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963 total results

Comments (917)

I have found that my walker with over size tires made it possible to get around...

https://connect.mayoclinic.org/comment/1134044/

I have CIDP, but it doesn't affect

Discussion: Preparing to Age in Place

Support Group: Aging Well

Posted: Aug 31, 2024

I begin my 5th (of 6) round of infusions tomorrow to treat CIDP. 3 consecutive/6 hr....

https://connect.mayoclinic.org/comment/661839/

round of infusions tomorrow to treat CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Dec 12, 2021

Hi, I have been dealing with CIDP for about 5 years now. I had a crisis...

https://connect.mayoclinic.org/comment/1293874/

Hi, I have been dealing with CIDP for

Discussion: Let’s have a chat about what if anything works to improve your life wi

Support Group: Neuropathy

Posted: Apr 30 9:58pm

Hi @shariday and welcome to Mayo Clinic Connect. It sounds like you’ve just had the rug...

https://connect.mayoclinic.org/comment/604965/

has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: May 26, 2021

Hello @jhn48110, I might be mistaken but I think CFS and BFS are a similar condition...

https://connect.mayoclinic.org/comment/603003/

Living Each Day to the Fullest - GBS/CIDP ... Foundation: https://www.gbs-cidp.org

Discussion: Benign Cramp Fasciculation Syndrome

Support Group: Brain & Nervous System

Posted: May 19, 2021

That’s a good question because I still don’t completely understand what I’ve been told (or not...

https://connect.mayoclinic.org/comment/81537/

Pre CIDP diagnosis, I had neuropathy ... to a Neurologist, who gave me the CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 10, 2019

@jtbt0406 First let me just say how sorry I am that you lost your sister. Very...

https://connect.mayoclinic.org/comment/238730/

other treatments you know about for CIDP ... like neuropathy there is no cure for CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 25, 2020

Unfortunately nothing has helped with my CIDP. Have been on all the routine meds, and IVIG...

https://connect.mayoclinic.org/comment/1045749/

Unfortunately nothing has helped with my CIDP

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 5, 2024

My case is the same . Idiopathic and now the neurologist has diagnosed CIDP after 9...

https://connect.mayoclinic.org/comment/914234/

now the neurologist has diagnosed CIDP

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Aug 16, 2023

Hello @wideawakechas; I have a CIDP, a different form, but same pain as PN. My Neurologist...

https://connect.mayoclinic.org/comment/651995/

Hello @wideawakechas; I have a CIDP,

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: Nov 7, 2021

@sparshall Hi Sandy, have not seen a post by you in a while, nice to see...

https://connect.mayoclinic.org/comment/325106/

horror you face in your life with CIDP

Discussion: Why test for neuropathy if there is no cure?

Support Group: Neuropathy

Posted: Nov 11, 2020

I was diagnosed with CIDP in October of 2024. I had my fourth IVIG (prevagen) treatment...

https://connect.mayoclinic.org/comment/1282728/

I was diagnosed with CIDP in October

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Apr 15 5:15pm

I've had CIDP for more than ten years and have cycled through every medication various doctors...

https://connect.mayoclinic.org/comment/1099956/

I've had CIDP for more than ten ... frustrating to have to go back to the CIDP

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 5, 2024

I have tested positive for four years for the Epstein Barr virus. I am now being...

https://connect.mayoclinic.org/comment/1068197/

I am now being tested for CIDP. ... EMG/nerve conduction test for the CIDP ... inflammatory demylinating disease -CIDP

Discussion: Has anyone had a tilt table test or examination?

Support Group: Autoimmune Diseases

Posted: May 15, 2024

@oliver8112000 I was not diagnosed with CIDP. I was diagnosed with idiopathic small fiber neuropathy (started...

https://connect.mayoclinic.org/comment/1383599/

oliver8112000 I was not diagnosed with CIDP

Discussion: Neuropathy or CIPD???

Support Group: Neuropathy

Posted: Aug 31 3:00pm

Harley, I am 10 minutes from Scottsdale in Fountain Hills and the neurologist is in Scottsdale,...

https://connect.mayoclinic.org/comment/1046605/

specialist, very knowledgeable about CIDP

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 7, 2024

I'm wondering if wrapping a penis with soft padded dressing might help the pain, especially with...

https://connect.mayoclinic.org/comment/989345/

ankles from peripheral neuropathy (CIDP

Discussion: Continuing “Un-explained Event” – Urethra Pain

Support Group: Men's Health

Posted: Dec 31, 2023

I ave tried all RX med for autoimmune neuropathy cidp, in hands and feet. Was in...

https://connect.mayoclinic.org/comment/203528/

all RX med for autoimmune neuropathy cidp

Discussion: CBD oil for Neuropathy

Support Group: Neuropathy

Posted: Oct 25, 2018

I've been having IVig infusions every 4 weeks for over a year. It's hard for me...

https://connect.mayoclinic.org/comment/978860/

other things I throw at my idiopathic CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Dec 12, 2023

I hear you and I'm listening. Like you, my journey began with unknown causes for serious...

https://connect.mayoclinic.org/comment/855747/

The first one suspected Cidp but her

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: May 7, 2023