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Comments (9,998)

Hi, I have PMR and have been weaning down very slowly and am now at 5...

https://connect.mayoclinic.org/comment/286702/

Hi, I have PMR and have been weaning ... I was quite sure that I had PMR but ... i was aware that 20% of those with PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 6, 2020

I believe, although no doctor can conform positively, that I contracted PMR a week after my...

https://connect.mayoclinic.org/comment/1127956/

conform positively, that I contracted PMR

Discussion: Could your PMR have been a result of the Covid mRNA vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2024

I would suggest you talk thru your delima with your PCP. I discovered that several of...

https://connect.mayoclinic.org/comment/1111958/

that my rheumatologist lumped into PMR

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

Welcome, @alisongrundy. I moved your questions about side effects tapering off of prednisone to this existing...

https://connect.mayoclinic.org/comment/1102309/

connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I have read so much on this. Pmr is baffling. Off of prednisone and on dexamethasone...

https://connect.mayoclinic.org/comment/1089601/

Pmr is baffling.

Discussion: Holistic medicine approach to PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2024

I am on Prednisone daily for PMR. All my joints are disintegrating and I will have...

https://connect.mayoclinic.org/comment/1072677/

I am on Prednisone daily for PMR.

Discussion: Side effects of cortisone injection?

Support Group: Bones, Joints & Muscles

Posted: May 22, 2024

Perhaps you were never on high enough of a dose for an adequate time to put...

https://connect.mayoclinic.org/comment/1072173/

a dose for an adequate time to put PMR

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

Many mornings I have initial stiffness only and it lessens by mid-morning or noon. Other days...

https://connect.mayoclinic.org/comment/1065360/

anything I want - not like my pre-PMR

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2024

I was diagnosed with PMR in July. I started on 60mg of Prednisone and then added...

https://connect.mayoclinic.org/comment/1048810/

I was diagnosed with PMR in July.

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

I am experiencing the exact same thing. I just dropped down to 3 mg from 4...

https://connect.mayoclinic.org/comment/1040744/

I have had PMR since June 2022.

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2024

My PMR was within normal range while I was on 7.5 mg and I'm not due...

https://connect.mayoclinic.org/comment/1023231/

My PMR was within normal range while

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26, 2024

I have had miserable buttock pain since my diagnosis of PMR one year ago. I found...

https://connect.mayoclinic.org/comment/1017739/

buttock pain since my diagnosis of PMR

Discussion: Miserable nerve pain

Support Group: Autoimmune Diseases

Posted: Feb 18, 2024

Thank-you for reminding people about the need for the adrenals to get up to speed. Adrenal...

https://connect.mayoclinic.org/comment/978572/

Adrenal function and PMR flares likely

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2023

I think it’s a wonderful thing that you feel up to getting back out. I am...

https://connect.mayoclinic.org/comment/972605/

I am also 64 and PMR has definitely

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 30, 2023

I too am leary of getting vaccines now with PMR but getting them anyway. Happy to...

https://connect.mayoclinic.org/comment/964834/

leary of getting vaccines now with PMR

Discussion: Any side effects from present flu shot with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 14, 2023

I would interpret that as "...I haven't seen any PMR patients that didn't fix in the...

https://connect.mayoclinic.org/comment/957930/

as "...I haven't seen any PMR

Discussion: I’m Not Responding to Prednisone and I Need Advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 2, 2023

You're right about the toes and feet feeling tingly. I feel it coming on the most...

https://connect.mayoclinic.org/comment/946332/

feeling as soon as I was getting the PMR

Discussion: Anyone else have strange neurological symptoms with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2023

It took me a long time to clear the pain in shoulders and neck. Thanks to...

https://connect.mayoclinic.org/comment/918482/

from the fact that while getting over PMR

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 25, 2023

I had never heard of PMR untill i was diagnosed with it , and didn't realize...

https://connect.mayoclinic.org/comment/912952/

I had never heard of PMR untill i was

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14, 2023

That’s really interesting, but opposite of my experience. I have a different inflammatory arthritis (it’s my...

https://connect.mayoclinic.org/comment/900949/

inflammatory arthritis (it’s my dad who has PMR

Discussion: Covid and PMR surprise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 23, 2023