octreotide - search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

759 total results

Comments (696)

Hi @leah4122 I'm sure you're worried especially since your dad had lung cancer at an early...

https://connect.mayoclinic.org/comment/1215283/

I've been taking octreotide injections

Discussion: Several 6mm nodules found in both upper lobes...

Support Group: Lung Cancer

Posted: Jan 18, 2025

Talkativeinfl, first of all, I’m so very sorry to hear about your husband’s situation and your...

https://connect.mayoclinic.org/comment/873777/

had Lutathera treatment and been on Octreotide

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

He was diagnosed in December 2019, had surgery in March 2020, I think the first six...

https://connect.mayoclinic.org/comment/899229/

the next one showed growth, he is on Octreotide

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...

https://connect.mayoclinic.org/comment/1208016/

I also have been taking octreotide injections

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Hi @splendrous 2008-2010: they didn't know what the 50+ nodules were, benign or cancer, so many...

https://connect.mayoclinic.org/comment/1179339/

I have been taking the monthly octreotide

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

@nannybb I’ve read all of your responses, but I did not see a previous one regarding...

https://connect.mayoclinic.org/comment/1431871/

coordinate with my local oncologist for the octreotide

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2025

@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...

https://connect.mayoclinic.org/comment/831438/

I was started on Octreotide injections

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Hi Teresa: I would be glad to share my journey with you and your followers. In...

https://connect.mayoclinic.org/comment/107245/

They did a CT, MRI, Octreotide and Ga68

Discussion: Ga-68 for detecting NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2017

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

He started on Octreotide injections

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

Thank you and congratulations on living with this monster. I am USUALLY an upbeat optimistic person...

https://connect.mayoclinic.org/comment/881074/

He too takes the octreotide and has

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Hi @ginny100 Sorry to hear you are dealing with breast cancer and treatment again. I had...

https://connect.mayoclinic.org/comment/1122925/

after I started those meds, I started octreotide

Discussion: Starting on targeted breast cancer meds.

Support Group: Breast Cancer

Posted: Aug 13, 2024

@mcohan Most doctors, even radiologists, pulmonologists and oncologists haven't even heard of DIPNECH. I recently went...

https://connect.mayoclinic.org/comment/965599/

that due to the improvement with the octreotide ... respiratory symptoms for 30 years before octreotide

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

Here is my diet which covers almost every day of the year. Breakfast---a cup of coffee...

https://connect.mayoclinic.org/comment/856388/

And I do get an octreotide injection

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

I am so sorry so many are in such pain with this illness. I count myself...

https://connect.mayoclinic.org/comment/79681/

I have had CT and Octreotide shot and

Discussion: Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect

Support Group: Digestive Health

Posted: Mar 10, 2018

@shirleyslominski I am also allergic to Sandastatin,(Ocreotide) I have a respiratory reaction to the drug, But...

https://connect.mayoclinic.org/comment/1530365/

I am also allergic to Sandastatin,(Ocreotide

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 6:10am

You just explained my entire situation, which started years ago and no primary tumor. I have...

https://connect.mayoclinic.org/comment/1542698/

I have been on otreotide since 2019.

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 12:28pm

I was diagnosed with NET's in my Liver back in December 2022, started Lanreodide for a...

https://connect.mayoclinic.org/comment/1539459/

Switched to Ocreotide I believe it was

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 9:33am

Using brand names for ease. I’ve been taking Kisqali 400 mg for 4 years for recurrent...

https://connect.mayoclinic.org/comment/1181951/

Lastly, I started octreotide for my

Discussion: Anyone taking cyclin-dependent kinase (CDK) 4/6 inhibitors?

Support Group: Breast Cancer

Posted: Nov 29, 2024

Good morning!!! As I mentioned above, I was diagnosed January 2020, grade 3 (Ki67 17-29 depending...

https://connect.mayoclinic.org/comment/1247365/

I then did 3 rounds of PRRT with octreotide

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2025

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

(Octreatide) . ... on the monthly shot of Sandostatin/Octreotide

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023