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723 total results
Comments (699)
I was diagnosed with GCA in November 2024. As soon as myMD/PCP realized what my symptoms...
https://connect.mayoclinic.org/comment/1357807/
I was diagnosed with GCA in November ... off the prednisone and have been on Actemra
Sorry that you have joined 'the Club'. This is a great forum with wonderful people who...
https://connect.mayoclinic.org/comment/1338607/
diagnosed July 2024 with PMR and possible GCA ... Started on 60 mg. of pred. for the GCA ... I'm am now on 5 mg., thanks to Actemra
Some people with PMR and/or GCA are on prednisone for many years. If they are lucky,...
https://connect.mayoclinic.org/comment/1332082/
Some people with PMR and/or GCA are ... I have PMR and GCA, and I've been ... taking prednisone for a year, and Actemra ... I expect to have to take Actemra for ... of prednisone for 6 weeks to get my GCA
Diagnosed with GCA (temporal arteritis) February 2025, started 60 mg Prednisone. Started monthly ACTEMRA infusions March...
https://connect.mayoclinic.org/comment/1334374/
Diagnosed with GCA (temporal arteritis ... Started monthly ACTEMRA infusions March ... ACTEMRA infusions are to continue monthly
My experience is very similar to @nopnrose. I was diagnosed with PMR and GCA in late...
https://connect.mayoclinic.org/comment/1347733/
I was diagnosed with PMR and GCA in ... started taking weekly injections of Actemra ... Medicare Advantage plan that covers Actemra ... I wouldn't say that taking Actemra ... Actemra has allowed me to taper the
I was treated 12 years with Prednisone for refractory PMR. When a biologic called Actemra (tocilizumab)...
https://connect.mayoclinic.org/comment/1340606/
When a biologic called Actemra (tocilizumab ... Actemra is FDA approved for GCA but ... increase when my monthly infusion of Actemra ... seem to have any side effects from Actemra ... I can't say Actemra "cured me
Be careful if you're planning to stop prednisone or Actemra. Stopping prednisone without tapering could make...
https://connect.mayoclinic.org/comment/1337634/
;re planning to stop prednisone or Actemra ... and stopping either prednisone or Actemra ... could cause a GCA flare or make the ... If you have any other symptoms of GCA
Just wondered, are you not also on Actemra? Many on this list are able to eventually...
https://connect.mayoclinic.org/comment/1352795/
Just wondered, are you not also on Actemra ... move off of prednisone due to monthly Actemra ... I have GCA, and am down from 60 mg prednisone ... to now 12.5, with monthly Actemra,
Yes, some people who take Actemra have to keep talking prednisone. Actemra inhibits IL-6, but there...
https://connect.mayoclinic.org/comment/1322209/
Yes, some people who take Actemra have ... Actemra inhibits IL-6, but there are ... cause the inflammation from PMR and GCA
I had PMR for about a year before being diagnosed, and GCA for about 5 months....
https://connect.mayoclinic.org/comment/1324159/
a year before being diagnosed, and GCA ... I have been taking Actemra injections ... for 10 months to treat the GCA. ... Actemra is similar to Kevzara in that ... haven't had any issues with the Actemra
I believe the pred side effects worsen the longer you’re on it. I hope Actemra works...
https://connect.mayoclinic.org/comment/1335382/
I hope Actemra works well for you. ... Best wishes to you on your GCA journey
Hello, @jcb, and welcome. I'm sorry you lost part of your vision to GCA. I came...
https://connect.mayoclinic.org/comment/1352606/
sorry you lost part of your vision to GCA ... I had all of the other symptoms of GCA ... I also take Actemra injections weekly ... had any other symptoms of PMR and GCA
I have PMR and GCA. Before treatment I remember lying in bed at night trying to...
https://connect.mayoclinic.org/comment/1355087/
I have PMR and GCA. ... started treatment (prednisone plus Actemra
That taper seems unnecessarily fast. I'm tapering prednisone, and I also take weekly Actemra injections. The...
https://connect.mayoclinic.org/comment/1339866/
prednisone, and I also take weekly Actemra ... The Actemra controls the inflammation ... from my GCA and PMR. ... re not taking a biologic drug like Actemra
I started methoprednosone at 48 mg daily when first diagnosed with pmr/gca. Then would reduce 1...
https://connect.mayoclinic.org/comment/1351832/
daily when first diagnosed with pmr/gca ... I got to 6mg daily we started the Actemra ... still taking the weekly injection of Actemra
The more I read the more confused I get. So far, my local RA doctor wants...
https://connect.mayoclinic.org/comment/1351738/
local RA doctor wants to treat my GCA ... ( diagnosed in May 2025) with Acterma ... might possibly have more than just GCA
Thanks for the info. I have a lot of questions for the RA doctor at Mayo...
https://connect.mayoclinic.org/comment/1352499/
At this point I am not sure if GCA is ... I want to know that before I start Acterma
Hello everyone. I was diagnosed with Giant Cell Arteritis in April of this year, after having...
https://connect.mayoclinic.org/comment/1352561/
occlusion happening, which can be seen in GCA ... In addition, I get Actemra infusions ... kind of vision impairment happen with GCA
I've read that people differ in the mix of inflammatory substances that cause PMR. Kevzara and...
https://connect.mayoclinic.org/comment/1360647/
Kevzara and Actemra block IL-6, which ... I take Actemra and 1 mg of prednisone ... to treat PMR and GCA.
Hello, and welcome to the forum. It is active, and there are quite a few people...
https://connect.mayoclinic.org/comment/1351146/
quite a few people like me who have GCA ... started taking weekly injections of Actemra ... month, but I will need to keep taking Actemra ... down to 35 mg, plus I started taking Actemra ... Have your doctors discussed Actemra?
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