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860 total results
Comments (821)
I had IVig infusions for over 2 years but had to stop in February because I...
https://connect.mayoclinic.org/comment/1104693/
couldn't sense any change in my CIDP
Am SO GLAD to find others with CIDP. I have just recently been officially diagnosed with...
https://connect.mayoclinic.org/comment/847554/
Am SO GLAD to find others with CIDP.
Hello @johnhans, welcome to Mayo Connect and thank you for your question. I also have small...
https://connect.mayoclinic.org/comment/91644/
show_locs=Y#locn
- CIDP – The Gripper ... Treatment Related Fluctuations in CIDP
Hi - I am still searching for factors that may have come together to cause what...
https://connect.mayoclinic.org/comment/1160719/
trying the new FDA approved drug for CIDP ... CIDP?
@colleenyoung Hi Colleen, yup, I agree, as far as not respecting the original topic of the...
https://connect.mayoclinic.org/comment/323960/
CIDP discussion - got a lot into God
I had my first round of IVIG infusions Oct, Nov and Dec, over aa period of...
https://connect.mayoclinic.org/comment/219630/
takes awhile to see if it’s helping my CIDP
@artemis1886 You sound like me! I do not have the tremors (yet) but have had EBV...
https://connect.mayoclinic.org/comment/1068284/
testing and spinal tap to check for CIDP
Started about 10-12 yrs ago with pins and needles in my one foot and then went...
https://connect.mayoclinic.org/comment/1127848/
of my issues I was diagnosed with CIDP
I too had a protein level 4x higher than normal range. Got no answers as to...
https://connect.mayoclinic.org/comment/939896/
I was diagnosed with CIDP few years
Someone suggested ice water foot soak, but I didn't enjoy that at all. I have found...
https://connect.mayoclinic.org/comment/1048155/
Prednisone to slow down the progression of CIDP
I have severe axonal sensorimotor polyneuropathy. I have lost feeling in my legs and hands. Constantly,...
https://connect.mayoclinic.org/comment/1096105/
I am now also being tested for CIDP
@sparshall All of my symptoms are bilateral. Idiopathic small fiber peripheral polyneuropathy has been the label....
https://connect.mayoclinic.org/comment/324199/
when I asked the neurologist about CIDP
Wow! You certainly have a large family! That can also be a stressor. And I certainly...
https://connect.mayoclinic.org/comment/218807/
very rare autoimmune disease called CIDP
FWIW, I’ve found that though you can’t repair the nerve damage, with regular PT (find one...
https://connect.mayoclinic.org/comment/1049613/
that knows MS if no experience with CIDP
Yes, have auto immune neuropathy cidp. Hands and feet unbearable pain. Took very long to diagnose.....
https://connect.mayoclinic.org/comment/92561/
Yes, have auto immune neuropathy cidp
MAG level of 1418 versus normal range of 0 to 999. Other MAG bloods were classified...
https://connect.mayoclinic.org/comment/953605/
suggest axonal poly neuropathy, not CIDP
How long did you have IVIG (gamma goblin). It keeps neuropathy from progressing and normally helps...
https://connect.mayoclinic.org/comment/1060074/
2018 and now they are checking me for CIDP
Hi Amy, we’re not medical professionals in the Connect forum but we can rely on our...
https://connect.mayoclinic.org/comment/667567/
anything that may spur a new reaction CIDP
Oh my god. Are you me lol? I have one of the exact same theories and...
https://connect.mayoclinic.org/comment/897651/
still semi convinced I have MS or CIDP
My symptoms started about 5 years ago with cold feet. Over the course of about 2...
https://connect.mayoclinic.org/comment/662081/
again and indicated I actually have CIDP
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