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Comments (1,292)
It is interesting that you are off prednisone and your doctor is considering starting Actemra. I...
I started Actemra 4 years ago for PMR ... Part of the criteria for getting Actemra ... medications for 12 years to treat PMR ... treatment of PMR. ... called Kevzara is FDA approved for PMR
Posted: Jan 1, 2024
Back in 2017 I had been taking RYR for about a year. My doctor previously asked...
Finally I got the news, GCA AND PMR. ... I was switched to Actemra after 8 months ... With Actemra my cholesterol shot up
Discussion: PMR & Statins
Posted: Dec 22, 2023
Do you know Dr. Tuetken? She was my rheumatologist at the University of Iowa for 15...
Dr Teutken saved me when PMR was diagnosed ... many problems that cropped up after PMR ... I really think I can stop Actemra. ... I believe PMR is gone too. ... I didn't do well when Actemra was
Support Group: Autoimmune Diseases
Posted: Dec 19, 2023
Do you have PMR too? Prednisone is used almost exclusively to treat PMR. I'm familiar with...
Do you have PMR too? ... is used almost exclusively to treat PMR ... Actemra was originally used for RA and ... Actemra works on the inflammtion pathway ... that is implicated in PMR.
Posted: Dec 6, 2023
The biologic that targeted PMR was Actemra (tocilizumab) and it worked for me. Another biologic was...
The biologic that targeted PMR was Actemra ... but it didn't seem to work for PMR ... biologic that is now FDA approved for PMR
Posted: Dec 6, 2023
I hope Actemra works for you. Being optimistic is important I think. I lost all hope...
I hope Actemra works for you. ... was the "only option" for PMR ... I reluctantly agreed to try Actemra ... My rheumatologist only said Actemra ... because of something unrelated to PMR
Discussion: GCA conserns
Posted: Nov 30, 2023
A biologic is a medication derived from living things. These things can be human but not...
I take Actemra (tocilizumab) for refractory ... PMR and it works for me. ... I was only diagnosed with PMR so my ... He made sure I was willing to try Actemra ... sarilumab) was recently FDA approved for PMR
Posted: Nov 29, 2023
I haven't had any side effects except for some minor lab abnormalities. It isn't clear that...
It isn't clear that Actemra (tocilizumab ... Actemra may cause serious stomach and ... I tolerate Actemra well but some people ... Actemra may not work for everyone. ... After 12 years of PMR, prednisone and
I have an autoimmune disease and Mayo doctors used a drug called Actemre to effectively replace...
and Mayo doctors used a drug called Actemre ... You might want to ask your doctor if Actemre ... is used for PMR. ... bless your relief and recovery from PMR
Posted: Oct 20, 2023
I had a similar situation due to PMR or "apparent" GCA. I was on 20 mg...
I had a similar situation due to PMR ... about 5 weeks, I began weekly shots of Actemra ... as I continue the weekly shots of Actemra ... Actemra has been very effective for ... normal (considering that I still have PMR
There are unfortunate problems that surface when people get into the neighborhood of 5 mg of...
were nothing like the pain I had when PMR ... backup medication that helped me was Actemra ... Actemra doesn't suppress my adrenal ... high doses for more than 12 years for PMR
Hi there- There’s a lot of great feedback and shared experiences about this here: https://connect.mayoclinic.org/discussion/pmr-dosages/ if...
/connect.mayoclinic.org/discussion/pmr-dosages ... prednisone if you want to look up “Actemra ... My dad has PMR and central sensitivity
Posted: Jul 3, 2023
I think you would have much to contribute to a PMR forum. I don't know where...
would have much to contribute to a PMR ... Actemra (IL-6 inhibitor) worked well ... I wanted to go back to Actemra in order ... He gave me the choice between Actemra ... I chose Actemra over Humira.
So far, I am unaware of any side effects of Actemra. I've been having weekly injections...
am unaware of any side effects of Actemra ... ve been having weekly injections of Actemra ... I will likely need to continue on Actemra ... My symptoms from PMR and Giant Cell ... (My PMR/GCA symptoms began on January
Posted: Jun 22, 2023
I have PMR /GCA started out at 40 mg prednisone and now at 20 mg. Was...
I have PMR /GCA started out at 40 mg ... everyone here is doing prednisone and acterma ... rheumatologist said we can consider acterma
Welcome! I'm sorry your have been diagnosed with PMR. I hope your journey with PMR goes...
sorry your have been diagnosed with PMR ... I hope your journey with PMR goes as ... of circumstances so everyone with PMR ... doing in the way of treatment for PMR ... might be in remission" thanks to Actemra