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309 total results
Comments (287)
Hi.. maybe you should do some reading about Erythromelalgia - there is an online association for...
https://connect.mayoclinic.org/comment/1162325/
maybe you should do some reading about Erythromelalgia
Hello, it is me that is being treated for Erythromelalgia right now! There is no test...
https://connect.mayoclinic.org/comment/1146215/
it is me that is being treated for Erythromelalgia
My neurologist thought I had erythromelalgia until I pointed out that my SCN9A gene is normal....
https://connect.mayoclinic.org/comment/1113474/
My neurologist thought I had erythromelalgia ... Erythromelagia can be caused by other
Hi @hotfooted, as @johnbishop suggested above, I moved your message to this existing discussion so that...
https://connect.mayoclinic.org/comment/213694/
can meet other members talking about Erythromelalgia
Laura, your description of your feet sounds exactly like mine... and I have Erythromelalgia along w/...
https://connect.mayoclinic.org/comment/256511/
and I have Erythromelalgia along w/ ... Erythromelalgia seems to be a vascular
@hotfooted, Hi - It sounds like you are doing a little better! I also have SFN...
https://connect.mayoclinic.org/comment/264306/
I also have SFN and Erythromelagia although
Hello teetee7... Are you keeping up with my "experiment" posts on the Frankincense & Myrrh NEUROPATHY...
https://connect.mayoclinic.org/comment/260520/
surprising that it has done so much for my Erythromelalgia
I'm glad you asked.. as I have been posting almost daily about my "experiment" with the...
https://connect.mayoclinic.org/comment/213680/
Erythromelalgia conversations are listed ... I've had Erythromelalgia for years
Air conditioned shoes! What a great idea! I have never had Topiramax as treatment.. and I...
https://connect.mayoclinic.org/comment/260940/
Connect while seeing if it helps my Erythromelalgia
Hi @hotfooted -- I thought you might be interested in the following article I found. Cleveland...
https://connect.mayoclinic.org/comment/258837/
condition is much harder to deal with the Erythromelalgia ... I did see that Mayo Clinic has a Erythromelalgia ... Erythromelalgia Clinic in Minnesota ... www.mayoclinic.org/departments-centers/erythromelalgia-clinic-in-minnesota
Thank you for moving my post to autoimmune issues.. As for diagnosis of Erythromelalgia, I had...
https://connect.mayoclinic.org/comment/213662/
As for diagnosis of Erythromelalgia,
Hi @txbren, welcome to Connect. We've had a few members talk about burning feet and hands,...
https://connect.mayoclinic.org/comment/213647/
they were diagnosed specifically with erythromelalgia ... https://rarediseases.org/rare-diseases/erythromelalgia ... situation, how long have you experienced erythromelalgia
My mother (71) and daughter (14) have it, and their diagnoses was primary erythromelalgia. Peripheral neuropathy...
https://connect.mayoclinic.org/comment/91709/
it, and their diagnoses was primary erythromelalgia ... I have symptoms of erythromelalgia as ... hoping to bring my daughter to Mayo's erythromelagia
After reading others experiences with Erythromelalgia and already dealing with it in my feet, I guess...
https://connect.mayoclinic.org/comment/213734/
After reading others experiences with Erythromelalgia
Dear runwthme, I am heavy-hearted to read about your plight. I am so very sorry you...
https://connect.mayoclinic.org/comment/213732/
and/or hemmatologist doc for your Erythromelalgia
Hello, I am hoping there is someone here that can help me. I have a 16...
https://connect.mayoclinic.org/comment/213716/
specialists to determine if she in fact has erythromelalgia ... neurologist is the provider which suggested erythromelalgia
Hi,Im getting ready to talk to a Dr. for the first time about my Erythromelalgia symptoms....
https://connect.mayoclinic.org/comment/213713/
a Dr. for the first time about my Erythromelalgia
Thank you so much for your reply. It makes me feel so much better that someone...
https://connect.mayoclinic.org/comment/1058164/
would only work for the pain if the erythromelalgia ... do not know why or what causes the erythromelalgia
Has anyone with Erythromelalgia Tried a spinal cord stimulator?
https://connect.mayoclinic.org/comment/1057150/
Has anyone with Erythromelalgia Tried
I have been to Mayo's in Rochester twice in 2006. They ran all kinds of tests...
https://connect.mayoclinic.org/comment/1056060/
There is also the Erythromelalgia Association
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