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664 total results
Comments (640)
You might want to mention Kevzara for PMR because it is FDA approved for PMR. Actemra...
https://connect.mayoclinic.org/comment/1228938/
Actemra still isn't FDA approved ... for PMR but it is for GCA. ... excited about the GIACTA trial for GCA ... to get authorization for me to get Actemra ... rapidly changing in the realm of PMR/GCA
Discussion: Can ultrasound help confirm PMR diagnosis?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 3 8:47pm
I'm 71 and have GCA and PMR. I started on 60 mg prednisone last July and...
https://connect.mayoclinic.org/comment/1232919/
I'm 71 and have GCA and PMR. ... prednisone last July and added weekly Actemra
Discussion: Working out with PMR
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 9 10:55am
Yes, I kept my vision. The day I was diagnosed with GCA, I went to the...
https://connect.mayoclinic.org/comment/1247936/
The day I was diagnosed with GCA, I ... tapering the prednisone and taking weekly Actemra ... check the health of my eyes from the GCA ... just googled about blindness from GCA ... and it said up to 20% of people with GCA
Discussion: Are specialists necessary?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 1 9:46am
My experience is very similar to yours. I was diagnosed in late June 2024 with PMR...
https://connect.mayoclinic.org/comment/1246483/
diagnosed in late June 2024 with PMR and GCA ... I started weekly Actemra injections ... I had had vision problems from the GCA ... It sounds to me like your GCA is flaring
Discussion: Adjusting to life with temporal arteritis
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 27 9:31am
@elderdiana - Have you thought about going to Mayo Clinic in Phoenix to get a second...
https://connect.mayoclinic.org/comment/211437/
I read about Actemra and agree that ... in Minnesota sees the most cases of GCA ... Scandinavian countries so they see a lot of GCA ... understand your reluctance to go on the Actemra
Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 27, 2018
jmdougherty: Do not have PMR just Giant Cell Arteritis and have been on Prednisone 80, 100,...
https://connect.mayoclinic.org/comment/1254874/
tapering in August '24 , then on Actemra ... Tomorrow I meet with her and get Actemra ... but still 20lb lighter than before GCA
Discussion: Actrema advice
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 10 2:22pm
I was on 60 mg for about 6 weeks, and then it took 6 more weeks...
https://connect.mayoclinic.org/comment/1255204/
to serious vision problems from the GCA ... I started taking weekly Actemra injections
Discussion: Low iron levels and PMR
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 11 4:43am
My rheumatologists group follows a protocol and most all their PMR patients are off Pred within...
https://connect.mayoclinic.org/comment/1237389/
Five years ago when I tried Actemra, ... breaking new ground if he could get Actemra ... At the time, Actemra was only FDA approved ... for GCA and I didn't have GCA. ... The reason Actemra was approved for
Discussion: Kevzara
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 15 9:40am
Maye, I was diagnosed with GCA at the end of June of 2024. I had undiagnosed...
https://connect.mayoclinic.org/comment/1211061/
Maye, I was diagnosed with GCA at the ... Note that I started weekly Actemra injections ... because of vision problems from the GCA ... significantly from the prednisone and or Actemra ... low dose aspirin recommended for the GCA
Discussion: Prednisone cumulative dose in PMR
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jan 14 7:19am
I began having symptoms at 54. Of course I didn't know it at the time but...
https://connect.mayoclinic.org/comment/1000418/
Then symptoms of GCA started. ... away almost immediately but I had GCA ... I took my last shot of Actemra Nov 14
Discussion: PMR onset under 55?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jan 20, 2024
Be careful and monitor yourself for any symptoms of GCA. I treated myself for PMR with...
https://connect.mayoclinic.org/comment/1245469/
monitor yourself for any symptoms of GCA ... had PMR, and I eventually developed GCA ... on prednisone and more than that on Actemra
Discussion: Working out with PMR
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 25 5:26pm
I would be talking to my rheumatologist about this - both times I was paused was...
https://connect.mayoclinic.org/comment/1271982/
As a side note the Actemra was decided ... after I had an apparent GCA attack ... to 16mg Prednisone when I began the Actemra
Discussion: Actemra sef Injection
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 1 4:36pm
My experience with Actemra has been very positive. I've been on Actemra since April 2024 due...
https://connect.mayoclinic.org/comment/1250229/
My experience with Actemra has been ... I've been on Actemra since April ... 2024 due to a GCA diagnosis; the disease ... Actemra has been very successful, with ... All of that went away with Actemra.
Discussion: Actrema advice
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 4 10:36am