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Comments (2,270)

Did you decide on a course of treatment? I also have Sjogrens and don’t want to...

https://connect.mayoclinic.org/comment/1259731/

I also have Sjogrens and don’t want

Discussion: Has anyone improved bone density without meds?

Support Group: Osteoporosis & Bone Health

Posted: Mar 16 4:39pm

Fluoride Mouthwash , a prescription strength every morning and every night after brushing. When I was...

https://connect.mayoclinic.org/comment/1270290/

I live with Sjogrens Syndrome.

Discussion: How do you care for teeth and dental health after H&N cancer?

Support Group: Head & Neck Cancer

Posted: Mar 30 2:44pm

penn, Hi! Fibromyalgia is soreness and pain all over with fatigue. You can hurt anywhere. You...

https://connect.mayoclinic.org/comment/1274605/

Thyroid Disease, and Osteoarthritis and Sojgren

Discussion: How do I know it is Fibromyalgia when I have Sjogren's & SFN?

Support Group: Fibromyalgia

Posted: Apr 5 7:32am

I found out I had Sjogrens first then about 8 mos later was diagnosed with gastroparesis....

https://connect.mayoclinic.org/comment/1163701/

I found out I had Sjogrens first then

Discussion: Sjogerns and gastroparesis

Support Group: Autoimmune Diseases

Posted: Oct 27, 2024

Hello @vickimartin , I was 34 when I had acinic cell carcinoma, R. parotidectomy. The margins...

https://connect.mayoclinic.org/comment/1270251/

(Plus I have Sjogrens Syndrome, autoimmune

Discussion: Has anyone been diagnosed with salivary gland cancer in a minor gland?

Support Group: Head & Neck Cancer

Posted: Mar 30 2:10pm

hydroxychloroquine (plaquinil) helped my sjogrens dryness symptoms a lot (I have mixed connective tissue disease). Best...

https://connect.mayoclinic.org/comment/1190809/

hydroxychloroquine (plaquinil) helped my sjogrens

Discussion: Sjogrens and Lung issues

Support Group: Autoimmune Diseases

Posted: Dec 15, 2024

@SusanEllen66 I was thought to have been diabetic back in 2016 now a few years later...

https://connect.mayoclinic.org/comment/1234101/

armrest full on my recliner ) With Sjögren

Discussion: Can’t seem to stay awake throughout the day!

Support Group: Brain & Nervous System

Posted: Feb 11 12:46am

I have posted alot about my SFN caused by Sjogren's and Its effect on my balance...

https://connect.mayoclinic.org/comment/1235220/

posted alot about my SFN caused by Sjogren

Discussion: Leg Weakness! And how to recover? And success with movement

Support Group: Neuropathy

Posted: Feb 12 11:10am

Hi Do you have sjorgrens?

https://connect.mayoclinic.org/comment/1235449/

Hi Do you have sjorgrens?

Discussion: Low Level Light Therapy - BMS - Any Success

Support Group: Skin Health

Posted: Feb 12 4:43pm

I can relate to the loss of taste, it takes the joy out of life. It...

https://connect.mayoclinic.org/comment/1249310/

nights sweats are early menopause or Sjögren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Mar 3 9:25am

What does your dr say? Your post shows how frustrated you are. What happened 9 months...

https://connect.mayoclinic.org/comment/1087387/

I have Celiac disease and Primary Sjögren

Discussion: Indigestion and nausea

Support Group: Digestive Health

Posted: Jun 15, 2024

All of my Dr's tell me all of my symptoms sound like Sjogren's. ANA always comes...

https://connect.mayoclinic.org/comment/1252763/

me all of my symptoms sound like Sjogren

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Mar 7 5:10pm

I HAVE SOJGRENS ALSO.

https://connect.mayoclinic.org/comment/1280438/

I HAVE SOJGRENS ALSO.

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 12 8:26pm

Hi! I’m Amy, 61. I am in a similar situation, now being assessed for Mixed Connective...

https://connect.mayoclinic.org/comment/1280552/

Current dx NSIP, ILD, RA, Raynaud’s, Sjogrens

Discussion: Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis

Support Group: Autoimmune Diseases

Posted: Apr 13 4:49am

Thank you for your comment Athenalee. I actually only have anti SSB with NO anti AA...

https://connect.mayoclinic.org/comment/653684/

AA so doctors tell me I that true Sjogren

Discussion: Undiagnosed Autoimmune with back pain, spasms, and stiffness

Posted: Nov 12, 2021

It is a post to be read many times. Very interesting and useful I personally can’t...

https://connect.mayoclinic.org/comment/653549/

anti SSA so they can’t “ call “ it Sjogren

Discussion: Undiagnosed Autoimmune with back pain, spasms, and stiffness

Posted: Nov 12, 2021

I attended the online conference with the Sjögren foundation 2 days ago. Someone had mentioned about...

https://connect.mayoclinic.org/comment/1281543/

attended the online conference with the Sjögren

Discussion: Does anyone have any experience with MEIBO (PF) drops for dry eyes?

Support Group: Eye Conditions

Posted: Apr 14 9:42am

No, thankfully I do not. My RA doctor feels for nodes; which are the bumps on...

https://connect.mayoclinic.org/comment/1281038/

I do have Sjorgrens syndrome (can be ... Crazy enough when they saw the Sjogrens

Discussion: Desperate for Advice

Support Group: Autoimmune Diseases

Posted: Apr 13 2:45pm

I have Sjogrens, SFN, Hashmotos, Ehlners Danlos, connective tissue disease, lupus, severe axonal sensorimotor peripheral polyneuropathy,...

https://connect.mayoclinic.org/comment/1278864/

I have Sjogrens, SFN, Hashmotos, Ehlners

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 10 5:50pm

My husband is experiencing the dry mouth as well L parotidectomy, stage 4 which was 6...

https://connect.mayoclinic.org/comment/1271816/

just laughed because I've had Sjögren

Discussion: Has anyone been diagnosed with salivary gland cancer in a minor gland?

Support Group: Head & Neck Cancer

Posted: Apr 1 1:06pm