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139 total results
Comments (136)
@nyxygirl Thank-you for the article about the debate doctors are having. I was good to read...
purely on personal experience with Actemra ... for 12 years without Actemra. ... Actemra allowed me to decrease my prednisone ... This happened while Actemra enabled ... as I know, PMR is now in complete remission
"I think that was wise advice since tapering is counter productive when you are in active...
Actemra made it easier for me --- it ... without Actemra and I had no success ... Now Actemra keeps all my autoimmune ... Currently, remission is being maintained ... with a monthly infusion of Actemra
Discussion: Kevzara
Posted: Feb 13 1:31pm
How do you know when you have achieved remission? How do you tell when you have...
do you know when you have achieved remission ... I took prednisone for more than 12 years ... When I tapered down to zero prednisone ... , I soon had to go back on prednisone ... being treated with a biologic called Actemra
Posted: Dec 9, 2022
Does everybody taking a biologic or DMARD get to 0mg prednisone? -------------------- No ... only about...
only about half of the patients on Actemra ... were able to get to 0 mg of prednisone ... able to achieve a "sustained remission ... " in 52 weeks compared to Prednisone ... for remission was much less and also
Posted: Jun 6 1:59pm
I have tapered off prednisone when on Actemra ... not Kevzara. Kevzara works on the same...
Actemra ... not Kevzara. ... on the same inflammation pathway as Actemra ... taking Actemra --- I tapered by 1 mg ... Actemra has kept everything in remission ... when I remain on Actemra.
"Others in this forum seem to have had good success with it." --------------------------- Now that more...
Does anyone have a "sustained remission ... They were pro-prednisone and anti-Actemra ... working" and I wanted to be off prednisone ... In the short term, prednisone wasn&#39 ... I tapered off prednisone within a year
Posted: Apr 24 2:17pm
"I know my experience with rapid pred taper is contrary to many others experiences I have...
For GCA, people doing the slower prednisone ... tapers aren't on Actemra (tocilizumab ... are several advantages to being on Actemra ... . 1) people are able to taper off prednisone ... is less, 3) a sustained remission lasts
Posted: Feb 18 7:30am
I was 52 when PMR was diagnosed and treated with Prednisone for 12 years. PMR never...
PMR never went into remission during ... I was on Actemra (tocilizumab) at 65 ... Actemra seems to work for all my autoimmune ... PMR is still being treated with Actemra ... instead of Prednisone.
You have asked an interesting question. Nobody really knows how long PMR lasts except that prolonged...
The unfortunate side effect of Prednisone ... I could achieve remission within a week ... or two and I was off prednisone again ... When my chronic PMR was treated with Actemra ... , remission was achieved in a couple
Posted: Apr 16 4:39pm
Rheumatologist put me on Actemra in 2024 to help wean off prednisone (steriod) faster. I was...
Rheumatologist put me on Actemra in ... 2024 to help wean off prednisone (steriod ... I had been on prednisone for a year ... Actemra (not a steriod) infusion takes ... could be harder to get PMR to go into remission
Discussion: Actrema advice
Posted: Mar 6 11:11am
I have appreciated the following point of view that is talked about in the following link....
until Actemra was tried. ... criticized my doctor for treating me with Actemra ... instead of Prednisone. ... The experts said Prednisone was the ... to achieve remission of PMR and it
Posted: Feb 3 11:17am
"Endo I saw said she could not test my adrenals until I was completely off steroids...
had to be on a sustained low dose prednisone ... I also had to be able to hold my Prednisone ... /GCA to do if they aren't in remission ... I was always on prednisone doses of ... Now Actemra is FDA approved for GCA
Hello @jlo2252, I'm also grateful for prednisone which got me through 2 flare ups of PMR...
jlo2252, I'm also grateful for prednisone ... flare ups of PMR which has been in remission ... rheumatologist wants to get you off of prednisone ... and start Actemra. ... search=actemra%20for%20pmr.
Posted: Jun 10, 2024
You and @pb50 have RA in common. I was diagnosed with seronegative inflammatory arthritis at the...
term use of Prednisone made things ... m now doing a monthly infusion of Actemra ... Even after Actemra was tried, it took ... PMR might be in remission thanks to ... Actemra.
Just FYI ... I was doing injections every 2 weeks at the start on Actemra. I...
injections every 2 weeks at the start on Actemra ... I needed to go back on prednisone for ... I was off prednisone again within a ... long as I did weekly injections of Actemra ... , I had a sustained remission.
Thanks. It is really good to be off Prednisone. But there seems to be no clear...
It is really good to be off Prednisone ... medical literature about discontinuing Actmera ... The main GCA/Actemra study in the New ... 12 months, and about 50% staying in remission ... While Actemra seems to have fairly minimal
Discussion: GCA conserns
Posted: Nov 29, 2023
Your story makes me want to stop Actemra. I'm aware that serious infections are possible. Were...
Were you off prednisone at the time ... problems with infections when I combined prednisone ... discontinue the DMARD and increase my prednisone ... I was able to get off prednisone relatively ... stopping it because PMR seems to be in remission
Posted: Sep 7, 2023
How are you doing with Actemra? I think you were lucky to start Actemra as quickly...
How are you doing with Actemra? ... I think you were lucky to start Actemra ... I wish I could have tried Actemra much ... Maybe if remission could have been achieved ... have a better chance for a long term remission
Posted: Jul 1, 2023
Have you looked into treatment with Actemra (Tocilizumab)? It has been shown to be pretty effective...
Have you looked into treatment with Actemra ... effective in helping people get off Prednisone ... and go into remission. ... events when it is used to taper with Prednisone ... are less than with Prednisone alone
Posted: Apr 11, 2023
Yes, definitely sounds like PMR. My pain started with shoulders, just as you described. Has your...
Has your doctor given you prednisone ... pain disappears with 1-2 days once on prednisone ... I am finally in remission because of ... a wonder biologic called Actemra.
Support Group: Autoimmune Diseases
Posted: Mar 31, 2023