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Comments (952)
Welcome @type2neuropathyhope, It can be overwhelming not knowing what to do following a suspected cause of...
It can be overwhelming not knowing what ... I'm guessing that's what you ... diagnosed in 2016 with idiopathic small ... fiber PN that I started making lifestyle ... search=burning%20feet%20what%20helps
Support Group: Neuropathy
Posted: Sep 12 11:15am
Hi Teresa, Thank you for responding, What is a volunteer mentor? This happened in Chicago. I...
Teresa, Thank you for responding, What ... Pelvic floor PT and neck PT is also helping ... , I had a small hernia for years and ... degeneration and cervical stenosis, small ... fiber neuropathy, Pfizer was sued
Support Group: Digestive Health
Posted: Sep 6 4:38pm
@patriciaschulz1950 You appear to be pre-diabetic with your AIC levels (normal is below 5.7) and should...
nutritionist and physical therapist to help ... What did you get the nerve release on ... What levels of your spine do you have ... Lipoic acid and Acetyl l carnitine for small ... fiber neuropathy pain?
Support Group: Neuropathy
Posted: Sep 22 12:38pm
Hi @sheridana, Welcome to Connect. I also have numbness in my feet and legs with my...
my feet and legs with my idiopathic small ... fiber peripheral neuropathy. ... might find the following discussions helpful ... / -- Neuropathy: Numbness only, no ... / What's the main difficulty
Support Group: Neuropathy
Posted: Sep 16 5:29pm
Welcome @dwsouthwick, Looking for support and what helps is the very best thing we can do...
dwsouthwick, Looking for support and what ... helps is the very best thing we can ... do to help ourselves when they tell ... after being diagnosed with idiopathic small ... fiber PN.
Support Group: Neuropathy
Posted: Sep 16 6:18pm
Hello @logicalperson, Welcome to Connect. You ask an excellent question and as a fellow neuropathy club...
club member with idiopathic small fiber ... what helps" - https://connect.mayoclinic.org ... search=neuropathy+what+helps. ... learning more about the condition and what ... helps - https://www.foundationforpn.org
I don't know what small fiber in neuropathy is but no one seems to be able...
I don't know what small fiber in ... neuropathy is but no one seems to be ... able to help me. ... I don't even know what a neuro muscular
Support Group: Neuropathy
Posted: Jul 26 6:24am
I have had Idiopathic Small Fiber Neuropathy for almost 10 years. I retired from a major...
I have had Idiopathic Small Fiber Neuropathy ... I don’t know what to tell people when ... they ask me what and when a real drug ... deep down they know very little will help ... frustration that their crap might just help
Support Group: Neuropathy
Posted: Aug 3 7:21pm
Lisa I don’t have restless legs or Parkinson’s. What I do have is tremors in my...
What I do have is tremors in my hands ... and legs from motor neuropathy. ... sensorimotor peripheral polyneuropathy Small ... Fiber neuropathy CAN- cardiac autonomic ... I am on IVIG that is helping with dizziness
Support Group: Parkinson's Disease
Posted: Jul 10 8:28pm
@janagain Hi, Jan. I had ACDF surgery c5-c6 in 2022 and ACDF surgery on c6-c7 in...
disease, neurogenic claudication and small ... fiber neuropathy so this will be a ... ; My neurologists didn’t really help ... EMGs/nerve conduction studies can help ... This information can help a surgeon
I agree with bridgeback2 . Am sure this is stressful trying to figure this out. It...
may have, your height and weight, what ... Yes: by all means bring up small fiber ... neuropathy and insist on a biopsy from ... fallible, and a good near will do what ... patient asks, if the request will help
Support Group: Brain & Nervous System
Posted: Aug 15 1:22pm
What a remarkable health journey, and I’m glad you’re feeling so much better! In early 2020,...
What a remarkable health journey, and ... then did a muscle biopsy to test for small ... fiber neuropathy, which also came back ... was told a gluten-free diet would help ... What I am now experiencing, however,
Support Group: Autoimmune Diseases
Posted: Jul 20 12:11am
@dstone501957 If your skin punch biopsy came back negative, you may not have small fiber neuropathy....
came back negative, you may not have small ... fiber neuropathy. ... Mine came back with severe small fiber ... What was the purpose of the nerve ablation ... and what was expected in helping to
Support Group: Autoimmune Diseases
Posted: Aug 6 11:02am
@lucylaughs I can relate with what you are going through. I was diagnosed with idiopathic small...
fiber neuropathy about 8 years ago ... fiber neuropathy and the best you can ... Small fiber sensory neuropathy can be ... Understanding Small Fiber Sensory Neuropathy ... Small fiber sensory neuropathy primarily
Support Group: Neuropathy
Posted: Jul 24 6:50am
Welcome @4sherri1961, I'm sorry to hear that your daughter has been diagnosed with small fiber neuropathy...
your daughter has been diagnosed with small ... fiber neuropathy and having to deal ... It might be helpful to scan through ... their comments to learn what they have ... helps?
Support Group: Neuropathy
Posted: Aug 11 2:21pm
I'm sorry you've been going through this. Have you had a skin punch biopsy? My neurologist...
fiber neuropathy. ... Now we're trying to find out what ... to search for "small fiber neuropathy ... Here are some links that might be helpful ... my.clevelandclinic.org/health/diseases/17479-small-fiber-neuropathy
Discussion: Help me diagnose
Support Group: Chronic Pain
Posted: Jul 21 1:10pm
Hi Mike, I don't know what will work for you but I can tell you a...
Hi Mike, I don't know what will ... you a little about my journey with neuropathy ... I have small/single fiber neuropathy ... joined a walking meetup group which helped ... and am inactive for days/weeks the neuropathy
Support Group: Neuropathy
Posted: Jul 10 6:23am
@niecie66 Sorry to hear all you are going through. I take alpha Lipoic acid (600 mg),...
magnesium glycinate at night and it helps ... with small fiber neuropathy symptoms ... What medications are you taking for ... A nutritionist/dietitian can help review ... diet/supplements and a pharmacist can help
Support Group: Neuropathy
Posted: Sep 1 7:06am
Hello @barrymiles, I would like to add my welcome to Connect along with @jankavs and others....
I have idiopathic small fiber peripheral ... neuropathy and shared my story in another ... of other discussions you might find helpful ... that mentions neuropathy and sciatica ... : What helps with the pain?
Support Group: Neuropathy
Posted: Aug 21 7:51am
@laurenseavertson I am so sorry to hear of your suffering and struggles! I deal with chronic...
not sure how much a neurologist will help ... (EMG/nerve conduction studies), small ... fiber neuropathy (skin punch biopsy ... with no real treatment options that help ... What other medications have you tried