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304 total results
Comments (293)
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
https://connect.mayoclinic.org/comment/891301/
blood tests are very near my pre-PMR/GCA ... At one point before treatment it hit ... Before treatment, during the height
@cyclones30, @johnbishop, and all...I'm very uninformed about monoclonal antibodies and such, but am more up-to-date than...
https://connect.mayoclinic.org/comment/1003366/
just now coming back into view as a treatment ... hydroxychloroquine added to my Prednisone for treatment ... of PMR, GCA, etc.
@detc, Interesting...I can't take the vaccines either and have had 2 covid infections in the last...
https://connect.mayoclinic.org/comment/1003385/
with several residual illnesses, PMR/GCA ... antibodies are an important possible treatment
Truly frightening what your husband has been through. I'm glad you were able to advocate for...
https://connect.mayoclinic.org/comment/1030609/
him and insist on getting him the treatment ... I dread the thought of developing GCA
According to the following link: "About 10 percent of people with polymyalgia rheumatica have giant cell...
https://connect.mayoclinic.org/comment/1030660/
patients with visual symptoms due to GCA ... people who have been diagnosed with GCA ... initiation in GCA are important to ... Unfortunately, even with early treatment ... of GCA with prednisone, there are still
Hello, all... I had the first Covid infection last July 2023, then again was infected in...
https://connect.mayoclinic.org/comment/1034199/
, and I'm dealing with PMR and GCA ... I began the 3-day IV treatments at Mayo ... This treatment was begun during the ... I developed PMR, GCA and daily asthma ... joint flares, and developed PMR and GCA
@robee , You're very welcome, and... I might lean toward the opinion of MSK over a...
https://connect.mayoclinic.org/comment/954152/
willing to collaborate with them on your treatment ... by one drug at a time; e.g., do 3 treatments ... other two drugs provides a stronger treatment ... Now 9 months into my GCA regimen, with ... so far; I'm not going to stop a treatment
What are the side effectsof Actemra ?? I am interested to Learn of treatments and progress...
https://connect.mayoclinic.org/comment/961639/
I am interested to
Learn of treatments ... progress of those of you who have GCA
I know, from first hand experience, what it is like getting a diagnosis of GCA. Please...
https://connect.mayoclinic.org/comment/970509/
it is like getting a diagnosis of GCA ... The treatments are definitely better
Interesting! What symptoms were you experiencing more on one side? My whole scalp felt weird and...
https://connect.mayoclinic.org/comment/628443/
told me it’s highly unlikely I have GCA ... but I’m being apprehensive now on my treatments
Hi @pag1949, You will notice that we merged your discussion into an existing discussion on the...
https://connect.mayoclinic.org/comment/967115/
-- How often does PMR progress to GCA ... discussion/how-often-does-pmr-progress-to-gca ... interesting.
--- Disease stratification in GCA ... 00976-8
How are you doing with your GCA ... symptoms and treatment?
At the time, Actemra (tocilizumab) was FDA approved for GCA but not PMR. My rheumatologist wanted...
https://connect.mayoclinic.org/comment/1062951/
(tocilizumab) was FDA approved for GCA ... #39;t usually pay for experimental treatments ... Also, if the treatment causes harm to ... required to give justification if their treatment ... patients now have an FDA-approved treatment
@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...
https://connect.mayoclinic.org/comment/1067338/
could mean your disease has moved to GCA ... GCA is an inflammation of the lining ... The same thing happens when you have GCA ... Headaches are dangerous with GCA. ... First, if you are not happy with the treatment
That’s understandable. Apologies for the delayed reply. I agree it’s frustrating treatment options are limited seemingly...
https://connect.mayoclinic.org/comment/1052115/
I agree it’s frustrating treatment options ... don’t have an established “go to” treatment ... there’s still the risk of developing GCA ... Forgoing treatment was absolutely not
@loribmt, and all... Hello, my Connect friend, Lori! Good to connect with you after such a...
https://connect.mayoclinic.org/comment/1036527/
fluids open full, given a breathing treatment ... Developed PMR, GCA, Sarcoid flares,
@charlotte61 In this case knowledge is power. Knowing the symptoms to look out for is so...
https://connect.mayoclinic.org/comment/1037295/
had no idea when we started this PMR/GCA ... anyone with PMR who develops classic GCA ... to run tests quickly and to get you treatment ... he's got a very severe case of GCA
Hello @gee18, I'm sorry to hear you having trouble with the treatment for PMR and GCA....
https://connect.mayoclinic.org/comment/979746/
to hear you having trouble with the treatment ... for PMR and GCA. ... alternatives.
--- PMR: Are there treatment ... thoughts or suggestions on alternative treatments
I have had 15 treatments of ACTEMRA for GCA (I also have PMR) but wanted to...
https://connect.mayoclinic.org/comment/987495/
I have had 15 treatments of ACTEMRA ... for GCA (I also have PMR) but wanted ... at mayo has been using ACTEMRA for GCA ... diagnosed with PMR in May 2022 and GCA
@joeblo746, This is from 2017 and mentions Hydroxychloroquine as a PMR treatment although I had not...
https://connect.mayoclinic.org/comment/738585/
mentions Hydroxychloroquine as a PMR treatment ... Although 40% to 60% of patients with GCA ... Latest Advances in the Diagnosis and Treatment ... Although this site rates the treatments ... www.stuffthatworks.health/polymyalgia-rheumatica/treatments
I was diagnosed with PMR about 17 years ago. I took prednisone for 13 out of...
https://connect.mayoclinic.org/comment/926831/
cytokine implicated in both PMR and GCA ... inflammation that results in PMR and/or GCA ... Actema is FDA approved for GCA. ... Both biologics were approved for the treatment ... https://www.actemra.com/gca/considerations
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