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Comments (10,000+)

From 10 to 5, taper was 1 per month. This was an interesting period. Mild osteoarthritis...

https://connect.mayoclinic.org/comment/1250381/

fingers, rotator cuff pains…but never PMR

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 1:17pm

sorry to hear. Yes. I was 68 when PMR hit. 72 now. sometimes I think this...

https://connect.mayoclinic.org/comment/1252857/

I was 68 when PMR hit. 72 now. sometimes

Discussion: Very low end of normal lab values for cortisol and ACTH after stopping

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 8:01pm

I’m so very sorry you’re going thru all this. The more I read people’s comments the...

https://connect.mayoclinic.org/comment/1215318/

the more I see how dibilating this PMR

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18 6:01am

@johnbishop @hopeful33250 Thank you so much for your reply. My dream and hope would be to...

https://connect.mayoclinic.org/comment/212852/

this past week I feel as though the PMR

Discussion: Hormone Replacement Therapy after several misdiagnoses

Support Group: Autoimmune Diseases

Posted: Aug 18, 2018

Welcome to Connect, @amkaloha. I'd like you to meet @elizamail and @johnbishop. John also has polymyalgia...

https://connect.mayoclinic.org/comment/113548/

and discussions: - Diagnosed with PMR

Discussion: Swollen legs and feet

Support Group: Chronic Pain

Posted: Sep 2, 2016

I see a PA at my Dr. office. She is quite good. I can get an...

https://connect.mayoclinic.org/comment/1246342/

only one in the office diagnosed with PMR

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 6:51am

I started on 40mg end of April and then tapered down to 5mg by mid June....

https://connect.mayoclinic.org/comment/1336780/

Back story… I’ve had PMR for several ... shortly there after I was introduced to PMR

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28 5:26am

Hi Gail. Would you be willing to share a little about your PMR? How did it...

https://connect.mayoclinic.org/comment/1055876/

willing to share a little about your PMR ... yet, but pretty darned sure I have PMR

Discussion: Has anyone fought Polymyalgia without prednisone successfully?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 23, 2024

"My shoulders are killing me. But and this is a big but the right-side hurts more...

https://connect.mayoclinic.org/comment/1042242/

criteria that I'm aware of says PMR ... an absolute criteria ... just that PMR

Discussion: Is this a possible relapse to PMR or something entirely different??

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2024

John - I thought so as well until this week when I went to my Endocrinologist...

https://connect.mayoclinic.org/comment/966797/

being whackers ever since the onset of PMR ... fatigue when we are on steroids for PMR

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2023

My experience with LDN and PMR is some what unique in that I tried LDN out...

https://connect.mayoclinic.org/comment/825550/

My experience with LDN and PMR is some ... switched docs to one that recognised the PMR

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2023

After being diagnosed with PMR on Feb 3, 2023 and getting on prednisone (now at 60...

https://connect.mayoclinic.org/comment/821986/

After being diagnosed with PMR on Feb ... would have been nothing for me before PMR

Discussion: I have questions: Can you work out while on Prednisone? Options?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6, 2023

Hi @jmcc I'm wondering if the pain in your shoulders is related to PMR or something...

https://connect.mayoclinic.org/comment/658986/

pain in your shoulders is related to PMR ... I first had PMR, then Giant Cell Arteritis

Discussion: Supplements to reduce inflammation

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 1, 2021

It is now 5 months later since I wrote here about my ear/nasal issues. I thought...

https://connect.mayoclinic.org/comment/641564/

had lost 25 lbs and diagnosed with PMR ... The prednisone I was taking for PMR

Discussion: Nasal passage blocked

Support Group: Ear, Nose & Throat (ENT)

Posted: Oct 3, 2021

@chals What has helped me taper off of prednisone the 2 times that it was active...

https://connect.mayoclinic.org/comment/607156/

Each time my PMR was active I was started ... six months of my first occurrence of PMR

Discussion: Prednisone support group?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5, 2021

I had 3 Pfizer shots but for my 4th shot decided to “mix it up” and...

https://connect.mayoclinic.org/comment/754090/

He diagnosed PMR (fortunately no GCA ... of rna as Pfizer shot) triggered my PMR

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2022

Hi @jump, Welcome to Mayo Clinic Connect. You mentioned you have to be on prednisone the...

https://connect.mayoclinic.org/comment/145169/

occurrences of polymyalgia rheumatica (PMR ... but was able to taper off once the PMR

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Feb 20, 2019

Your experience with PMR is very similar to mine - I was 70 when diagnosed and...

https://connect.mayoclinic.org/comment/180031/

Your experience with PMR is very similar ... Rheumatologist doesn't think are PMR

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2018

@ees1, @kdukes52, here is some information from Mayo Clinic in regards to stem cell treatments: Regenerative...

https://connect.mayoclinic.org/comment/188755/

issues, you will be transferred to PMR ... Important Notes to be Aware of: - PMR

Discussion: Stem cell therapy for hip

Support Group: Bones, Joints & Muscles

Posted: Mar 6, 2018

I can’t tell you all how reassuring this PMR site has been. I appreciate hearing your...

https://connect.mayoclinic.org/comment/1290434/

t tell you all how reassuring this PMR

Discussion: Could your PMR have been a result of the Covid mRNA vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 12:07pm