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861 total results
Comments (821)
@terriann I never heard about neuropsychiatric SLE/Lupus. I will talk to my new rheumatologist about this...
https://connect.mayoclinic.org/comment/1071361/
rheumatologist about this and also about CIDP
Met with pain doc. He looked at mri interpretation and some images. Didn’t really seem to...
https://connect.mayoclinic.org/comment/1097854/
said that I seen a condition called CIDP
By the way, as a note to all as I'm new here....I am an American who...
https://connect.mayoclinic.org/comment/1034887/
which is not exactly a hotbed for CIDP
Do you have Autoimmune disease? Sounds like conditions very similar to mine . I have CIDP...
https://connect.mayoclinic.org/comment/1027826/
I have CIDP and small fine nerve neuropathy
I have never gotten tested for mono or chickenpox sinceI've never had symptoms for those. Same...
https://connect.mayoclinic.org/comment/1097697/
I looked up CIDP but don't think
Hi all. I don't know what I have from day to day. First diagnosed with GBS,...
https://connect.mayoclinic.org/comment/91963/
neurologist and second diagnosis was CIDP ... still having IVIG treatments for the CIDP
I had an Abbott Burst stimulator implanted in 2017 for pain in my feet and ankles...
https://connect.mayoclinic.org/comment/1138634/
for pain in my feet and ankles from CIDP
Hi Jim, we must be related bc I've spent literally hours typing messages and they disappear!...
https://connect.mayoclinic.org/comment/99384/
I hate that you have CIDP but am glad
Hellon resawaller, I have terrible pain on my left side too from my feet, legs, arms,...
https://connect.mayoclinic.org/comment/218863/
My diagnosis is CIDP and small cell
John, I appreciate the quick response, means a lot to me. The IVIG treatment was a...
https://connect.mayoclinic.org/comment/1031750/
one of the previous diagnosis namely CIDP
I'm one of the fortunate ones to have a very good team of doctors. I've been...
https://connect.mayoclinic.org/comment/1050893/
In the past, doctors have used my CIDP
I have been to a neurologist that has taken nine months to figure out I have...
https://connect.mayoclinic.org/comment/318896/
nine months to figure out I have CIDP
I have been getting IVIG infusions every 2 weeks for the past year. My doctor says...
https://connect.mayoclinic.org/comment/873814/
not confident that the diagnosis of CIDP
I have been dealing with a wound on my right foot, on bottom of my foot,...
https://connect.mayoclinic.org/comment/1044487/
I’m assuming because of my CIDP, it
I’m sorry for what you are going through…the word I keep coming up with is cruel....
https://connect.mayoclinic.org/comment/914611/
I wonder if I have CIDP but I think
I know that the numbers aren't high for success with IVig infusions. I wish that they...
https://connect.mayoclinic.org/comment/979795/
it's slowing the progression of CIDP
I tried much later daily doses of prednisone years ago for my pains which they have...
https://connect.mayoclinic.org/comment/1017920/
months of IvIG infusion treatments for CIDP
I have 2 Neurologists. Both professors, with completely different ideas on IVIG. I was diagnosed with...
https://connect.mayoclinic.org/comment/1060146/
LFN was added then It was changed to CIDP ... here but prof 1 said it could help CIDP
Thank you so much for sharing your story. It gives me more information and possible routes...
https://connect.mayoclinic.org/comment/702765/
possibilities as well, like your diagnosis of CIDP
I can sympathize with you as I have pain everyday in my feet, and like you,...
https://connect.mayoclinic.org/comment/1056380/
I was diagnosed with CIDP several years
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