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Comments (10,000+)

@njtodctode, I think if it were me, I would go to the last dosage that I...

https://connect.mayoclinic.org/comment/749180/

think you might find helpful: -- PMR ... /connect.mayoclinic.org/discussion/pmr-dosages

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 13, 2022

My husband was recently diagnosed with PMR. He was a very active, fit 63 year old...

https://connect.mayoclinic.org/comment/710855/

husband was recently diagnosed with PMR ... showed all of the classic symptoms of PMR

Discussion: What is the goal when first diagnosed with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2022

Did you have glaucoma before or after starting prednisone? If you had pre-existing glaucoma then prednisone...

https://connect.mayoclinic.org/comment/832083/

prednisone "long term" for PMR ... year or so for uveitis long before PMR ... After PMR was diagnosed, I was taking ... many years of taking prednisone for PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

At first, in January, a doctor diagnosed it fairly quickly in my first meeting with him....

https://connect.mayoclinic.org/comment/600735/

but by then I had diagnosed it as PMR ... confused me from realizing it was PMR ... found someone who said that 10% of PMR ... happens frequently in early onset of PMR

Discussion: Terry Wahls Protocol

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2021

Tapering now at 2.5, and based on the experience of another contributor, I tried and seem...

https://connect.mayoclinic.org/comment/1155732/

substantial relief from residual (non-PMR

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

Doctors don't tell their patients very often that they have steroid induced myopathy. When you clarify...

https://connect.mayoclinic.org/comment/1150464/

I think PMR pain sometimes overshadows

Discussion: Has anyone experienced steroid myopathy?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 1, 2024

@carlarosie Hello and welcome to this PMR forum! There are some very knowledgeable people here that...

https://connect.mayoclinic.org/comment/1146405/

carlarosie Hello and welcome to this PMR

Discussion: Actemra vs Kevzara success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 24, 2024

Wendi, You've been thru so much, and I can tell you're a fighter. I agree about...

https://connect.mayoclinic.org/comment/1141120/

bizarre that you and hub both have PMR

Discussion: Aching from the most minor of exercise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 13, 2024

Hi @bigjoe1463, the dangers of excessive heat for humans of all ages and all levels of...

https://connect.mayoclinic.org/comment/1102991/

I had PMR, then GCA, undiagnosed for

Discussion: Heat sensitivity with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

Unfortunately, with osteoporosis, I can't do Yoga or Pilates unless they're osteo-safe. I have seen some...

https://connect.mayoclinic.org/comment/1102360/

back to exercising as you were before PMR

Discussion: Resistance Training and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

Hola, yo me estoy inyectando con kevsara para la PMR y ACG me he puesto 6...

https://connect.mayoclinic.org/comment/1089376/

estoy inyectando con kevsara para la PMR

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2024

I have been on Alendronate (a fosomax substitute) for two years now and my bone density...

https://connect.mayoclinic.org/comment/1076253/

I got PMR last year and have been on

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2024

I received the Moderna vaccine and a month later here came the awful pain. My rheumatologist...

https://connect.mayoclinic.org/comment/1072293/

rheumatologist feels strongly it triggered the PMR

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

I developed PMR at 61 but didn't get diagnosed and treated for almost 1.5 years (I...

https://connect.mayoclinic.org/comment/1065264/

I developed PMR at 61 but didn't

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2024

Wondering if others are also experiencing "crashes" after mild exercise. I find that even easy walking...

https://connect.mayoclinic.org/comment/1057392/

;t had pain flare-ups in the usual PMR

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2024

I didn't know I had it the first time either. I sure did the second time....

https://connect.mayoclinic.org/comment/1037979/

I had never heard of PMR until I was

Discussion: Thrush

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2024

Gosh I appreciate everyone taking the time to educate me on the differences between PMR and...

https://connect.mayoclinic.org/comment/1030981/

educate me on the differences between PMR

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2024

I had that, too, on my right leg. Having ripped up my left achilles, I knew...

https://connect.mayoclinic.org/comment/1024989/

I am aware that PMR is symmetrical..

Discussion: Question about PMR pain locations

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29, 2024

I am a professional geriatric manager as well as a pmr forum member and the mother...

https://connect.mayoclinic.org/comment/1008828/

professional geriatric manager as well as a pmr

Discussion: Tired of the gaslighting

Support Group: Autoimmune Diseases

Posted: Feb 3, 2024

I had never heard of your condition and it sounds dreadful! You might find sympathy and...

https://connect.mayoclinic.org/comment/998007/

sympathy and useful intel on the PMR

Discussion: Pemphigus Foliaceus

Support Group: Autoimmune Diseases

Posted: Jan 15, 2024