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759 total results
Comments (696)
I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated...
https://connect.mayoclinic.org/comment/1162526/
The Ocreotide injections did eliminate
I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...
https://connect.mayoclinic.org/comment/1147007/
Switched to ocreotide and have been
I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...
https://connect.mayoclinic.org/comment/1112552/
Switched to ocreotide, and I’ve been
My tumors started in the small intestine and metastasized to the liver before I was diagnosed....
https://connect.mayoclinic.org/comment/1072655/
syndrome) injections were switched to ocreotide
What I do know is that when I had my liver resection 4 years ago they...
https://connect.mayoclinic.org/comment/994210/
removed
I did do Lanreotide and Ocreotide
Thank you I did Lanreotide had bad side effects had to stop I was ok on...
https://connect.mayoclinic.org/comment/830413/
effects had to stop
I was ok on the Ocreotide
Thanks! @hopeful33250 those articles are helpful! I’m a caregiver. My mom was diagnosed with NETs (Primary...
https://connect.mayoclinic.org/comment/311779/
She was on Occtreotide from June 2018
Yes, to the point I am surprised I don't glow. :) I have had multiple Pituitary...
https://connect.mayoclinic.org/comment/186233/
multiple Pituitary MRI's, PET scan, Octerotide
@gaylejean That is an interesting approach, thanks for sharing your doctor's opinion. It might still be...
https://connect.mayoclinic.org/comment/137548/
information about the need for the Octreotride
I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...
https://connect.mayoclinic.org/comment/1035643/
flashes (carcinoid syndrome) switched to ocreotide
The carcinoid heart disease caused a lot of swelling to the point it was putting pressure...
https://connect.mayoclinic.org/comment/911346/
He was given ocreotide before during
Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had...
https://connect.mayoclinic.org/comment/747582/
one on my liver , I’m getting the Octretotide
I haven’t been on to update as it seems like we got to the mountain but...
https://connect.mayoclinic.org/comment/1444451/
He got his first injection of ocetreotide
I have NET’s I was originally diagnosed with poorly differentiated and had surgery to have it...
https://connect.mayoclinic.org/comment/1418269/
still plan to continue to give the Octreocide
I also was diagnosed stage 4 primary in the small intestine and spread to the liver...
https://connect.mayoclinic.org/comment/1391349/
have reduced in size.I am still on Ocreotide
I started Lanreotide February 2023, didn’t stop the hot flashes (carcinoid syndrome). Dr switched me to...
https://connect.mayoclinic.org/comment/1289422/
Dr switched me to ocreotide in May 2023
I was diagnosed with NET’s starting in small bowel and metastasized to liver, I’ve been on...
https://connect.mayoclinic.org/comment/1283550/
metastasized to liver, I’ve been on Ocreotide
I was diagnosed type 2 diabetes 2 years ago when I was diagnosed with carcinoid syndrome.....
https://connect.mayoclinic.org/comment/1233965/
flashes continued, Dr switched me to Ocreotide
They call the disease Zebras because no 2 are the same I never had a hot...
https://connect.mayoclinic.org/comment/1196548/
happened I started Lanreotide than Ocreotide
I’ve been on Ocreotide for about 18 months it has worked great on the hot flashes,...
https://connect.mayoclinic.org/comment/1194070/
I’ve been on Ocreotide for about 18
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