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Comments (10,000+)

I also have stopped talking about it for the same reasons as you. People respond with...

https://connect.mayoclinic.org/comment/801433/

I only talk to my family about PMR and

Discussion: Confused: Tapering vs cold turkey stopping prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25, 2023

I believe I'm in remission from PMR, although I have days when I hurt quite a...

https://connect.mayoclinic.org/comment/734355/

believe I'm in remission from PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2022

There is one anti-inflamatory that has been proven to be safe and I have seen it...

https://connect.mayoclinic.org/comment/729828/

the cytokines that is implicated in PMR

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 23, 2022

@mild835 so sorry to hear about your latest taper struggle. I have been following your progress...

https://connect.mayoclinic.org/comment/694789/

your story so incredible living with PMR

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2022

Why monthly visits? Is it for labs? I usually have my PC order labs about every...

https://connect.mayoclinic.org/comment/694787/

labs to determine if I really have PMR

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2022

Re. Rule 3...I am currently tapering and had to increase from 7 to 10 mgs. due...

https://connect.mayoclinic.org/comment/138130/

believe it can be anything other than my PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 12, 2020

I have PMR. Always had a "good" diet, mostly fruit and vegetables, organic and heirloom, very....

https://connect.mayoclinic.org/comment/108784/

I have PMR.

Discussion: Does anyone use curcumin (Turmeric) to address autoimmune diseases?

Support Group: Autoimmune Diseases

Posted: Apr 5, 2019

Just wondering how long you have actually been on the prednisone and what was your starting...

https://connect.mayoclinic.org/comment/1231955/

I was diagnosed with PMR 6mths ago and

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 4:23am

Yes. First vaccine May 4/21. Neck sore all summer but just thought it was a very...

https://connect.mayoclinic.org/comment/681363/

No PMR in the family, no rheumatoid, ... Never heard of PMR.

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16, 2022

Great question @rocksology. For me, it's TBD - to be determined. I've had 2 occurrences of...

https://connect.mayoclinic.org/comment/1299138/

I've had 2 occurrences of PMR. ... During my second time around with PMR

Discussion: Do we actually “recover”?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 1:52pm

Reading these comments just shows how each person’s immune system is different regarding diet, prednisone and...

https://connect.mayoclinic.org/comment/1312535/

Personally I had PMR in 2020, went on ... I feel like my PMR was triggered by

Discussion: How long does prednisone take

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 12:03pm

Hi, yes, I believe my PMR was just the inflammation cup running over, so to speak....

https://connect.mayoclinic.org/comment/1189815/

Hi, yes, I believe my PMR was just the ... inflammation for years before the PMR

Discussion: Newly diagnosed and contemplating how long this has been coming on.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2024

I think that your nasty rheumy has moved here to Minnesota. Ha. same situation. I have...

https://connect.mayoclinic.org/comment/1172123/

have been on for 8 years becasue of PMR ... She told me PMR only lasts 1 year EMPHATICALLY

Discussion: PMR savvy doctors in Portland Oregon

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 12, 2024

Thank you! I started with functional medicine, chiropractic, herbalist but have been thinking about looking into...

https://connect.mayoclinic.org/comment/1218037/

which from what I read can look like PMR ... knowledgeable on Lymes this way and PMR

Discussion: Figuring out autoimmune disease where to start?

Support Group: Autoimmune Diseases

Posted: Jan 21 9:18am

Pain from arthritis is not as bad as it was when I was younger. Except for...

https://connect.mayoclinic.org/comment/1109575/

The pain from my PMR can be moderate ... surgical knee pain— no knee pain, just PMR

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2024

Good information. I think we all know at least from a PMR perspective that prednisone is...

https://connect.mayoclinic.org/comment/1095656/

think we all know at least from a PMR ... However, PMR is more of a long term

Discussion: Good information to know about prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2024

I took DEX. for my PMR. My wife has GBM they prescribe dex for inflammation. Its...

https://connect.mayoclinic.org/comment/1077210/

I took DEX. for my PMR. ... Its how I self diagnosed myself with PMR

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2024

@jrp11948 I actually don’t know if you are in remission or not. Your doctor would be...

https://connect.mayoclinic.org/comment/1052749/

discussions that give more info on PMR ... connect.mayoclinic.org/discussion/advice-on-managing-pmr

Discussion: Remission, maybe.

Support Group: Autoimmune Diseases

Posted: Apr 17, 2024

I got down to 2 mg methylpredisolone and then mild muscle pains returned. Can cortisol deficiency...

https://connect.mayoclinic.org/comment/1014234/

itself with exactly the same pain as PMR ... wonder if low cortisol can feel like PMR

Discussion: Synacthen Test

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12, 2024

I too have PMR, did 15 months of Prednisone and am currently in remission. I am...

https://connect.mayoclinic.org/comment/999130/

I too have PMR, did 15 months of Prednisone ... scan just before being diagnosed with PMR

Discussion: Calcium Supplements

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 17, 2024