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723 total results
Comments (699)
I was diagnosed with GCA in Feb. 2025, started immediately on 50mg Prednisone. After two weeks...
https://connect.mayoclinic.org/comment/1301925/
I was diagnosed with GCA in Feb. 2025 ... Around week 5, I started ACTEMRA infusions ... Actemra infusions continue one each
When I was diagnosed with PMR/GCA, I tried to get out and do a short walk...
https://connect.mayoclinic.org/comment/1300966/
When I was diagnosed with PMR/GCA, I ... I've been taking Actemra infusions ... much of the stamina I had before PMR/GCA
You might want to mention Kevzara for PMR because it is FDA approved for PMR. Actemra...
https://connect.mayoclinic.org/comment/1228938/
Actemra still isn't FDA approved ... for PMR but it is for GCA. ... excited about the GIACTA trial for GCA ... to get authorization for me to get Actemra ... rapidly changing in the realm of PMR/GCA
I had an interesting experience yesterday. I'm currently at 7 mg. I started that dose last...
https://connect.mayoclinic.org/comment/1250270/
I'm also injecting Actemra once ... I have PMR and GCA.
I'm 71 and have GCA and PMR. I started on 60 mg prednisone last July and...
https://connect.mayoclinic.org/comment/1232919/
I'm 71 and have GCA and PMR. ... prednisone last July and added weekly Actemra
Yes, I kept my vision. The day I was diagnosed with GCA, I went to the...
https://connect.mayoclinic.org/comment/1247936/
The day I was diagnosed with GCA, I ... tapering the prednisone and taking weekly Actemra ... check the health of my eyes from the GCA ... just googled about blindness from GCA ... and it said up to 20% of people with GCA
I feel very fortunate to deal with my rheumatologist and his PA. They helped me through...
https://connect.mayoclinic.org/comment/1247831/
when I almost lost my vision from GCA ... They prescribed Actemra to help taper
My experience is very similar to yours. I was diagnosed in late June 2024 with PMR...
https://connect.mayoclinic.org/comment/1246483/
diagnosed in late June 2024 with PMR and GCA ... I started weekly Actemra injections ... I had had vision problems from the GCA ... It sounds to me like your GCA is flaring
I assume they didn't test cytokines because there weren't many good alternatives to Actemra and Kevzara....
https://connect.mayoclinic.org/comment/1313113/
weren't many good alternatives to Actemra ... The new drugs like Rinvoq for GCA might ... people who don't respond well to Actemra
Welcome. I was diagnosed GCA in February (no PMR). The high dose prednisone was a wild...
https://connect.mayoclinic.org/comment/1315848/
I was diagnosed GCA in February (no ... On Actemra infusions monthly now and ... your journey and hope you can use Actemra
@elderdiana - Have you thought about going to Mayo Clinic in Phoenix to get a second...
https://connect.mayoclinic.org/comment/211437/
I read about Actemra and agree that ... in Minnesota sees the most cases of GCA ... Scandinavian countries so they see a lot of GCA ... understand your reluctance to go on the Actemra
I also woke up blind one day in my right eye. Temporal biopsy was negative. C...
https://connect.mayoclinic.org/comment/1219239/
Turned out I had GCA. ... Now on Actemra. Very expensive
jmdougherty: Do not have PMR just Giant Cell Arteritis and have been on Prednisone 80, 100,...
https://connect.mayoclinic.org/comment/1254874/
tapering in August '24 , then on Actemra ... Tomorrow I meet with her and get Actemra ... but still 20lb lighter than before GCA
I was on 60 mg for about 6 weeks, and then it took 6 more weeks...
https://connect.mayoclinic.org/comment/1255204/
to serious vision problems from the GCA ... I started taking weekly Actemra injections
Hi @neztrop, I am so sorry to hear that you have had problems with tapering, but...
https://connect.mayoclinic.org/comment/1235872/
difficulty with tapering and am on Actemra ... due to suspected GCA.
My rheumatologists group follows a protocol and most all their PMR patients are off Pred within...
https://connect.mayoclinic.org/comment/1237389/
Five years ago when I tried Actemra, ... breaking new ground if he could get Actemra ... At the time, Actemra was only FDA approved ... for GCA and I didn't have GCA. ... The reason Actemra was approved for
Maye, I was diagnosed with GCA at the end of June of 2024. I had undiagnosed...
https://connect.mayoclinic.org/comment/1211061/
Maye, I was diagnosed with GCA at the ... Note that I started weekly Actemra injections ... because of vision problems from the GCA ... significantly from the prednisone and or Actemra ... low dose aspirin recommended for the GCA
I began having symptoms at 54. Of course I didn't know it at the time but...
https://connect.mayoclinic.org/comment/1000418/
Then symptoms of GCA started. ... away almost immediately but I had GCA ... I took my last shot of Actemra Nov 14
Be careful and monitor yourself for any symptoms of GCA. I treated myself for PMR with...
https://connect.mayoclinic.org/comment/1245469/
monitor yourself for any symptoms of GCA ... had PMR, and I eventually developed GCA ... on prednisone and more than that on Actemra
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