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121 total results
Comments (118)
I believe this study only included "newly diagnosed" people so it would not apply to me....
https://connect.mayoclinic.org/comment/836187/
I took prednisone for more than 12 years ... mg is crazy fast for you as long as Actemra ... I ended up trying both Actemra (IL-6 ... I decided that Actemra worked better ... doesn't always result in complete remission
I wouldn't think Genetech would care about the diagnosis as long as a doctor thinks Actemra...
https://connect.mayoclinic.org/comment/831650/
Believe it or not, prednisone isn' ... ;t FDA approved for PMR but prednisone ... Historically, prednisone was used to ... There isn't much evidence that prednisone ... helps to "achieve remission"
I have been on Actemra for six months. It has allowed me to taper to 1...
https://connect.mayoclinic.org/comment/776265/
I have been on Actemra for six months ... has allowed me to taper to 1 mg of prednisone ... and put my PMR into remission after
Hello @cadi, Welcome to Mayo Clinic Connect. It's really good news that they caught the GCA...
https://connect.mayoclinic.org/comment/331098/
My PMR is in remission and I have no ... experience using Actemra so hopefully ... I was lucky that prednisone worked well ... What's your experience with Actemra
Hello @dadcue, I would like to add my welcome to Connect along with other members here...
https://connect.mayoclinic.org/comment/286643/
of PMR but it is currently been in remission ... others suffering from PMR to hear how Actemra ... tocilizumab) has allowed you to be off of prednisone ... for the PMR once you started the Actemra ... able to taper to a lower dosage of prednisone
Dadcue, what a long history of needing Prednisone you have had . Do you have any...
https://connect.mayoclinic.org/comment/1216959/
Dadcue, what a long history of needing Prednisone ... Do you have any long term prednisone ... The more recent advent of Actemera has ... I’m in a remission already demonstrated ... it will reduce the need for greater prednisone
@nyxygirl Thank-you for the article about the debate doctors are having. I was good to read...
https://connect.mayoclinic.org/comment/1012549/
purely on personal experience with Actemra ... for 12 years without Actemra. ... Actemra allowed me to decrease my prednisone ... This happened while Actemra enabled ... as I know, PMR is now in complete remission
How do you know when you have achieved remission? How do you tell when you have...
https://connect.mayoclinic.org/comment/783046/
do you know when you have achieved remission ... I took prednisone for more than 12 years ... When I tapered down to zero prednisone ... , I soon had to go back on prednisone ... being treated with a biologic called Actemra
"Endo I saw said she could not test my adrenals until I was completely off steroids...
https://connect.mayoclinic.org/comment/1143882/
had to be on a sustained low dose prednisone ... I also had to be able to hold my Prednisone ... /GCA to do if they aren't in remission ... I was always on prednisone doses of ... Now Actemra is FDA approved for GCA
Hello @jlo2252, I'm also grateful for prednisone which got me through 2 flare ups of PMR...
https://connect.mayoclinic.org/comment/1084045/
jlo2252, I'm also grateful for prednisone ... flare ups of PMR which has been in remission ... rheumatologist wants to get you off of prednisone ... and start Actemra. ... search=actemra%20for%20pmr.
You and @pb50 have RA in common. I was diagnosed with seronegative inflammatory arthritis at the...
https://connect.mayoclinic.org/comment/1069330/
term use of Prednisone made things ... m now doing a monthly infusion of Actemra ... Even after Actemra was tried, it took ... PMR might be in remission thanks to ... Actemra.
Just FYI ... I was doing injections every 2 weeks at the start on Actemra. I...
https://connect.mayoclinic.org/comment/996102/
injections every 2 weeks at the start on Actemra ... I needed to go back on prednisone for ... I was off prednisone again within a ... long as I did weekly injections of Actemra ... , I had a sustained remission.
Thanks. It is really good to be off Prednisone. But there seems to be no clear...
https://connect.mayoclinic.org/comment/972449/
It is really good to be off Prednisone ... medical literature about discontinuing Actmera ... The main GCA/Actemra study in the New ... 12 months, and about 50% staying in remission ... While Actemra seems to have fairly minimal
Your story makes me want to stop Actemra. I'm aware that serious infections are possible. Were...
https://connect.mayoclinic.org/comment/925569/
Were you off prednisone at the time ... problems with infections when I combined prednisone ... discontinue the DMARD and increase my prednisone ... I was able to get off prednisone relatively ... stopping it because PMR seems to be in remission
How are you doing with Actemra? I think you were lucky to start Actemra as quickly...
https://connect.mayoclinic.org/comment/888331/
How are you doing with Actemra? ... I think you were lucky to start Actemra ... I wish I could have tried Actemra much ... Maybe if remission could have been achieved ... have a better chance for a long term remission
Have you looked into treatment with Actemra (Tocilizumab)? It has been shown to be pretty effective...
https://connect.mayoclinic.org/comment/841279/
Have you looked into treatment with Actemra ... effective in helping people get off Prednisone ... and go into remission. ... events when it is used to taper with Prednisone ... are less than with Prednisone alone
Yes, definitely sounds like PMR. My pain started with shoulders, just as you described. Has your...
https://connect.mayoclinic.org/comment/835181/
Has your doctor given you prednisone ... pain disappears with 1-2 days once on prednisone ... I am finally in remission because of ... a wonder biologic called Actemra.
I have appreciated the following point of view that is talked about in the following link....
https://connect.mayoclinic.org/comment/1228579/
until Actemra was tried. ... criticized my doctor for treating me with Actemra ... instead of Prednisone. ... The experts said Prednisone was the ... to achieve remission of PMR and it
It is interesting that you had a flare of psoriasis after stopping Prednisone. Has anyone ever...
https://connect.mayoclinic.org/comment/1150891/
flare of psoriasis after stopping Prednisone ... of uveitis as soon as I tapered off Prednisone ... After uveitis was in remission, I was ... stuck on 15 mg of Prednisone again ... I chose Actemra and tapered off prednisone
I think methotrexate (MTX) is a good medication to try. It is probably the most widely...
https://connect.mayoclinic.org/comment/1128816/
admit MTX was helping me reduce my Prednisone ... It took me 12 years to get off Prednisone ... MTX was a prerequisite for getting Actemra ... The goal should be "sustained remission ... health choice" than long term prednisone
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