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257 total results
Comments (238)
I am now 81 years old and I have been suffering with different degrees of PN...
get severe enough that I sought the help ... diagnose my idiopathic small fiber polyneuropathy ... My symptoms are very similar to what ... I have constantly searched for help ... a link to a website that has more helpful
Support Group: Neuropathy
Posted: Dec 8, 2024
Not all will help with the neuropathy it’s not their specialty. He is starting me on...
Not all will help with the neuropathy ... severe axonal sensorimotor peripheral polyneuropathy ... Panzyga is what we are going with
Support Group: Neuropathy
Posted: Sep 19, 2024
I have had diagnosis of fibromyalgia since 2003. Lots of other health diagnoses with chronic pain....
returned a diagnosis of small fiber Polyneuropathy ... neurologist that has a reputation for helping ... It saids the underlying problem is what
Support Group: Neuropathy
Posted: Feb 16, 2020
@seniordon09 @straightway22 I had a Burst DR spinal cord stimulator implant in June, 2017, and it...
small fiber idiopathic peripheral polyneuropathy ... temporary knee muscle loss, who knows what ... and it's the first one that has helped ... here in the Connect group and see what ... has helped others in your shoes.
Support Group: Neuropathy
Posted: Jan 31, 2020
I have several nerve related problems in my legs and feet and I don't know what...
legs and feet and I don't know what ... is what. ... may just have severe sensorymotor polyneuropathy ... to help me sort out what is what.
Support Group: Neuropathy
Posted: Apr 25, 2019
Hi @jlind it must be relieving to not take any medications at this time. I wanted...
share this link in hopes it could be helpful ... conditions/chronic-idiopathic-axonal-polyneuropathy ... What are your symptoms?
Support Group: Neuropathy
Posted: Jan 14, 2019
Hello @jutty -- welcome to Mayo Connect. I don't have Chronic inflammatory demyelinating polyneuropathy (CIDP) but...
Chronic inflammatory demyelinating polyneuropathy ... there are no medications/drugs that help ... do take a regimen of supplement to help ... May I ask what you are doing day in
Support Group: Neuropathy
Posted: Apr 12, 2018
Hi from Switzerland - I just joined your group in search of professoinal help - I...
your group in search of professoinal help ... tols me that I had an idiopathic polyneuropathy ... has similar problems and I wonder what
Support Group: Chronic Pain
Posted: Mar 21, 2017
Hi Beverley, I'm glad that you re-animated this older discussion about Chronic inflammatory demyelinating polyneuropathy (CIDP)....
Chronic inflammatory demyelinating polyneuropathy ... the Brain & Nervous System group to help ... in San Antonio, and hearing about what
Support Group: Autoimmune Diseases
Posted: Sep 5, 2016
A gentle reminder that the topic of this discussion is CIDP (chronic inflammatory demylinating polyneuropathy). For...
(chronic inflammatory demylinating polyneuropathy ... discussions: – How Spirituality Can Help ... connect.mayoclinic.org/discussion/how-spirituality-can-help-stress ... /connect.mayoclinic.org/discussion/what-do-you-rely-on-to-get-you-through-lifes-challenges-spirituality-or-religion-or-what-else
Support Group: Autoimmune Diseases
Posted: Oct 2, 2020
@maryflorida I'm blessed by having the support of the many people here, as well. I don't...
But even on hard days it can be helpful ... because I would like to understand what ... affects both sides, so I have idiopathic polyneuropathy ... to idiopathic inherited small fiber polyneuropathy ... So, testing has helped me a lot in terms
Support Group: Neuropathy
Posted: Aug 15, 2020
@amandaburnett Many, many thanks for sharing your personal experience at Mayo's PRC. First off, congratulations on...
have a handle on the program and what ... have eye issues and then crept in my Polyneuropathy ... actually gone through phases of doing what ... I know I need Mayo's help to see
Support Group: Digestive Health
Posted: Aug 9, 2020
@cnn @wisfloj I don't know what the statistics are, but I've found that many of us...
@cnn @wisfloj I don't know what ... idiopathic small fiber peripheral polyneuropathy ... It's sort of nice to know that what ... possible that the stimulator could start helping ... from this group, and I've been helped
Support Group: Neuropathy
Posted: Aug 2, 2020
@maryv449 I have small fiber peripheral polyneuropathy, and my feet very quickly hurt way worse when...
I have small fiber peripheral polyneuropathy ... It helped a little, but I have to keep ... Any medication that helps? ... back surgery in September, and to what ... the links John shared give you any helpful
Support Group: Neuropathy
Posted: Jul 27, 2020
Hello @lilotter, Welcome to Connect. Thank you for sharing your experience and what has helped you....
you for sharing your experience and what ... has helped you. ... for apparently dysimmune small-fiber polyneuropathy ... factor receptor 3 antibody‐related polyneuropathy ... made any lifestyle changes that have helped
Support Group: Neuropathy
Posted: Jul 14, 2020
I haven't written in this thread yet, but I'll try to summarize and hit the high...
idiopathic small fiber peripheral polyneuropathy ... stages of autonomic neuropathy, which helped ... me understand what was going on with ... only medication that has consistently helped
Support Group: Neuropathy
Posted: Jun 27, 2020
@notborntoburn Hi, Marianne. I have idiopathic small fiber peripheral polyneuropathy, which sounds like what you describe....
idiopathic small fiber peripheral polyneuropathy ... , which sounds like what you describe ... unacceptable side effects, or that it helped ... I'd forgotten what it was like not ... first two years, the SCS really did help
Support Group: Neuropathy
Posted: Jun 19, 2020
@fuzzy1southernga This has been a good forum for me, as well. I've had idiopathic small fiber...
idiopathic small fiber peripheral polyneuropathy ... What areas are affected by neuropathy ... adjustments have been less and less helpful
Support Group: Neuropathy
Posted: Jun 5, 2020
@eugenia007 I have had burning pain, starting in the balls of my feet, but by now,...
gave me the diagnosis of peripheral polyneuropathy ... What helps me could give you bad side ... What you're experiencing could be ... bunch of medications, but nothing helped ... Connect who have found things that help
Support Group: Neuropathy
Posted: May 22, 2020