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Comments (479)
@joshf52, here is an earlier discussion about WREN laboratories and testing for NETs. - NETest from...
https://connect.mayoclinic.org/comment/1117970/
WREN laboratories and testing for NETs ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... oncologist who specializes in diagnosing NETs
Discussion: WREN Laboratories NET testing
Support Group: Neuroendocrine Tumors (NETs)
Posted: Aug 4, 2024
Hello All: Antihistamines are also being recommended for a rather rare form of cancer that I...
https://connect.mayoclinic.org/comment/320908/
rather rare form of cancer that I have, neuroendocrine ... tumors (NETs), sometimes referred to ... is very helpful and is part of the NETs ... most oncologists who treat folks with NETs
Discussion: Bone pain from Neulasta (pegfilgrastim)
Support Group: Breast Cancer
Posted: Sep 1, 2020
Hello @tkredmon and welcome to Mayo Connect. We have a support group for patients and caregivers...
https://connect.mayoclinic.org/comment/1107034/
and caregivers who have Carcinoid/NETs ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... Will you post in the NETs support group
Discussion: Dealing with spouse who has carcinoid cancer.
Support Group: Caregivers
Posted: Jul 17, 2024
I have been told by multiple oncologists that along with managing symptoms it also inhibits the...
https://connect.mayoclinic.org/comment/1345975/
I have no functioning tumors, so no ... significant role in the treatment of neuroendocrine ... tumors (NETs). ... primarily works to inhibit the growth of NETs
Discussion: Any one with Neuroendocrine tumors getting the shot once a month?
Support Group: Neuroendocrine Tumors (NETs)
Posted: Jul 11, 2025
@carrington, I add my welcome to you as well. I'm so glad you found the courage...
https://connect.mayoclinic.org/comment/140820/
dedicated to carcinoid cancers and neuroendocrine ... tumors here: - Neuroendocrine Tumors ... (NETs) https://connect.mayoclinic.org ... /group/neuroendocrine-tumors-nets/ ... group, I encourage to also follow the NETs
Discussion: Living with lung cancer - Introduce yourself & come say hi
Support Group: Lung Cancer
Posted: Dec 18, 2018
@danny11, I also added your question to the NETs support group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/ That must be uncomfortable...
https://connect.mayoclinic.org/comment/1069772/
I also added your question to the NETs ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... Inflammation or pressure from the tumor ... hopefully the radiation reduce the tumor
Discussion: Rectal cancer and tenesmus (urge despite empty bowel) - any relief?
Support Group: Neuroendocrine Tumors (NETs)
Posted: May 17, 2024
@jfh73, I added your discussion to the Neuroendocrine Tumors (NETs) group as well. I'm also tagging...
https://connect.mayoclinic.org/comment/872177/
jfh73, I added your discussion to the Neuroendocrine ... Tumors (NETs) group as well. ... I'm also tagging fellow NETs members ... mgreene @amariewilkinson who have rectal NETS ... @jfh73, it sounds like your tumor responds
Discussion: Neuroendocrine rectal cancer: What treatments work for you? What next?
Support Group: Colorectal Cancer
Posted: Jun 4, 2023
@dadcue Hello, good afternoon. The most reliable way to detect neuroendocrine tumors (NETs) today is a...
https://connect.mayoclinic.org/comment/1512965/
The most reliable way to detect neuroendocrine ... tumors (NETs) today is a Dotatate PET ... My wife's tumor was discovered through
Discussion: Neuroendocrine Tumor - no treatment plan method
Support Group: Neuroendocrine Tumors (NETs)
Posted: Feb 23 3:24pm
I'm glad that you are doing so well, and that the appointments are moving forward. It's...
https://connect.mayoclinic.org/comment/956916/
There is a Mayo Connect group for NET ... too (neuroendocrine tumors), where ... seen some discussion of carcinoid tumors ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets
Discussion: New Here and need to learn fast
Support Group: Lung Cancer
Posted: Oct 31, 2023
@gig666 , Someone from the NETs group (https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/) may be better equip to answer your question...
https://connect.mayoclinic.org/comment/1227861/
@gig666 , Someone from the NETs group ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... for-patients/newly-diagnosed/carcinoid-tumors-renamed-neuroendocrine-tumors
Discussion: Been awhile since I've been here, new nodule growth
Support Group: Lung Cancer
Posted: Feb 2, 2025
Hi @shella, I wanted to make sure you saw the helpful post from @merpreb. I have...
https://connect.mayoclinic.org/comment/815207/
I have also added your post to the Neuroendocrine ... Tumors support group here: https:// ... connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... tonyhasumners also have carcinoid lung tumor
Discussion: What tumor size is typical for removing part of the lung?
Support Group: Lung Cancer
Posted: Feb 21, 2023
Hello @fraaseo and welcome to the NETs support group on Mayo Connect. On Connect, there are...
https://connect.mayoclinic.org/comment/1269770/
Hello @fraaseo and welcome to the NETs ... Connect, there are other discussions on NETs ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets
Discussion: Has anyone had the peritoneal stripping surgery?
Support Group: Neuroendocrine Tumors (NETs)
Posted: Mar 30, 2025
Welcome, @puddknocker. I can imagine you have lots of questions. I moved your message to this...
https://connect.mayoclinic.org/comment/853339/
Paraganglioma is a type of neuroendocrine ... tumor that forms near certain blood ... following the discussions in the Neuroendocrine ... Tumors (NETs) support group here: https ... ://connect.mayoclinic.org/group/neuroendocrine-tumors-nets
Discussion: Paraganglioma / Carotid Body Tumor Question
Support Group: Neuroendocrine Tumors (NETs)
Posted: May 2, 2023
Hello, @dcdcclift, and welcome. That sounds like such a tough and overwhelming few years. You’ve really...
https://connect.mayoclinic.org/comment/1396611/
#39;s some information about adrenal tumors ... added your conversation to the: Neuroendocrine ... Tumors (NETs) support group - https ... ://connect.mayoclinic.org/group/neuroendocrine-tumors-nets
Discussion: Adrenal Gland Tumor
Support Group: Neuroendocrine Tumors (NETs)
Posted: Sep 19, 2025
@matt76 Hi Matt and welcome to Mayo Connect. I know what those pains can feel like....
https://connect.mayoclinic.org/comment/1541475/
/scans led to the diagnosis of the neuroendocrine ... tumors... ... NETs for short? ... Were you told why the tumors are inoperable ... doctor told you specifically about NETs
Discussion: Neuroendocrine tumors in small bowel, omentum, on ovaries, appendix
Support Group: Neuroendocrine Tumors (NETs)
Posted: Apr 2 6:16pm
Hi @jen83jen, nothing to be embarassed about here. I too have a twisting colon with extra...
https://connect.mayoclinic.org/comment/752348/
that you posted your question in the Neuroendocrine ... Tumors (NETs) group. ... Do you also have NETs or carcinoid syndrome
Discussion: Anyone else have a Redundant/Tortuous Colon?
Support Group: Digestive Health
Posted: Sep 21, 2022