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Comments (10,000+)

"I eventually got an appointment with a rheumatologist who prescribed Tocilizumab by infusion. I found it...

https://connect.mayoclinic.org/comment/1351454/

psoriatic arthritis in addition to PMR ... while I took Prednisone daily to treat PMR ... Humira didn't work too well for PMR

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19 7:39am

My guess is that "extreme fatigue" is very common as we decrease our prednisone dose. I...

https://connect.mayoclinic.org/comment/1331196/

insufficiency and a low cortisol level than PMR ... --- Some people will suggest that PMR

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20 9:57am

"I think it’s called toffi." ------------------- Tophi but close enough. I didn't really ask for a...

https://connect.mayoclinic.org/comment/1340630/

PMR is being treated with a biologic ... which is targeted at PMR.

Discussion: Any luck using Tylenol and ibuprofen for joint pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3 6:22pm

I was 1st dx w/ PMR about 10 yrs ago. After about a yr I went...

https://connect.mayoclinic.org/comment/1364642/

I was 1st dx w/ PMR about 10 yrs ago ... it got worse and I remembered the PMR

Discussion: what to expect when starting prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5 11:34pm

I was diagnosed with PMR/GCA in July 2024 and began 60 mg. of pred. With that...

https://connect.mayoclinic.org/comment/1371070/

I was diagnosed with PMR/GCA in July ... but I'm only about 50% of my pre-PMR

Discussion: PMR and fatigue

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15 8:11am

I totally agree with you. I am back up to 20 mg of prednisone after "failing...

https://connect.mayoclinic.org/comment/1228860/

My symptoms seem to be PMR for sure,

Discussion: Can ultrasound help confirm PMR diagnosis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 3 5:38pm

From what I’ve found on the web, relapses are common in the 5 mg to 7...

https://connect.mayoclinic.org/comment/1250267/

warming up but is most likely due to PMR

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 11:13am

Terri @rocksology, I'm sorry to hear about the prednisone effecting your heart and causing additional problems....

https://connect.mayoclinic.org/comment/1292232/

alternatives to the prednisone to treat your PMR

Discussion: PMR and increased pressure in left ventrical in heart

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28 7:20pm

I was 54 when I had first symptoms and officially diagnosed a few months later. I...

https://connect.mayoclinic.org/comment/1290060/

Yes that’s young for pmr but it can

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 4:35am

I had swollen hands before my PMR was treated with prednisone. At that time I had...

https://connect.mayoclinic.org/comment/1206732/

I had swollen hands before my PMR was

Discussion: Hand pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8 11:00am

The doctor asked me about all the possible symptoms and I couldn’t honestly say I recalled...

https://connect.mayoclinic.org/comment/1194973/

had some muscle aches and suspect PMR

Discussion: Use of a sauna with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 22, 2024

I recently developed PMR and am taking 15 mg of Prednisone daily. I also have had...

https://connect.mayoclinic.org/comment/1125585/

I recently developed PMR and am taking

Discussion: Thank you Reminder to PMR group

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2024

Good job. Welcome to the club of those with life after prednisone. It can take several...

https://connect.mayoclinic.org/comment/1104315/

bodies dont seem to rebound to pre-PMR

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2024

I'm guessing the definition of a flare up for PMR is different for all of us...

https://connect.mayoclinic.org/comment/1085984/

guessing the definition of a flare up for PMR

Discussion: Tapering and Dealing with a Flareup

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 13, 2024

Some supplements that have potential to mitigate IL-6 in addition to vitamin C include vitamin D,...

https://connect.mayoclinic.org/comment/1048139/

I had elevated IL-6 with my PMR.

Discussion: 2022 Update on the science behind PMR and drug therapies

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9, 2024

Hello @isabelle7, I know it must not be easy being a caregiver for your husband with...

https://connect.mayoclinic.org/comment/1044938/

caregiver for your husband with his PMR

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

I already had osteopenia before pmr. An endocrinologist suggested Reclast, a once a year infusion. I've...

https://connect.mayoclinic.org/comment/1038662/

I already had osteopenia before pmr

Discussion: PMR, Osteoporosis and Fosamax?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 23, 2024

I go in ice baths... and in the lake in the winter.. through a hole with...

https://connect.mayoclinic.org/comment/1020022/

PMR and does lower inflammation. also

Discussion: Any experience with red or infrared light therapy for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2024

Taking calcium was the first thing my Dr/ rheumatologist said to me, when I began taking...

https://connect.mayoclinic.org/comment/988595/

Dealing with PMR is enough let alone

Discussion: Calcium Supplements

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2023

Hi. Welcome to MayoConnect. I’m not a mentor, tho I expect one will check in sometime...

https://connect.mayoclinic.org/comment/988266/

do have RA that had a very sudden, PMR

Discussion: PMR - possible diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023