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2,158 total results
Comments (1,981)
@tuckerp I had several injuries and knee surgeries in the 1970s. They kept removing various parts...
I did cut back on the high impact stuff ... I thought those nerve pain medications ... hell broke loose and I got referred back ... PMR was eventually diagnosed and I was ... For the longest time, I thought PMR
Posted: Mar 29 8:40am
Welcome @gmanrock, It definitely can be frustrating to always be in pain and not getting much...
can be frustrating to always be in pain ... lot of other members who also have pain ... discussions and member comments on PMR ... search=pmr+with+normal+labs. ... The PMR came back six years later but
Posted: Mar 30 8:00am
I started this discussion thread in May 2025. This update isn't positive. I've been taking Actemra...
Within a month, I had bilateral joint pain ... Before PMR, I was always going 110 mph ... I mentioned the pain to my rheumy in ... week and told her I was still having pain ... Everything came back within normal limits
Discussion: Actemra Infusions
Posted: Mar 30 2:10pm
@csimmonds If only the doctors could walk a mile in our PMR shoes, they might not...
the doctors could walk a mile in our PMR ... But it goes back to the doctors not ... night daily to help with the morning pain ... My friend, a year into PMR , felt like ... Best wishes to you, and happy future pain
Posted: Apr 25 7:47pm
I’ve been lurking in this group and trying to read from what I would feel seems...
started to go into my hip and the back ... And diagnosed PMR. ... legs seemed to simmer, as did the pains ... in the back of my upper arms. ... So I dialed that back a bit.
Posted: Apr 26 8:12pm
I started with neck pain (for context, I have severe arthritis of my cervical spine), then...
hips, both thighs, groin and lower back ... Sitting down, getting back up, walking ... 25mg with a probable diagnosis of PMR ... PMR is usually a diagnosis of exclusion ... or just something else that mimics PMR
Posted: May 2 7:47am
@pmrnew I'm impressed that you are able to get back to the gym and skiing! I'm...
impressed that you are able to get back ... I'm newly diagnosed with PMR after ... suffering with the pain and stiffness ... I had big plans to get back on my bicycle ... for long country rides and back to
Posted: May 3 2:42pm
@jc76 OMG;-) Yes, PMR stand for Polymyalgia Rheumatica. Only since Dec 2025 (thankfully) and though no...
@jc76 OMG;-) Yes, PMR stand for Polymyalgia ... no cure but Prednisone covers the pain ... last summer and could barely make it back ... For PMR, which wake up call might have ... capitulated (it is a miracle drug, pain
Support Group: Heart & Blood Health
Posted: May 4 6:10am
Mike, I agree with you completely. I am in a similar position diagnosed with PMR in...
a similar position diagnosed with PMR ... Polymyalgia pain daily is controlled ... bilateral lower back down the buttocks ... some time I thought this was just PMR ... pain.
@dadcue Hi Mike. Thanks for asking. I’ve been on Kevzara for 4 months. Prednisone is down...
t know why I have the tender scalp pain ... Other than the tender scalp, the pain ... see if carpal tunnel was causing the pain ... taper more rapidly, as the classical PMR ... spots (hips, back, neck and shoulders
Posted: May 18 9:55am
Hi all, thanks for the very insightful comments, they have really helped me over last few...
Started pain early Dec 2025, (self) ... diagnosed PMR 4th January 2026. ... PMR was vicious over January/February ... Working out and muscles coming back ... never fully went to sleep and came back
What a timely and valuable post. I was diagnosed with PMR in October but changed to...
I was diagnosed with PMR in October ... and a feeling my eyes were sinking back ... legs which is a constant source of pain ... We all know PMR/GCA are not like the ... they will pass and things will go back
Posted: Mar 20 11:51am
How long have you been off prednisone? It took time for my muscles and connective tissues...
People were telling me butt pain was ... characteristic of a PMR flare. ... The massages were painful too at first ... I didn't need to go back on Prednisone ... so I guess it wasn't a PMR flare
Posted: Mar 28 4:45pm
I was getting a lot of pain when trying to taper too fast, ie. one mg...
I was getting a lot of pain when trying ... I upped the dose back to 10 and it was ... No pain! ... Pain being more of a stressor! ... them that I believe triggered the PMR
Posted: Mar 29 11:05am
@kittykelly1234 I was given the scorched earth treatment of 3 consecutive days of 1000mg solumedrol (prednisone)...
had the most ghastly facial and head pain ... I was in ER for horrible shoulder pain ... rheumatologist who immediately knew I had PMR ... I go back next week and will be discussing
Posted: Mar 31 7:58pm
@mikeshell I am new in PMR venture ! I hope you’re well. I understand you was...
@mikeshell I am new in PMR venture ... understand you was diagnosed with PMR ... years back. , I was looking for ... procedure for tapering prednisone back ... cortisol injections. that is temporary pain
@betsyhase Maybe you should consider calling another rheumatologist. I know it can be difficult to get...
have been seen by specialists for pain ... symptoms don't sound like classic PMR ... because my initial blood work came back ... After the rest of my blood work came back ... Waiting in constant pain was not an
Posted: Apr 26 9:15am
Welcome @trishw47, It sounds like you have a great rheumatologist and GP. It took me 3...
years to taper off the first time PMR ... The last six months was going back and ... able to taper off with very little pain ... My second time with PMR I made some
Posted: Apr 27 7:53am