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972 total results
Comments (925)
Hi @maryflorida, I thought I would jump in and offer some information I've found that may...
information I've found that may be helpful ... PMR) and a neurologist diagnosed my small ... fiber peripheral neuropathy. ... What is a Rheumatologist? ... It might be helpful to write down a
Support Group: Neuropathy
Posted: May 16, 2020
I think she prescribed Lyrica because I seem to have bad reactions to the other pain...
skin biopsy to see if it is, in fact, small ... fiber neuropathy, not just a guess. ... rheumatologist who didn't know what ... She said she couldn' t help me.
Support Group: Neuropathy
Posted: May 10, 2020
Hi Amanda @amandaburnett, Thank you for sharing the video link. I like that it shows what's...
I like that it shows what's available ... to help us track our health as patients ... funny readings I get are due to my small ... fiber peripheral neuropathy and using
Posted: May 9, 2020
Good grief, you are really suffering horribly. When I have my small fiber neuropathy attacks the...
When I have my small fiber neuropathy ... 100% alpha Liporic Acid) and that helps ... looking for suggestions from others on what
Support Group: Neuropathy
Posted: May 8, 2020
Hello @robtlhughes, Welcome to Mayo Clinic Connect. I also have idiopathic small fiber peripheral neuropathy and...
I also have idiopathic small fiber peripheral ... -1/ - Ideas for pain relief from Small ... Fiber Neuropathy (SFN): https://connect.mayoclinic.org ... /discussion/ideas-for-pain-from-small-fiber-neuropathy ... that may be helpful for you: - Neuropathy
Support Group: Neuropathy
Posted: Apr 26, 2020
@donfeld, Good afternoon. The sun just came out.......finally. I really feel that we might have a...
cannabis or marijuana can be very helpful ... for Small Fiber Neuropathy and one ... going to Leafy, I am going to reprint what
Support Group: Chronic Pain
Posted: Apr 13, 2020
Hi @neuroliz I'm 69, and have idiopathic small fiber polyneuropathy and am in the early stage...
I'm 69, and have idiopathic small ... fiber polyneuropathy and am in the ... pain at between 2 and 6, depending on what ... So, that's what I've been doing ... working with me for several years in, what
Support Group: Neuropathy
Posted: Mar 12, 2020
@pedie you can find the list of the supplements I take in the first link to...
in the first link to my story for what ... helps me. ... fiber PN. ... Small Fiber Neuropathy: Disease Classification ... has some good exercises to help with
Support Group: Neuropathy
Posted: Mar 11, 2020
Hello @wandasophia. First off I'd like to let you know how very sorry I am to...
you know how very sorry I am to hear what ... I experience burning pain from Small ... Fiber Poly Neuropathy. ... What is your diagnosis thus far? ... Keep us posted please - here to help
Support Group: Brain & Nervous System
Posted: Feb 20, 2020
Have you have autonomic testing? I have had a mitral value prolapse for years with tachycardia...
Primary care no help. ... positive skin Biopsy last August for small ... fiber neuropathy. ... Constant battle to know what to eat.
Support Group: Neuropathy
Posted: Feb 19, 2020
Hello and welcome to Connect. It appears you came here for support and to find like...
EMG/Nerve studies do not detect Small ... Fiber Neuropathy which is what I have ... and you describe what I feel. ... In the mean time, self care may help ... and add the proper supplements to help
Support Group: Neuropathy
Posted: Feb 13, 2020
You are correct in your analogy of interviewing. My Neuro is a brilliant man but lacks...
This is what I mean. UGH! ... We all continue to help each other through ... For me, due to Small Fiber Poly Neuropathy
Support Group: Neuropathy
Posted: Feb 3, 2020
@phoenix0509 I had an Abbott scs implanted in June 2017. It's a Burst DR, so I...
Lyrica was the first one that was helping ... I didn't say what form of pn I have ... It's small fiber polyneuropathy, ... tongue, tinnitus, decreased sense of smell ... They have been a big help for me.
Support Group: Neuropathy
Posted: Jan 11, 2020
Hi I just joined this forum and I thought I'd share my story. I'll summarise as...
There was so much neuropathic pain ( ... begging my doctors to try figure out what ... much, but I could perhaps also have a small ... fiber neuropathy? ... verified abnormalities, I'm not sure what
I have pretty much conquered the neuropathy problem in my feet and legs that I developed...
someone help themselves. ... may be studied further to get the finer ... I need – not what I wanted or liked ... highly oxygenated which is exactly what ... a small nerve needs to receive the
Support Group: Neuropathy
Posted: Nov 1, 2019
Sorry, time was limited before with my response. I'd also like to add that you are...
Rest can be a big help too along with ... I have Small Fiber Neuropathy which ... Not a bad idea to be tested for Small ... Fiber Neuropathy via skin punch biopsy ... I hope any of what I've said helped
Support Group: Neuropathy
Posted: Oct 30, 2019
Hi @summertime4 -- I have small fiber PN and lymphedema mostly in my right leg but...
Hi @summertime4 -- I have small fiber ... second one is where members are sharing what ... Fiber Neuropathy lecture (Small Fibers ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy-lecture ... /discussion/ideas-for-pain-from-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Oct 30, 2019
Hi Daryl @constitution, Welcome to Connect. I have small fiber peripheral neuropathy but only have numbness...
I have small fiber peripheral neuropathy ... for you to see what others are doing ... for pain relief from Small Fiber Neuropathy ... connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy ... / I posted my story and what has
Support Group: Neuropathy
Posted: Oct 26, 2019
Hi Cathy @cathyic58 — Neuropathy can be depressing just because it makes you feel so helpless....
and hopefully find something that helps ... story of my diagnosis of idiopathic small ... fiber peripheral neuropathy and what ... has helped me in an early post here ... It might help you if you can make a
Support Group: Neuropathy
Posted: Oct 22, 2019
Reading this opens the door for me to update everyone on the meeting I had yesterday...
He helped write the SFN book with other ... medical proof or long term studies for neuropathy ... cycle of added pain and has agreed to help ... all may know this stuff or not but, what ... Small Fiber Neuropathy continues to
Support Group: Neuropathy
Posted: Oct 3, 2019