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666 total results
Comments (642)
@dadcue I had no idea you've been through so much!! And for so long. I'm so...
https://connect.mayoclinic.org/comment/1099854/
;s able to taper more quickly with Actemra ... tapered on PMR to 12.5 he developed GCA ... I'm so glad to hear Actemra is a
I don't know how to control "all other factors being equal." I don't think it exists...
https://connect.mayoclinic.org/comment/1094154/
For me at least, I wish Actemra had ... Technically Actemra still isn't ... an option for PMR but it is for GCA.
@pargeo47 I can only speak from our experience - my husband is the one with PMR....
https://connect.mayoclinic.org/comment/1087808/
story short, he was diagnosed with GCA ... Especially with the GCA which can become ... 2024 tapering now to 20 (also taking Actemra ... That's the goal here, and the Actemra ... All these drugs, including Actemra (
"My advice to you all is never miss the opportunity to taper down if your medics...
https://connect.mayoclinic.org/comment/1084843/
Actemra was FDA approved for GCA but ... so my rheumatologist needed to get Actemra ... I almost refused Actemra because some ... breaking the rules" by giving me Actemra ... many Europeans are now getting PMR/GCA
@pb50 We wouldn't have unless he developed them. I am now doing research on any new...
https://connect.mayoclinic.org/comment/1074480/
side-effects my husband gets from prednisone, Actemra ... have not see any side-effects from Actemra ... is behind the times on some info re GCA
Hello @papas, You will notice that we merged your discussion into an existing discussion on the...
https://connect.mayoclinic.org/comment/1068563/
.
--- Anyone tried Actemra (Tocilizumab ... FDA approved for GCA: https://connect.mayoclinic.org ... /discussion/actemra-tocilizumab-to-treat-pmr
Our government doesn't get overly involved in medical decisions except for granting FDA approval of the...
https://connect.mayoclinic.org/comment/1067333/
Actemra hasn't ever been FDA approved ... and subsequent approval of Actemra ... by the FDA for the treatment of GCA. ... but plenty of patients who have GCA ... My rheumatologist believed Actemra &
My husband started a statin months after his PMR diagnosis (diagnosed with PMR in May 2023)....
https://connect.mayoclinic.org/comment/1065339/
diagnosed with Giant Cell Arteritis (GCA ... still on high-dose prednisone and Actemra ... Chief of Rheumatology) what caused his GCA ... and started feeling the symptoms of GCA
Hi @rn1024, I had a positive result temporal artery biopsy with no side effects. Your symptoms...
https://connect.mayoclinic.org/comment/1061527/
Your symptoms sound like GCA. ... 're not on Prednisone with the Acterma ... I just started 40 mg for a GCA relapse ... of symptoms more dramatically than GCA
The problem with testing for adrenal insufficiency is because cortisol levels can't be tested reliably until...
https://connect.mayoclinic.org/comment/1049136/
Not many people with PMR/GCA can do ... people on long term prednisone for PMR/GCA ... maintain my 3 mg dose of prednisone after Actemra ... rheumatica (PMR) and giant cell arteritis (GCA ... remission as symptoms can resemble PMR/GCA
Hello @leerow60, Welcome to Connect. I can't begin to imagine how difficult your journey with GCA,...
https://connect.mayoclinic.org/comment/1043905/
imagine how difficult your journey with GCA ... You mentioned they are going to try Actemra ... have shared their experience:
--- Actemra ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr ... /
Have you started on Actemra yet
My husband developed PMR in May 2023 and GCA (giant cell arteritis) in February 2024. Three...
https://connect.mayoclinic.org/comment/1043864/
husband developed PMR in May 2023 and GCA ... Three weeks ago he started weekly Actemra ... He was on 80 since development GCA and ... anyone experienced being tired after an Actemra ... It’s kind of early to know what the Actemra
I’m so sorry to hear you’ve had relapses. My husband was diagnosed with PMR in May...
https://connect.mayoclinic.org/comment/1037201/
diagnosed with PMR in May 2023 and GCA ... treatment initially) and also started Actemra ... he doesn’t get relapses because his GCA
Yes ... she is very accurate and straight forward in the way she explains PMR. My...
https://connect.mayoclinic.org/comment/1035820/
I'm glad she mentioned Actemra ( ... but that is only FDA approved for GCA
My husband has just been given Actemra (injections you do at home.) We picked it up...
https://connect.mayoclinic.org/comment/1025141/
My husband has just been given Actemra ... on literature I've read about Actemra ... said my husband has a severe case of GCA ... 80 mg daily of Prednisone since his GCA ... said they didn't think he had GCA
All biologics are expensive and the cost of Kevzara is no different. There is a loophole...
https://connect.mayoclinic.org/comment/1013655/
For people with GCA however, Actemra
"The pathway forward is to get pred down below 10 and then off ..." That sounds...
https://connect.mayoclinic.org/comment/996153/
inflammation pathway implicated with PMR/GCA ... I took Actemra but no reason to believe ... 10 mg to zero was easy when I took Actemra ... Actemra is preventing PMR flares from
I had difficulty coming off prednisone after starting Actemra. It took me an entire year to...
https://connect.mayoclinic.org/comment/987621/
coming off prednisone after starting Actemra ... taper from 10 mg to zero while doing Actemra ... I had to persevere with Actemra but ... Your PMR/GCA symptoms may gradually ... return when Actemra is stopped.
Hi Krueg, I was diagnosed with GCA and PMR in 2017. I was on 60-80mg of...
https://connect.mayoclinic.org/comment/987551/
Hi Krueg, I was diagnosed with GCA and ... for 8 months and then switched to Actemra ... I stayed on Actemra until Nov of 2021 ... Actemra weakens your immune system so
I was diagnosed with PMR and GCA in April 2023. High doses of Prednisone relieved my...
https://connect.mayoclinic.org/comment/979702/
I was diagnosed with PMR and GCA in ... switched to Methyl Prednisone and Actemra
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