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Comments (5,382)
Don't expect immediate pain relief like when prednisone takes effect. You might not have any decrease...
Actemra was working until I was able to taper ... my prednisone dose lower without having ... year but I exceeded expectations and tapered ... off Prednisone completely. ... For me, being able to taper off Prednisone
Posted: Dec 22, 2024
Hello @nothatkaren, Welcome to Connect. Good question and PMR does seem to sneak up on you...
I was started on 20 mg prednisone and ... month ago sounds like you might be tapering ... There are many PMR discussions on tapering ... off of prednisone that you might find ... search=tapering%20prednisone.
You are a little ahead of me on taper, but I am doing it in a...
You are a little ahead of me on taper ... first bout with PMR, I did a slow taper ... On the second bout, I got off prednisone
Posted: Dec 11, 2024
"The goal is zero, so however we get there is fantastic!" -------------- I very much agree....
Sometimes people say one tapering scheme ... is no scientific proven method of tapering ... off prednisone. ... ;t any "gold standard" for tapering ... off prednisone.
Posted: Dec 8, 2024
Off prednisone since mid-September, slow taper for 18 months, PMR still in remission, but the fatigue...
Off prednisone since mid-September, ... slow taper for 18 months, PMR still ... and endurance has suffered since the taper
Posted: Nov 22, 2024
"I did approach my new rheumatologist (first appt with her) about checking for antibodies to Actemra…....
When Actemra enabled me to taper off ... When I tapered down to 15 mg of Prednisone ... Weekly injections worked well and I tapered ... My cortisol level prevented me from tapering ... low dose and there was no need to taper
Posted: Nov 19, 2024
Dad cue, Thanks for the response, I know you are very well versed in this subject!...
Relapsed on Actemra and prednisone, ... year ago, had to increase to 35 mg prednisone ... checking the level, maybe D/C the prednisone ... She wants me to continue the taper instead
Posted: Nov 19, 2024
PMR was treated with prednisone for 12 years and I never did achieve a lasting remission....
PMR was treated with prednisone for ... Actemra instead of a daily dose of prednisone ... insufficiency might have prevented me from tapering ... off prednisone sooner than I did. ... There were other prednisone related
Posted: Nov 16, 2024
@labcoris I have given you the link to Mayo Clinic’s information on atopic dermatitis. I plan...
It sure beats taking prednisone forever ... I’m tapering the prednisone now and ... The stories of prednisone long term ... order to avoid skin cancer, which prednisone
Support Group: Autoimmune Diseases
Posted: Nov 15, 2024
I will ask my pulmonologist. I suspect he might have already considered it, he seems very...
I suspect the prednisone is helping ... started it was real bad and they used prednisone ... I have tapered down to 6 mg and I hope
This isn't a recommendation of anyone in particular but this place has several rheumatologists to choose...
a very long time and you can't taper ... off Prednisone, a rheumatologist at ... novel therapy, it took me a year to taper ... off Prednisone. ... use but currently off prednisone for
Posted: Nov 10, 2024
I have successfully tapered with minimal pain , and no prednisone increases as follows : From...
I have successfully tapered with minimal ... pain , and no prednisone increases ... should not provoke an increase in prednisone
Posted: Nov 10, 2024
I was on Losartin (Cozaar) and Hydrochlorothiazide (Hydrodiurel) also. My calcium channel blocker was Amlodipine (Norvasc)....
couple of days followed by a fast taper ... Actemra, Then it took a year for me to taper ... off prednisone. ... have been stopped when I was able to taper ... off Prednisone.
I'm finding your notes hard to follow. You say in "Background": "1. PMR 40 -20-15-10-7.5-5-2.5-0 mg/daily...
40 -20-15-10-7.5-5-2.5-0 mg/daily tapering ... Predisone taper over 8 weeks (20 to ... It's not clear which of those tapers ... In any case, both tapers are unusually ... Prednisone is not curative, it just
Prednisone 20 mg twice a day is a bit of an unusual dosing pattern. Usually one...
Prednisone 20 mg twice a day is a bit ... doses, low, or larger doses with a taper ... I have to use prednisone when I have