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1,993 total results
Comments (1,916)
Hello @gee18, I'm sorry to hear you having trouble with the treatment for PMR and GCA....
your symptoms but tapering sent your ... wondering if you may have been trying to taper ... off of prednisone too quickly. ... listen to my body when it comes to tapering ... that determine when it's time to taper
Posted: Dec 13, 2023
I applaud you for getting off prednisone so quickly. You did much better than me. It...
I applaud you for getting off prednisone ... It took me 13 years to get off prednisone ... PMR lasts until you are able to get off ... Even when people get off prednisone ... t think it had anything to do with tapering
I’ve tried to include all the things that’ve helped. I wish you luck! After the sinus...
doc agreed to try Amoxicillin and tapering ... prednisone, which had been my treatment ... I put them in with my head hanging off ... the side off the bed and kept the position ... prn because the triple spray wears off
Support Group: MAC & Bronchiectasis
Posted: Dec 19, 2023
A 1 mg per month taper after getting down to 10 mg is a standard tapering...
A 1 mg per month taper after getting ... After I got off prednisone, I learned ... about some conditions that prednisone ... several "surprises" after I got off ... prednisone when the mask was removed
The medical literature says PMR lasts 1-2 years for most people. This means approximately 50% or...
have a relapse of PMR after being off ... (tocilizumab) which helped me get off ... People should be encouraged to taper ... off as soon as possible. ... In my opinion, being off prednisone
Thank-you for reminding people about the need for the adrenals to get up to speed. Adrenal...
adrenals are the reason why a slow taper ... off prednisone is needed. ... How slow of a taper depends on how quickly ... recover, some people need to take prednisone
I have tapered off prednisone when on Actemra ... not Kevzara. Kevzara works on the same...
I have tapered off prednisone when on ... When I tapered off prednisone while ... off too soon. ... After about 4 more months I was off ... I have successfully stayed off prednisone
You are right ... there isn't much research about how long one needs to be on...
The surgeon wanted me off Actemra for ... I tapered by 1 mg per month until I ... She said tapering from 3 mg to zero ... It took me a year to get off prednisone ... off quickly again as long as I remained
Hello @lisadog33 I am glad to see that you are reaching out for answers. That is...
The magic pill, prednisone, keeps it ... control but I'm in the process of tapering ... off of the drug which I know takes
Support Group: Neuropathy
Posted: Mar 29, 2017
I have polymyalgia rheumatica & the complication, Vasculitis. My Sed rate & CRP were in the...
I was put on a massive dose of prednisone ... I tapered off the prednisone completely
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Dec 30, 2023
I just found this article in the Medical Journal of Australia (MJA) while waiting for midnight...
As for splitting your prednisone dose ... I was on prednisone for a long time ... I didn't need to take prednisone ... adrenal function and then I was able to taper ... off prednisone rather quickly after
Posted: Dec 31, 2023
My PMR was triggered by the shingles vaccine last January and my life has not been...
You were very fortunate getting off ... prednisone so quickly. ... rheumatologist also thought I might be able to taper ... off prednisone quickly with vaccine
Posted: Jan 6 10:27am
Hi Bev I had PMR and subsequently GCA going back to 2013. I am still on...
I am still on prednisone 7 mg for my ... I have been on and off with Actemra ... have the results of long-term use of prednisone ... Although prednisone is a lifesaver, ... to my skin, which is now like crêpe paper
Support Group: Autoimmune Diseases
Posted: Jan 26 8:41pm
How was it that you had Prednisone available after you diagnosed yourself? When I was diagnosed...
She wanted me to taper off prednisone ... t happen again until I finally got off ... already called me noncompliant with tapering ... off Prednisone, I was happy to talk ... I was off Prednisone for a day or two
Posted: Jun 14 8:53am
I have tapered down to 0 due to problems with too much Methylprednisolone in my system....
I have tapered down to 0 due to problems ... After tapering off, and later on a new ... What can be used other than prednisone
Posted: Jun 3 1:12pm
My journey is very similar to yours. About 3 1/2 years ago all my symptoms came...
they immediately put me on high dose prednisone ... He had me continue the tapering off ... prednisone but started me on methotrexate ... with the hopes of being able to be off ... off of the methotrexate again with
Support Group: Autoimmune Diseases
Posted: Jun 11 9:56am
That's a good link to save. I would agree severe fatigue should be first on the...
taper. ... job of preventing a PMR flare as I tapered ... without tapering. ... I tapered off anyway -- going from 3 ... nearly a year in total to finally get off
Posted: Jun 10 10:33am
Hello, It’s very confusing isn’t it? First, you won’t be symptom free for some time after...
symptom free for some time after going off ... prednisone, nor during tapering. ... Prednisone plays havoc with your body ... developed a frozen shoulder after going off ... My comment is not to rely on prednisone
Posted: Jun 17 8:46pm
I was diagnosed with PMR in November 2022 at 58 yrs old, and started on 20...
Hopefully my doctor will take me off ... My Lessons learned: 1) go slow on tapering ... very slow as my body got used to the prednisone ... . 2) as prednisone drops, the old
Posted: Jun 18 7:51am