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723 total results
Comments (699)
Are you tapering by 5 mg per week? I don't believe there is any correct way...
With PMR/GCA that isn't possible ... For PMR/GCA, you need to taper blindly ... I don't know if PMR/GCA inflammation ... It might not be just PMR/GCA. ... I hope Actemra works for you.
Posted: Apr 25, 2023
There was a study published in New England J of Medicine that indicated Actemra is helpful...
England J of Medicine that indicated Actemra ... pathology to PMR, but I understand Actemra ... I've been diagnosed with both GCA ... and PMR, although the GCA diagnosis
Posted: Apr 23, 2023
I personally take a biologic called Actemra (tocilizumab). My rheumatologist had to get authorization to prescribe...
personally take a biologic called Actemra ... Actemra isn't FDA approved for PMR ... However, Actemra is FDA approved for ... GCA so my rheumatologist believed that ... targeted approach to the treatment of PMR/GCA
Posted: Apr 23, 2023
Thanks for these comments. My insurer and medical provider are the same entity, Kaiser Permanente. Getting...
showed that Kaiser would pay $0 toward Actemra ... for 6 months of weekly injections of Actemra ... He says the inflamed arteries of GCA ... says that is true for PMR, but not GCA ... Perhaps the GCA damage is more permanent
Wow, thanks everyone for sharing these experiences. Overall, it sounds like people are getting doctors to...
prescribe, and insurance to cover, Actemra ... Hopefully, my rheumatologist will support Actemra ... originally brought the idea up of using Actemra ... may have other ideas about giving me Actemra ... the PET scan only shows PMR and not GCA
@katclub and @khmc: My story is exactly the same as yours, @khmc, except that my GCA...
same as yours, @khmc, except that my GCA ... I'm still on Actemra too, with ... might switch you over to the easier Actemra
Posted: Feb 12, 2023
I contracted Polymyalgia and GCA early 2021. Prednisone until 11/21, plus Actemra since 03/21. I reduced...
I contracted Polymyalgia and GCA early ... Prednisone until 11/21, plus Actemra ... I reduced Actemra to every 14 days
Posted: Jan 13, 2023
The biologic that worked for me was Actemra. Unfortunately, Actemra isn't FDA approved for the treatment...
The biologic that worked for me was Actemra ... Unfortunately, Actemra isn't FDA ... it is approved for the treatment of GCA ... I don't have GCA but I have another ... GCA and RA then it might work for PMR
Posted: Dec 21, 2022
Anybody dealing with Pred tapering w/ both PMR & GCA? Am tapering down while also on...
with Pred tapering w/ both PMR & GCA ... Am tapering down while also on Actmera ... Have had two GCA flares which required ... associated with Pred withdrawal and/or Actemra
I had my first visit with him about 8 weeks ago. I gave him a very...
got the notice about the denial for Actemra ... pain and my increased concern about GCA ... made no comment on my concern about GCA ... responded that I wanted to appeal the Actemra ... and again expressed my concern about GCA
I don’t have experience with Rinvoq; I do give myself Actemra injections for GCA. I’ve been...
experience with Rinvoq; I do give myself Actemra ... injections for GCA. ... blood results are perfect, no sign of GCA ... Maybe you might have success with Actemra
Posted: Jul 16, 2022
I had two bouts with PMR and then was in remissions When I quickly developed double...
taking that large dose of prednisone- GCA ... even before a definitive diagnosis of GCA ... prednisone for 1 1/2 yrs. but now take Actemra
Posted: Jun 18, 2022
@loribmt. So, Lori, you're musical too, added to your other many talents! Wow! It's sad that...
lifelong wish I had - before this dang GCA ... other day was very pleased with my GCA ... progress and cut my imunosupressant Actemra
Support Group: Just Want to Talk
Posted: Sep 22, 2021
I was diagnosed about 5 yrs. ago with PMR/and possible GCA. I've taken prednisone for all...
about 5 yrs. ago with PMR/and possible GCA ... prednisone for all of that time along with Actemra
Posted: Jun 18, 2021
@karinaph, oh gosh, I texted my last response to you before I read this one of...
Yes, the literature states that Actemra ... "only" medication to help GCA ... rheumatologist, who then prescribed Actemra ... ;s a funny coincidence your having GCA ... realize this could all be from the GCA
Posted: Feb 24, 2021