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723 total results
Comments (699)
Welcome to the Medicare system of health insurance for retirees. I don't know all the details...
Actemra can be given by a monthly infusion ... Actemra is FDA approved for the treatment ... of GCA so it would be covered by Medicare ... Actemra would not be covered for PMR ... programs to help cover the cost of Actemra
Posted: Sep 12, 2024
this would be just my take on it./ IL-6 has been found to be active in...
found to be active in cases of PMR and GCA ... Kevzara is the PMR drug and Actemra ... works better on GCA. ... Here was a comment from the Actemra ... ACTEMRA is designed to block IL-6 from
Posted: Aug 12, 2024
@hopeful33250 You're very welcome! My husband has steroid-induced osteoporosis, something we had never heard of until...
Rheumatica) in 5/2023 and then with GCA ... by the time he was diagnosed with GCA ... When he developed GCA it became very ... with the help of a weekly injection Actemra
Posted: Jul 26, 2024
@dadcue Wow! I'm sorry it took so long to get PMR under control. I just wonder...
I just wonder if you also had GCA and ... tapering to 12.5 mg, then developed GCA ... He started Actemra a few months ago
@dadcue I had no idea you've been through so much!! And for so long. I'm so...
;s able to taper more quickly with Actemra ... tapered on PMR to 12.5 he developed GCA ... I'm so glad to hear Actemra is a
I don't know how to control "all other factors being equal." I don't think it exists...
For me at least, I wish Actemra had ... Technically Actemra still isn't ... an option for PMR but it is for GCA.
Posted: Jun 25, 2024
@pargeo47 I can only speak from our experience - my husband is the one with PMR....
story short, he was diagnosed with GCA ... Especially with the GCA which can become ... 2024 tapering now to 20 (also taking Actemra ... That's the goal here, and the Actemra ... All these drugs, including Actemra (
Posted: Jun 16, 2024
"My advice to you all is never miss the opportunity to taper down if your medics...
Actemra was FDA approved for GCA but ... so my rheumatologist needed to get Actemra ... I almost refused Actemra because some ... breaking the rules" by giving me Actemra ... many Europeans are now getting PMR/GCA
Posted: Jun 11, 2024
@pb50 We wouldn't have unless he developed them. I am now doing research on any new...
side-effects my husband gets from prednisone, Actemra ... have not see any side-effects from Actemra ... is behind the times on some info re GCA
Hello @papas, You will notice that we merged your discussion into an existing discussion on the...
. --- Anyone tried Actemra (Tocilizumab ... FDA approved for GCA: https://connect.mayoclinic.org ... /discussion/actemra-tocilizumab-to-treat-pmr
Our government doesn't get overly involved in medical decisions except for granting FDA approval of the...
Actemra hasn't ever been FDA approved ... and subsequent approval of Actemra ... by the FDA for the treatment of GCA. ... but plenty of patients who have GCA ... My rheumatologist believed Actemra &
My husband started a statin months after his PMR diagnosis (diagnosed with PMR in May 2023)....
diagnosed with Giant Cell Arteritis (GCA ... still on high-dose prednisone and Actemra ... Chief of Rheumatology) what caused his GCA ... and started feeling the symptoms of GCA
Posted: May 10, 2024
Hi @rn1024, I had a positive result temporal artery biopsy with no side effects. Your symptoms...
Your symptoms sound like GCA. ... 're not on Prednisone with the Acterma ... I just started 40 mg for a GCA relapse ... of symptoms more dramatically than GCA
The problem with testing for adrenal insufficiency is because cortisol levels can't be tested reliably until...
Not many people with PMR/GCA can do ... people on long term prednisone for PMR/GCA ... maintain my 3 mg dose of prednisone after Actemra ... rheumatica (PMR) and giant cell arteritis (GCA ... remission as symptoms can resemble PMR/GCA
Posted: Apr 11, 2024
Hello @leerow60, Welcome to Connect. I can't begin to imagine how difficult your journey with GCA,...
imagine how difficult your journey with GCA ... You mentioned they are going to try Actemra ... have shared their experience: --- Actemra ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr ... / Have you started on Actemra yet