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1,282 total results

Comments (1,172)

Hello @catro How troubling this disease is and unpredictable with each persons experience being so unique....

https://connect.mayoclinic.org/comment/93231/

I have polyneuropathy and my findings

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 24, 2020

I have severe axonal sensorimotor polyneuropathy. SFN, CAN- cardiac autonomic neuropathy ( you are given approx....

https://connect.mayoclinic.org/comment/1075543/

have severe axonal sensorimotor polyneuropathy

Discussion: Comments about CBD and/or THC for neuropathy pain and paresthesia?

Support Group: Neuropathy

Posted: May 27, 2024

I am 69 and have mild polyneuropathy (mainly loss of feeling in arms and legs) from...

https://connect.mayoclinic.org/comment/1050982/

I am 69 and have mild polyneuropathy

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

I just saw this upcoming webinar from the Foundation for Peripheral Neuropathy that I think might...

https://connect.mayoclinic.org/comment/1176031/

Chronic Inflammatory Demyelinating Polyneuropathy

Discussion: Current treatments and new guidelines for diagnosis of CIDP

Support Group: Autoimmune Diseases

Posted: Nov 19, 2024

Thank you for the response John. A neurologist did tests in November 2019 -- I believe...

https://connect.mayoclinic.org/comment/654521/

Diagnosis was idiopathic polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 15, 2021

Hello @suziep, welcome to Connect. Thank you for sharing the diagnoses you are facing with the...

https://connect.mayoclinic.org/comment/142339/

chronic inflammatory demyelinating polyneuropathy

Discussion: Inflammatory Neuropathy/Diabetic amyotrophy

Support Group: Neuropathy

Posted: Mar 9, 2017

IVIG therapy, steroids and immunotherapy, stem cell transplant along with plasma exchange is the treatment for...

https://connect.mayoclinic.org/comment/1060318/

neuropathy), severe sensorimotor peripheral polyneuropathy

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 1, 2024

SSID would not even began to start working on mine until I had atrophy in both...

https://connect.mayoclinic.org/comment/952917/

than qualify with the severity of the polyneuropathy

Discussion: Neuropathy & applying for Disability

Support Group: Neuropathy

Posted: Oct 24, 2023

Welcome @sunflowergirl050710, It's difficult not to worry about a treatment when you are not sure of...

https://connect.mayoclinic.org/comment/854530/

Chronic Inflammatory Demyelinating Polyneuropathy

Discussion: Anyone have the FGFR3 antibody gene?

Support Group: Neuropathy

Posted: May 4, 2023

After a long diagnostic process, 2 neurologists concluded that My polyneuropathy was probably an autoimmune reaction...

https://connect.mayoclinic.org/comment/828355/

, 2 neurologists concluded that My polyneuropathy

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Mar 19, 2023

Hello, I am new to this group. I am about 9 months into my diagnosis of...

https://connect.mayoclinic.org/comment/825641/

diagnosis of Idiopathic progressive Polyneuropathy

Discussion: Alcohol-related Neuropathy: Anyone had good treatment results?

Support Group: Neuropathy

Posted: Mar 13, 2023

Hi In the last 3 years I was finally diagnose with polyneuropathy in my legs but...

https://connect.mayoclinic.org/comment/626158/

years I was finally diagnose with polyneuropathy

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Aug 13, 2021

Hi Migizii, Thank you for sharing your history. Like you I have multiple health issues and...

https://connect.mayoclinic.org/comment/322176/

represesntative at Mayo Clinic about my polyneuropathy

Discussion: Bisphosphonates or Not? Both No Win

Support Group: Osteoporosis & Bone Health

Posted: Sep 18, 2020

Does anyone have soreness and pain after MFR treatments? I have been going to a physical...

https://connect.mayoclinic.org/comment/247206/

maintain, use of my body from Small Fiber Polyneuropathy

Discussion: Myofascial Release Therapy (MFR) for treating compression and pain

Support Group: Neuropathy

Posted: Sep 9, 2020

Interesting, thanks for the additional information Henk @tys. I took statins for blood pressure for quite...

https://connect.mayoclinic.org/comment/158571/

Masquerading as Diabetic Autoimmune Polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 10, 2020

Hi, I'm under a good Gastrologist and have been for some years. We have tried all...

https://connect.mayoclinic.org/comment/1130178/

stands the major problem is Autonomic polyneuropathy ... this time the Dysautonomia/Autonomic polyneuropathy

Discussion: GFR down from 58 to 43.8 over 3 years

Support Group: Kidney & Bladder

Posted: Aug 24, 2024

Hi, I was diagnosed with Autonomic polyneuropathy after 12 years of every other diagnosis going. I...

https://connect.mayoclinic.org/comment/1117257/

Hi, I was diagnosed with Autonomic polyneuropathy ... but it is the reality of Autonomic polyneuropathy

Discussion: Is there anyone else out there with pure autonomic system failure?

Support Group: Brain & Nervous System

Posted: Aug 3, 2024

Hi, I have autonomic polyneuropathy (ANS) with CSVD, CKD 3B, T2 diabetes, IBS, low Sella, osteoarthritis...

https://connect.mayoclinic.org/comment/1230990/

Hi, I have autonomic polyneuropathy ... With autonomic polyneuropathy I get

Discussion: Autonomic Dysfunction

Support Group: Brain & Nervous System

Posted: Feb 6 4:39pm

For the last 30 years I have diabetic autonimic peripheral polyneuropathy Nonacute chronic nerve pain ,...

https://connect.mayoclinic.org/comment/1284441/

have diabetic autonimic peripheral polyneuropathy ... charge. diabetic autonimic peripheral polyneuropathy

Discussion: Severe diabetic neuropathy pain

Support Group: Chronic Pain

Posted: Apr 18 7:28am

@maryflorida I'm blessed by having the support of the many people here, as well. I don't...

https://connect.mayoclinic.org/comment/318292/

affects both sides, so I have idiopathic polyneuropathy ... to idiopathic inherited small fiber polyneuropathy

Discussion: Nerve biopsy test: Is it done by a neurologist or rheumatologist?

Support Group: Neuropathy

Posted: Aug 15, 2020