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Comments (10,000+)

Thanks John…. I am on 5mg. of prednisone, the dose I’ve stayed at for about 5...

https://connect.mayoclinic.org/comment/782022/

the link with more info about PT for PMR

Discussion: physical therapy for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 7, 2022

Hi John, another question. I was diagnosed with breast cancer, had surgery this past Monday and...

https://connect.mayoclinic.org/comment/760968/

wondering what the effects might be on my PMR

Discussion: First meeting with Rheumatologist for PMR, need suggestions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 14, 2022

My PMR is in remission and I also have a heavy feeling in my legs and...

https://connect.mayoclinic.org/comment/738270/

My PMR is in remission and I also have

Discussion: Is anyone else diagnosed with PMR experiencing weakness in their legs?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 16, 2022

I've had PMR for 2-1/2 years now, and apart from a flew blips back and forth...

https://connect.mayoclinic.org/comment/702934/

I've had PMR for 2-1/2 years now

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 27, 2022

I've had the first 2 only (live in Canada), but waiting, since I sincerely believe the...

https://connect.mayoclinic.org/comment/676005/

waiting, since I sincerely believe the PMR

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29, 2022

When my PMR was active, I experienced peripheral neuropathy in my hands, due, I believe to...

https://connect.mayoclinic.org/comment/671859/

When my PMR was active, I experienced

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18, 2022

Thxs for the reply. Like you I want off of prednisone. I have osteoposis and also...

https://connect.mayoclinic.org/comment/286689/

The first PMR onset was not as bad as

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 10, 2020

Once diagnosed with PMR and understanding the important part inflammation plays, I researched to find all...

https://connect.mayoclinic.org/comment/258698/

Once diagnosed with PMR and understanding

Discussion: CAN A SPECIAL DIET BE THE ANSWER?

Support Group: Autoimmune Diseases

Posted: Apr 16, 2019

HiNoosat1 this,is Beryl......I have the same things as you .....I know we are all different and...

https://connect.mayoclinic.org/comment/236992/

drug it will not take the pain of the PMR

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5, 2019

I was diagnosed with PMR about 40 years ago and have been on and off prednisone...

https://connect.mayoclinic.org/comment/1294398/

I was diagnosed with PMR about 40 years

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1 2:48pm

I'm having some facial surgery and the doctor said he wanted me to go from 3.5...

https://connect.mayoclinic.org/comment/1296512/

He knows that I have PMR.

Discussion: PMR tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4 1:01pm

I’m curious too. I was recently diagnosed w/PMR a few months ago. Now on prednisone 12.5...

https://connect.mayoclinic.org/comment/1299964/

I was recently diagnosed w/PMR a few

Discussion: After "recovering" from PMR, still decreased strength/stamina

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8 3:36pm

That is quite a long journey but thankfully something is working for you. I did realize...

https://connect.mayoclinic.org/comment/1320312/

that no one knows how to safely treat PMR

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 2:18pm

I've been on Kevzara about 8 months. I haven't noticed any negative side effects as far...

https://connect.mayoclinic.org/comment/1193167/

My PMR symptoms pretty much disappeared ... below 5 mg I had a major return of the PMR

Discussion: Starting KEVZARA: Anyone experience side effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2024

What does your doctor recommend? You are fortunate to be able to taper from 20 mg...

https://connect.mayoclinic.org/comment/1209998/

off Prednisone for the treatment of PMR ... I no longer needed Prednisone for PMR

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12 3:05pm

I understand why doctors want us off the Prednisone ASAP, after being punished by it for...

https://connect.mayoclinic.org/comment/1151328/

punished by it for my severe contact of PMR ... bloodwork initially was normal for the PMR

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2024

Initially I had added discomfort with each taper, not a lot but noticeable. My notes often...

https://connect.mayoclinic.org/comment/1131965/

often not easy to know what to blame - PMR ... That said, with PMR I only had pain

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2024

Your story sounds so familiar. While experiencing pain from PMR but before the actual diagnosis, my...

https://connect.mayoclinic.org/comment/1100855/

While experiencing pain from PMR but ... immediately confirmed my suspicion of PMR

Discussion: Blood Clots - Connected with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

I did have a conversation with someone about prednisone. This article doesnt say much about cortisol....

https://connect.mayoclinic.org/comment/1095678/

His thought was that PMR starts because ... I think that PMR starts like all autoimmune

Discussion: Good information to know about prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2024

I have done a lot.. well working on it. Lorimer Mosley and Dr. Sheubin ...like the...

https://connect.mayoclinic.org/comment/1058666/

I have not been able to do it for PMR ... reducing the inflammation caused by PMR

Discussion: PMR Pain Management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28, 2024