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723 total results
Comments (699)
Thank you for your post. It is extremely helpful. I was diagnosed with GCA in November...
I was diagnosed with GCA in November ... I started on Actemra injections in March
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Jul 12 12:31pm
I started my Actemra infusions in January 2024. I chose the infusions. If I would have...
I started my Actemra infusions in January ... when I was first diagnosed with PMR/GCA ... Actemra has been a game changer for
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Jul 9 5:27pm
I'm with you. The side effects of Rinvoq concern me. It has the same risks as...
It has the same risks as Actemra for ... Some people with GCA are already at ... risk of stroke from the GCA, so adding
Posted: Jul 18 9:15am
I started 60mg prednisone Jan 2025, and monthly infusions of Actemra since February. The point of...
Jan 2025, and monthly infusions of Actemra ... The point of Actemra is to reduce GCA ... I have had 6 monthly Actemra infusion ... So,for me, Actemra is great.
I was diagnosed with PMR/GCA at age 64. My inflammation scores were extraordinarily high, even for...
I was diagnosed with PMR/GCA at age ... extraordinarily high, even for someone with GCA ... (about 10x more than most with GCA) ... Unlike the prednisone, Actemra had no ... of PMR/GCA except for one very minor
A similar thing happened to me. Was initially on 20 mg/day of prednisone due to PMR/GCA....
20 mg/day of prednisone due to PMR/GCA ... also started on weekly injections Actemra ... period of 6 months while continuing the Actemra ... I ended up staying on Actemra for 2
Posted: Jul 14 7:36pm
I have PMR and GCA, and I have definitely gotten more colds since I started treatment...
I have PMR and GCA, and I have definitely ... taking prednisone for a year, and Actemra ... Before getting sick with PMR and GCA
Posted: Jun 16 3:16pm
It was the terminology used in the GiACTA study that led to the FDA approval of...
study that led to the FDA approval of Actemra ... for GCA in 2017. "Remission ... ----------- The IV formulation of Actemra ... was FDA approved for GCA in 2022. ... ---------------- Long term use of Actemra
Discussion: Temporal Arteritis
Posted: Jun 24 10:06pm
Hello @sellrs8, Welcome to Connect. I don't have any experience with Actemra but your mom is...
don't have any experience with Actemra ... different discussions and comments on Actemra ... and GCA - https://connect.mayoclinic.org ... search=Actemra%20+GCA.
It would depend on your insurance first of all. I have straight Medicare and a Part...
plan sold in my county will cover Actemra ... I am on Actemra infusions and I was ... The clinical trials for Actemra showed ... around 50% of patients with GCA were ... off prednisone and Actemra after a
Posted: Jul 8 11:04pm
I think a lot of people are able to stop Actemra and still have a "sustained...
think a lot of people are able to stop Actemra ... one of those people and have been on Actemra ... Actemra was stopped a couple of times ... rheumatologist has no plan to stop Actemra ... and for GCA only.
Posted: Jul 8 7:01pm
3months prednisone taper post Large Vessel GCA/ PMR diagnosis Nov 2024 . ( no more Pred...
prednisone taper post Large Vessel GCA ... Nov 24 Simultaneous commencement of Actemera ... Expect to cease Actemera Nov 2025 . ... ie 12 months Actemera treatment.
Actemra (tocilizumab) is FDA approved for Giant Cell Arteritis (GCA). You have the right diagnosis but...
Actemra (tocilizumab) is FDA approved ... for Giant Cell Arteritis (GCA). ... right diagnosis but treatment with Actemra ... Reimbursement for the Actemra injections
Posted: Jul 18 3:05pm
Maybe Rinvoq (upadacitinib) would work. It was recently FDA approved for GCA and has already been...
It was recently FDA approved for GCA ... Actemra isn't FDA approved for either ... #34; for PMR since many people with GCA ... Actemra was originally FDA approved ... but was shown to be effective for GCA
Posted: Jul 19 11:01am
Have they upped your prednisone dose? It sounds like you should be somewhere between 40 and...
I have PMR and GCA, and I felt better ... taking prednisone for 13 months, and Actemra ... that it is very rare for someone with GCA
Posted: Jul 27 9:19am