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Comments (784)
Great to hear from you! I’m sorry about your disappointing experience at Mayo. I think it’s...
https://connect.mayoclinic.org/comment/831605/
wonderful that they found you do not have amyloidosis
Knowledge is power. You’ll find the doctors and the medical teams at Mayo are very approachable,...
https://connect.mayoclinic.org/comment/726744/
the leading research specialists in Amyloidosis
@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...
https://connect.mayoclinic.org/comment/995165/
showed why I was concerned about AL amyloidosis ... multiple myeloma, higher risk for AL amyloidosis
Now having a diagnosis, I just filled out my Bio and will repost here, because it...
https://connect.mayoclinic.org/comment/981394/
alarmed at the prospect of having AL amyloidosis ... disorders OTHER than MM, such as AL amyloidosis
@Peach414144 (Peachy?) I like that name. Anyway, to answer your question, no! My diagnosis for years...
https://connect.mayoclinic.org/comment/167743/
some of the most important signs of Amyloidosis ... Or go to Amyloidosis.org, the Amy Foundation
Hi Susan, I’m sorry to hear you’re also not being heard, and I hope you have...
https://connect.mayoclinic.org/comment/883939/
terms of secondary harm to tissues (amyloidosis
Hello Bob, so sorry to hear of your wife’s diagnosis. Hopefully her treatment can be performed...
https://connect.mayoclinic.org/comment/88336/
at Mayo Rochester indicated I had Amyloidosis
Just for info, I was diagnosed with prostate cancer in 2012. I am part of a...
https://connect.mayoclinic.org/comment/155101/
was probably my "Primary Systemic AL Amyloidosis
I do think there is more happening with some of us than the research or statistics...
https://connect.mayoclinic.org/comment/1061564/
trigger much beyond the typical MM, Amyloidosis
@oldkarl I agree with you 100% about doctors, nurses, etc. I'm excited for my first visit...
https://connect.mayoclinic.org/comment/177364/
Sorry to hear about your Amyloidosis
@findbetter I have heard this song before. I have been fighting a low-grade fever from infection...
https://connect.mayoclinic.org/comment/165087/
Now I know I have Amyloidosis, which
Thank you for your comment. I also super from many auto immune disorders. Graves. Endometriosis. Had...
https://connect.mayoclinic.org/comment/1216598/
so I'm being investigated for amyloidosis
Hi, @Beka. You sound a lot like me, and I strongly suspect you have some of...
https://connect.mayoclinic.org/comment/254750/
Within that there is Amyloidosis. ... TTR and non-TTR Gelsolin, or Finnish Amyloidosis
@lex1 Certainly. There are a large number of genetic and environmental issues which can bring about...
https://connect.mayoclinic.org/comment/182867/
diagnosed with hATTRwt, a hereditary Amyloidosis
Hi, Jill and Board. Back again Not much has changed with me. Except that I have...
https://connect.mayoclinic.org/comment/104706/
little. https://bit.Ly/1w7j4j8 in Amyloidosis
My husband has been diagnosed with cardiac WTTR amyloidosis and AL confirmed by myocardium biopsies,which is...
https://connect.mayoclinic.org/comment/624591/
has been diagnosed with cardiac WTTR amyloidosis
@thulbert0 Sounds rough. Everything I have hurts most of the time. Head, toes, and everything in...
https://connect.mayoclinic.org/comment/156009/
these are signs of cardiac Light Chain Amyloidosis
Hi Lori thank you for the welcome. I'm a 73 year old male. My journey started...
https://connect.mayoclinic.org/comment/782404/
Primary Amyloidosis affecting my stomach
@hopeful33250 Hi, Teresa. The DX for the particular form or forms of Amy that I have...
https://connect.mayoclinic.org/comment/175117/
evidence, and the percentage of proven Amyloidosis
You need to understand that the Gleason score actually has little to do with how serious...
https://connect.mayoclinic.org/comment/166444/
About then, the thing about Amyloidosis
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