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723 total results
Comments (699)
@windyshores Oh, Windy, you are so knowledgeable!! I am so glad I asked!!! We have settled...
https://connect.mayoclinic.org/comment/1104493/
with a rheumatologist for his PMR and GCA ... So I'm giving him his weekly Actemra
@dadcue, @johnbishop, @ropnrose...and alll... dadcue, your journey is very similar to mine in the way these...
https://connect.mayoclinic.org/comment/1203913/
was about 30mg at first with PMR and GCA ... I'm researching Kevzara and Actemra
Actemra is helping me to taper off of prednisone at a faster rate. I started Actemra...
https://connect.mayoclinic.org/comment/1200469/
Actemra is helping me to taper off of ... I started Actemra when I was taking ... I take weekly injections of Actemra. ... Key points about Actemra and IL-6: ... inflamation that can affect PMR and GCA
Are you doing Actemra infusions to treat PMR or GCA or both? Have you reduced your...
https://connect.mayoclinic.org/comment/1199676/
Are you doing Actemra infusions to treat ... PMR or GCA or both? ... your prednisone dose since starting Actemra ... The effects of Actemra are more subtle ... It is hard to know what Actemra does
For people following this discussion, you may also be interested in these related discussions: - Just...
https://connect.mayoclinic.org/comment/1195868/
related discussions:
- Just Started Actemra ... /
- How hard is it to get on Actemra ... /
- Anyone tried Actemra (Tocilizumab ... FDA approved for GCA: https://connect.mayoclinic.org ... /discussion/actemra-tocilizumab-to-treat-pmr
Kevzara Connect cut me off as well. Compared to you I guess my insurance company offered...
https://connect.mayoclinic.org/comment/1190096/
looking for evidence that I that I have GCA ... cell arteritis) so he could get me on Actemra ... creative documentation" to get me on Actemra ... and have had a biopsy to look for GCA ... people with PMR who have sub-clinical GCA
Hah, I understand that. I saw what insurance paid. Wish I could send you mine since...
https://connect.mayoclinic.org/comment/1188521/
First Actemra tomorrow but will have ... prednisone 1mg per month and treat GCA
I will defer to people who have actually taken Kevzara. I'm on a similar biologic called...
https://connect.mayoclinic.org/comment/1181034/
#39;m on a similar biologic called Actemra ... in the sense that both Kevzara and Actemra ... cytokine that is implicated in PMR and GCA ... general information about PMR and GCA
I personally don't think Actemra will work if Kevzara didn't work. That doesn't mean you shouldn't...
https://connect.mayoclinic.org/comment/1180824/
I personally don't think Actemra ... For me, Actemra was only tried as a ... Actemra still isn't FDA approved ... research that showed it was helping GCA ... GCA then Actemra "should work"
"Interesting because a lot of people with pmr have gca." ------------ That was basically why my...
https://connect.mayoclinic.org/comment/1180688/
because a lot of people with pmr have gca ... though I was never diagnosed with GCA ... For me to get Actemra for PMR, it needed ... "as if" I had GCA. ... to treat GCA patients.
Yes, Therese. I did. It was inconclusive for GCA but did find minimal Rt. Carotid occlusion...
https://connect.mayoclinic.org/comment/1176786/
It was inconclusive for GCA but did ... Also ordering Actemra when this bozo ... I really do believe I have GCA, headaches ... biopsy but in this town I think the Actemra
Uveitis, you have dealt with a lot. I read up on it when I was having...
https://connect.mayoclinic.org/comment/1176520/
of prednisone when it started, and Actemra ... your question, The relapse I had was GCA
Your lucky. I was put on Actemra and had 2 GCA relapses. Then went to Kevzara...
https://connect.mayoclinic.org/comment/1171403/
I was put on Actemra and had 2 GCA relapses ... specifically for PMR which precipitates GCA
Yes. I was always going 110 mph. And then last spring I couldn't do an hour...
https://connect.mayoclinic.org/comment/1292292/
of prednisone due to the suspected GCA ... 7 mg. of Prednisone and have had 4 Actemra
I would be talking to my rheumatologist about this - both times I was paused was...
https://connect.mayoclinic.org/comment/1271982/
As a side note the Actemra was decided ... after I had an apparent GCA attack ... to 16mg Prednisone when I began the Actemra
My experience with Actemra has been very positive. I've been on Actemra since April 2024 due...
https://connect.mayoclinic.org/comment/1250229/
My experience with Actemra has been ... I've been on Actemra since April ... 2024 due to a GCA diagnosis; the disease ... Actemra has been very successful, with ... All of that went away with Actemra.
I am a person that rarely gets headaches, so I was quite surprised when the headaches...
https://connect.mayoclinic.org/comment/1257398/
rheumatologist who diagnosed me with GCA ... mg by June 2024 with no help from Actemra
I'm sorry you lost part of your vision. I had several instances of temporary vision loss...
https://connect.mayoclinic.org/comment/1299294/
temporary vision loss in one eye from GCA ... started taking weekly injections of Actemra ... a month after I was diagnosed with GCA
Had covid shot yesterday. Typically I feel pretty bad for two days, but this time I...
https://connect.mayoclinic.org/comment/1319490/
I should add that I have GCA, on prednisone ... and Actemra, but Rheum doc said covid
It really is an exciting "new age" in PMR/GCA research. Five years ago, my rheumatolgist wasn't...
https://connect.mayoclinic.org/comment/1142050/
exciting "new age" in PMR/GCA ... wasn't overly confident about Actemra ... another forum about treating PMR with Actemra ... was booted off that forum because Actemra ... pertinent to them after I reported Actemra
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