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Comments (953)
Kevzara (sarilumab) is self administered by an injection under the skin -- it isn't given as...
https://connect.mayoclinic.org/comment/1146189/
It is FDA approved for PMR but not GCA ... It is FDA approved for GCA but not PMR ... I had a great results from Actemra ... I have PMR, reactive arthritis and uveitis ... I have no side effects from Actemra.
@redboat has an incredible story about how high his inflammation markers were. I'm not sure about...
https://connect.mayoclinic.org/comment/1141340/
sure about how he was diagnosed with PMR ... His response to Actemra was remarkable
When I was on prednisone alone I could never get down to 5 mg let alone...
https://connect.mayoclinic.org/comment/1135320/
that quickly when a biologic called Actemra ... by 1 mg per week when I was doing Actemra ... This assumes PMR is in remission. ... Kevzara might help to get PMR into remission
Unfortunately you can't simply stop taking prednisone. Methotrexate might help you get off Prednisone sooner if...
https://connect.mayoclinic.org/comment/1131927/
I am taking a biologic called Actemra ... Actemra (tocilizumab) allowed me to ... I will be on Actemra for as long as ... In the UK, Actemra is restricted to ... I was told my experience with Actemra
Thanks so much for replying. I tapered down to 1mg. prednisone. Have felt absolutely terrible, So...
https://connect.mayoclinic.org/comment/1131884/
My ins probably won't cover Actemra ... should add my primary thinks I have PMR
The following link is a good place to start. https://www.pmrandil6.com/il-6-and-pmr/ --------------------------------------------- IL-6 is a cytokine (protein...
https://connect.mayoclinic.org/comment/1122486/
https://www.pmrandil6.com/il-6-and-pmr ... Actemra is a protein molecule that is ... years I was on Prednisone to treat PMR ... PMR has been in remission thanks to ... Actemra.
PMR struck me when I was 52. I want to forget about my 50's decades for...
https://connect.mayoclinic.org/comment/1120174/
PMR struck me when I was 52. ... Five years on Actemra has made a world ... ophthalmologist doesn't think Actemra ... My rheumatologist wants me on Actemra ... don't know what will happen if Actemra
Wow 😮 we are a mess, aren’t we?! When I was first diagnosed with “Reiters syndrome”...
https://connect.mayoclinic.org/comment/1119611/
I did not get PMR until two years ago—also ... effects, so now doctor wants me to try Actemra
"Being that you dealt with PMR for a longer period, is it debilitating over time or...
https://connect.mayoclinic.org/comment/1118476/
"Being that you dealt with PMR for ... PMR was very debilitating at first. ... 't know if every setback was a PMR ... I wasn't convinced I still had PMR ... about that as I found out later when Actemra
I give your rheumatologist credit for wanting to "manage your pain." She isn't wrong for wanting...
https://connect.mayoclinic.org/comment/1118265/
for 5 years to treat PMR. ... When Actemra was first offered to me ... being the "only option" for PMR ... rheumatologist recommended trying Actemra ... In my case, Actemra wasn't a devil
I had a similar feeling of lotion or Vaseline smeared over my eyes that lasted a...
https://connect.mayoclinic.org/comment/1106877/
the day I saw her showed I was in a PMR ... My one hope is the Actemra that he wants
So I saw my pcp and she seems to think because it comes and goes that...
https://connect.mayoclinic.org/comment/1106424/
My PMR is in flare, which I knew. ... rheumatologist so I can get started on the Actemra ... taking 7.5 mg of prednisone for my PMR
@windyshores Oh, Windy, you are so knowledgeable!! I am so glad I asked!!! We have settled...
https://connect.mayoclinic.org/comment/1104493/
dealing with a rheumatologist for his PMR ... So I'm giving him his weekly Actemra
@charlotte61 , @trina24 , @nancy53 I know having PMR and worrying about GCA is frightening. But...
https://connect.mayoclinic.org/comment/1103605/
trina24 , @nancy53
I know having PMR ... My husband had PMR then developed GCA ... of them so I put his symptoms and PMR ... My husband has PMR and developed GCA ... is still tapering with the help of Actemra
I'm currently doing Actema infusions for "refractory PMR." I was on prednisone for more than 12...
https://connect.mayoclinic.org/comment/1099827/
I'm currently doing Actema infusions ... for "refractory PMR." I ... prednisone for more than 12 years for PMR ... Since Actemra isn't FDA approved ... for PMR, my rheumatologist had to get
So now I'm really curious ... Why have you been on a 5 mg maintenance dose...
https://connect.mayoclinic.org/comment/1089720/
rheumatologists want to happen to PMR ... time --- usually 2 years or less for PMR ... I was given a biologic called Actemra ... off prednisone for 12 years after PMR
The ones i have seen most frequently are higher cholesterol which is similar to what Prednisone...
https://connect.mayoclinic.org/comment/1089241/
If you have GCA Actemra is shown to ... The idea is to keep your PMR from flaring
Yes. Its going to be a wild ride. If you can bear the pain then try...
https://connect.mayoclinic.org/comment/1082508/
percentage started using them for PMR ... But it doesnt help with PMR. ... Newer biologics like Kevzara and Actemra ... IL-6 has been shown to be active in PMR
I don't want to equate GBM with trigeminal neuralgia but I understand how any inflammation causes...
https://connect.mayoclinic.org/comment/1080852/
For many years before PMR was diagnosed ... doctors about adrenal insufficiency --- Actemra
Don't expect an immediate change when starting Kevzara but try to be optimistic. Kevzara doesn't come...
https://connect.mayoclinic.org/comment/1079756/
I started Actemra five years ago for ... refractory PMR. ... I wasn't optimistic that Actemra ... different than my experience with Actemra ... I still do a monthly infusion of Actemra
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