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723 total results
Comments (699)
What biologic was tried?? The only biologic that I'm aware of and the only one that...
https://connect.mayoclinic.org/comment/319117/
only one that is FDA approved for GCA ... is Actemra (tocilizumab). ... In early 2019, Actemra (tocilizumab) ... Actemra (tocilizumab) was restarted
Discussion: PMR coming back?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 13, 2020
I don't really know how long I will remain on Actemra. I have had a total...
https://connect.mayoclinic.org/comment/286648/
really know how long I will remain on Actemra ... #39;s experience with tapering off Actemra ... It was recently FDA approved for GCA
Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 1, 2020
I was diagnosed with GCA in January 2020 - my sed rate was 117 - and...
https://connect.mayoclinic.org/comment/303749/
I was diagnosed with GCA in January ... and GCA you might not have found yet ... tocilizumab-shows-promise-as-a-new-treatment-for-gca-pmr ... / https://www.actemra.com/gca/about-actemra ... /actemra-for-gca.html Reading over
Discussion: What's your experience with Actemra for GCA?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 30, 2020
Hello @paddington -- Welcome to Mayo Clinic Connect. Thank you for the private message and allowing...
https://connect.mayoclinic.org/comment/197347/
paddington message: I was diagnosed with GCA ... prescribed a biologic steroid-sparing agent Actemra ... My insurance company approved the Actemra
Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 19, 2020
Yes ... there are a couple of biosimilars to Actemra (tocilizumab). This is beneficial for people...
https://connect.mayoclinic.org/comment/1280300/
This is beneficial for people with GCA ... Actemra was FDA approved for GCA in ... biosimilars are also approved for GCA ... approved for GCA. ... If a person has both PMR and GCA, either
Discussion: Exercise is so important
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 12 4:15pm
I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...
https://connect.mayoclinic.org/comment/1281548/
was diagnosed with PMR and possible GCA ... requested that my rheumatologist order Actemra ... I chose to use Actemra due to the horrible ... I know that Actemra has it's own
Discussion: Taking Prednisone for PMR &!actemra to wean off prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 14 9:45am
It sounds like your dose of prednisone might be too low to control your symptoms. I...
https://connect.mayoclinic.org/comment/1282969/
posts that you're also taking Actemra ... , but maybe the Actemra hasn't taken ... I have GCA that included vision problems ... symptoms sound like they could be GCA
Discussion: Taking prednisone before sleep.
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 16 6:50am
I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...
https://connect.mayoclinic.org/comment/1288709/
was diagnosed with PMR and possible GCA ... Prednisone due to the possibility of GCA ... I asked my rheumatologist to order Actemra ... Actemra has increased my quality of ... Actemra also comes in a weekly self
Discussion: What is the goal when tapering?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 24 8:23am
My rheumatologist says it is "unlikely" that I will get off Actemra unless it stops working....
https://connect.mayoclinic.org/comment/1289092/
;unlikely" that I will get off Actemra ... to me now which may work as well as Actemra ... Stopping PMR/GCA in its tracks is something
Discussion: What is the goal when tapering?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 24 3:59pm
I, too, am interested in knowing if people are successful in stopping their Actemra. Friends and...
https://connect.mayoclinic.org/comment/1289151/
people are successful in stopping their Actemra ... Prednisone for years, before taking Actemra ... proactive in getting treatment for PMR/GCA ... discussion with her about how long her PMR/GCA ... patients have been taking Actemra and
Discussion: What is the goal when tapering?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 24 5:33pm
For now, I am happy to know that Actemra can be easily stopped. Prednisone can't be...
https://connect.mayoclinic.org/comment/1289200/
For now, I am happy to know that Actemra ... can't be stopped abruptly but Actemra ... notified that existing supplies of Actemra ... PMR/GCA relapses do occur when Actemra ... After Actemra was restarted, I went
Discussion: What is the goal when tapering?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 24 7:22pm
I didn't apply for financial assistance since my insurance paid for my Actemra, but I found...
https://connect.mayoclinic.org/comment/1241618/
assistance since my insurance paid for my Actemra ... These grants were for people with GCA ... to get Actemra. ... #39;t know if it was prednisone or Actemra
Discussion: New to PMR diagnosis
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 20 2:33pm
Great to hear Pred and Actemera working for you too Jeff97, albeit a slower taper ....
https://connect.mayoclinic.org/comment/1239578/
Great to hear Pred and Actemera working ... My GCA is with no temporal / cranial ... Keeping Actemera refrigerated as i travel
Discussion: New to PMR diagnosis
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 18 4:35am