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Comments (3,248)

I am Gleason 9. Dr. SCHOLZ of PCRI, My Oncologist and Radiation Oncologist at UCLA said...

https://connect.mayoclinic.org/comment/1284994/

Oncologist at UCLA said one year on Orgovyx

Discussion: Gleason 9 SO wants me to stop ADT @6 Mos for look see

Support Group: Prostate Cancer

Posted: Apr 18, 2025

In general: Radiation is a covered treatment, subject to any applicable deductible, copay or coinsurance. ADT...

https://connect.mayoclinic.org/comment/951817/

Part B (injectables) or Part D drug (Orgovyx

Discussion: Recently diagnosed: Treatment options for early stage prostate cancer?

Support Group: Prostate Cancer

Posted: Oct 22, 2023

What a coincidence that @myash and I take Orgovyx approximately the same hour. I am a...

https://connect.mayoclinic.org/comment/1293047/

coincidence that @myash and I take Orgovyx

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 29, 2025

That's correct about Medicare but with a caveat: Orgovyx has to be a covered drug under...

https://connect.mayoclinic.org/comment/1252715/

about Medicare but with a caveat: Orgovyx

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Mar 7, 2025

I have to agree with one note. While I Lupron I went anemic and while on...

https://connect.mayoclinic.org/comment/1390767/

Lupron I went anemic and while on Orgovyx

Discussion: Treatment options: radiation without ADT?

Support Group: Prostate Cancer

Posted: Sep 10, 2025

Thanks @jesse65. Tavel is what I love doing. I followed my RO advice in starting on...

https://connect.mayoclinic.org/comment/1516611/

followed my RO advice in starting on Orgovyx

Discussion: How quickly do you recover 'yourself’ after stopping Orgovyx?

Support Group: Prostate Cancer

Posted: Feb 28 1:26pm

I’m age 66. 4+3 Gleason. Oligometastic w/one spot on pelvis and one on pelvic lymph node....

https://connect.mayoclinic.org/comment/1525175/

ADT (Nubeqa, Orgovyx) for 6 months ending

Discussion: I’m 69yo with a 3+4=7 GS; is SBRT a good choice for treatment. I’m wai

Support Group: Prostate Cancer

Posted: 1 day ago

It's really weird here with Orgovyx. It's $2,500 a month if you're uninsured. If you're insured...

https://connect.mayoclinic.org/comment/1130897/

It's really weird here with Orgovyx ... what my doctor wrote to let me take Orgovyx ... insurance, the company that makes Orgovyx

Discussion: Puzzled by drug prices

Support Group: Prostate Cancer

Posted: Aug 26, 2024

I have been on Orgovyx for 13 months. I go to the gym 3 times a...

https://connect.mayoclinic.org/comment/941002/

I have been on Orgovyx for 13 months ... 0.04 following radiation and being on orgovyx

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: Oct 3, 2023

@myash What was your PSA and Gleason Score when you started treatment? I read in another...

https://connect.mayoclinic.org/comment/1292435/

said we would see if could be off Orgovyx ... understand you intend to discontinue Orgovyx

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 29, 2025

Thanks for your suggestion. Is this to replace Orgovyx? I started with Lupron monthly shots (for...

https://connect.mayoclinic.org/comment/1305986/

Is this to replace Orgovyx? ... shots (for 7 months) and changed to Orgovyx

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 17, 2025

@mjp0512 I took Orgovyx from March to late September 2025(six months) and didn't experience leg pain....

https://connect.mayoclinic.org/comment/1479113/

@mjp0512 I took Orgovyx from March to

Discussion: Can a short term of taking Orgovyx cause leg pain and weight gain?

Support Group: Prostate Cancer

Posted: Jan 10 4:26pm

I am on my 11th week of taking Orgovyx. I had similar side effects and my...

https://connect.mayoclinic.org/comment/1099657/

I am on my 11th week of taking Orgovyx ... my doctor suggested that I take my Orgovyx

Discussion: Does relugolix (Orgovyx) break the blood brain barrier?

Support Group: Prostate Cancer

Posted: Jul 5, 2024

msciulli, Is there a high copay for ORGOVYX for you? what are the side effects from...

https://connect.mayoclinic.org/comment/1048494/

msciulli, Is there a high copay for ORGOVYX

Discussion: MRIdian Viewray Experience

Support Group: Prostate Cancer

Posted: Apr 10, 2024

I have a 4+3 and a 3+3. My Decipher was .84 and that tripped the trigger...

https://connect.mayoclinic.org/comment/989898/

Six months of Orgovyx.

Discussion: Anyone had a decipher test done? Did the results impact treatment?

Support Group: Prostate Cancer

Posted: Jan 1, 2024

My Decipher score 0.98! I had SBRT radiation at UCLA. I am inclined to stay on...

https://connect.mayoclinic.org/comment/1189946/

I am inclined to stay on ORGOVYX for

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

Well, jeff, you nailed it. Orgovyx and Nubequa with a radiation oncology appt in a few...

https://connect.mayoclinic.org/comment/1324448/

Orgovyx and Nubequa with a radiation

Discussion: PSMA PET results 6/6/25

Support Group: Prostate Cancer

Posted: Jun 10, 2025

I had no major issues with Orgovyx. If it were up to me, I'd still be...

https://connect.mayoclinic.org/comment/1390806/

I had no major issues with Orgovyx.

Discussion: PSA Rise After ADT

Support Group: Prostate Cancer

Posted: Sep 10, 2025

@capatov It is likely your testosterone will rise higher soon. Here are the results of a...

https://connect.mayoclinic.org/comment/1478344/

74 of the 137 men in the relugolix (Orgovyx

Discussion: Anyone get PSA Test Angst days before that post-treatment PSA test?

Support Group: Prostate Cancer

Posted: Jan 9 3:22pm

Yuck! I’m in my 8th Orgovyx month of 24 planned. If I follow through, I’ll be...

https://connect.mayoclinic.org/comment/1365525/

I’m in my 8th Orgovyx month of 24 planned

Discussion: How Much Exercise during ADT?

Support Group: Prostate Cancer

Posted: Aug 7, 2025