that we are in that same boat, unfortunately. I was diagnosed...
I was treated with a fast taper of prednisone ... And then I went into remission for 20 ... now and my doctor wants me to take Actemra ... so hopefully I can get off the prednisone
Discussion: PMR to RA?
Posted: Oct 12, 2024
It is interesting that you had a flare of psoriasis after stopping Prednisone. Has anyone ever...
flare of psoriasis after stopping Prednisone ... of uveitis as soon as I tapered off Prednisone ... After uveitis was in remission, I was ... stuck on 15 mg of Prednisone again ... I chose Actemra and tapered off prednisone
I think methotrexate (MTX) is a good medication to try. It is probably the most widely...
admit MTX was helping me reduce my Prednisone ... It took me 12 years to get off Prednisone ... MTX was a prerequisite for getting Actemra ... The goal should be "sustained remission ... health choice" than long term prednisone
Posted: Aug 22, 2024
When do you start the Actemra infusions? I hope you have an excellent response to Actemra....
When do you start the Actemra infusions ... you have an excellent response to Actemra ... Remission was quickly achieved for all ... when Actemra was tried. ... My rheumatologist says Acterma is an
Posted: Jul 21, 2024
@krueg and @julie4868 Being on Actemra infusions for 17 and 14 months respectively seems like a...
Actemra won't work for everyone. ... By contrast, I was on prednisone for ... During much of the 12 years my prednisone ... but you should be able to achieve remission ... I'm not so sure Actemra, prednisone
Posted: Feb 26, 2024
In the first week after PMR diagnosis, I have needed to increase prednisone from 10 to...
diagnosis, I have needed to increase prednisone ... rheumatologist I have no alternative to prednisone ... until I am in remission, then can try ... Actemra is not an option for me because
Posted: Feb 1, 2024
I think a prednisone burst for RA is okay as long as you are able to...
The reason why Actema seem to be an ... is that the goal of Actemra is to stop ... had any flares in 3 years while on Actemra ... finally achieved a "long term remission ... Hopefully I can get off Actemra too.
I have been on a monthly infusion of Actemra for about a year. I started with...
I'm probably in remission but I ... Not only did I taper off prednisone, ... I no longer have some of the prednisone ... I hope to never need prednisone again ... compared to prednisone.
Posted: Jan 10, 2024
That is a good outlook to have, I really hope prednisone is now in your past....
My rheumatologist said Actemra was my ... understanding is that PMR is only in remission ... to "go away" completely but remission ... I'm not sure what remission is. ... rheumatologist never thought I was in remission
Welcome! I'm sorry your have been diagnosed with PMR. I hope your journey with PMR goes...
. "Long term" prednisone is ... the treatment until we take prednisone ... to tell their patients to taper off prednisone ... still PMR but it "might be in remission ... " thanks to Actemra (tocilizumab
I'm not on Kevzara but I do take Actemra (tocilizumab) for PMR along with some other...
#39;m not on Kevzara but I do take Actemra ... Actemra is in the same classification ... Both Kevzara and Actemra are IL-6 receptor ... I have taken Actemra for 4 years. ... problem list but it now says "in remission
Posted: May 6, 2023
My ophthalmologist didn't like me being on prednisone either. My intraocular pressures seemed to vary depending...
a year after Actemra was started. ... Actemra allowed me to be able to stay ... I needed to stop Actemra a couple of ... responded quickly and it went back into remission ... I chose Actemra.
Do you still take Actemra for PMR? Have you been able to stay in remission when...
Have you been able to stay in remission ... I might be in remission but my rheumatologist ... I took prednisone for more than 12 years ... for PMR and never did achieve remission ... Actemra allowed me to taper off prednisone
I have tried Actemra via injection the results were impressive for pain reduction however I previously...
I have tried Actemra via injection the ... diverticulitis and it is a contradiction to actemra ... for now, i would rather stay with prednisone ... decided to battle it through with prednisone ... once in those 4 yrs and the remission
Sorry, you have joined the PMR club. This is a good group to ask questions and...
What dose prednisone are you on? ... for a couple of months, due the the Prednisone ... That's all good, but the Prednisone ... Two and a half weeks ago, I started Actemra ... what I understand, PMR can go into remission
Posted: Feb 7 3:42pm
My PMR was diagnosed a week after a sore throat (the worst I have ever had)...
once a month to get off Prednisone. ... Off Prednisone now... ... Actemra is not a steriod like Prednisone ... we will monitor) until it goes into remission ... I just hope it does go into remission
I felt like a pioneer 6 years ago when Actemra was tried. Even though biolgics have...
Kevzara is if my PMR doesn't go into remission ... to go back to the pain and needing Prednisone ... I seem to be in remission as long as ... " is any better than lifelong Prednisone ... want me to have to be on long term Prednisone
Discussion: Kevzara
Posted: Feb 22 8:29am
I have GCA and PMR diagnosis Nov 2024 . Immediate start on 50mg pred rapid taper...
on 50mg pred rapid taper and weekly Actemera ... I’m now off prednisone completely, all ... I was in full remission according to ... Now I’m on Actemera as a mono treatment ... , no more prednisone Thank you modern
Posted: Feb 16 9:27pm