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884 total results
Comments (839)
@penn1023 Hi. It turns out that many of my odd twitches, dizzy spells, seizure-like activity, etc...
Since I had a definite diagnosis (idiopathic ... length-dependent small fiber polyneuropathy ... This medication works better for my neuropathy ... now, and I'm back to the usual neuropathy
Support Group: Neuropathy
Posted: Oct 31, 2025
Hi @sheridana, Welcome to Connect. I also have numbness in my feet and legs with my...
numbness in my feet and legs with my idiopathic ... small fiber peripheral neuropathy. ... terrible pain that most folks with neuropathy ... following discussions helpful: -- Neuropathy ... / -- Neuropathy: Numbness only, no
Support Group: Neuropathy
Posted: Sep 16, 2025
Hello @barrymiles, I would like to add my welcome to Connect along with @jankavs and others....
I have idiopathic small fiber peripheral ... neuropathy and shared my story in another ... you might find helpful that mentions neuropathy ... and sciatica: -- Peripheral neuropathy ... condition is the Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Aug 21, 2025
Hi @allessio77, I've had idiopathic small fiber peripheral neuropathy since my mid forties and I'm 82...
Hi @allessio77, I've had idiopathic ... small fiber peripheral neuropathy since ... pretty sure aren't related to my neuropathy
Support Group: Neuropathy
Posted: Jul 15, 2025
That was probably caused by nerve compression is what it sounds like. Mine first started when...
Neuropathy caused by nerve compression ... Were you ever tested for small fiber ... neuropathy? ... True neuropathy is caused by diabetes ... , autoimmune diseases, idiopathic, toxins
Support Group: Neuropathy
Posted: Jun 25, 2025
There is autoimmune neuropathy which is caused by an autoimmune diseases lupus,, Rheumatoid Arthritis, MS ,...
There is autoimmune neuropathy which ... dysautonomia peripheral polyneuropathy, small ... fiber neuropathy and cardiac autonomic ... neuropathy ( it’s moved into my heart ... Idopathic neuropathy- no cause Diabetic
Support Group: Neuropathy
Posted: Jun 7, 2025
Hi, My name is Mat and I am 70 years old. My experience with PN started...
Some years ago, I was taking a small ... He told me it was idiopathic polyneuropathy ... this I surmise I have both large and small ... fiber neuropathy.
Support Group: Neuropathy
Posted: Mar 3, 2025
Hello @tryingandtesting, I would like to add my welcome along with @celia16 and others. Thanks for...
I shared my neuropathy journey along ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... recommended supplements to help my idiopathic ... small fiber PN and have been taking ... The Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Feb 25, 2025
Hello @mrmacabre, It's not much comfort but I can say you are not alone living with...
I have idiopathic small fiber peripheral ... neuropathy but don't have pain, ... #39;t helping as much now for your neuropathy ... The Foundation for Peripheral Neuropathy
Support Group: Chronic Pain
Posted: Jan 30, 2025
Thank you for sharing about EBV and small fiber neuropathy. I strongly suspect that EBV re-activation...
Thank you for sharing about EBV and small ... fiber neuropathy. ... may be the underlying cause of my idiopathic ... non-length dependent small fiber neuropathy ... uncertain if there is treatment for viral neuropathy
Support Group: Neuropathy
Posted: Jan 7, 2025
@jeffwneedhelp A neurologist can also test for vitamin deficiencies and toxicities plus to check sugar levels...
fibers. ... fiber neuropathy. ... The small nerve fibers at the head of ... fiber neuropathy asap to stop progression ... they couldn’t find cause (told it was idiopathic
Support Group: Chronic Pain
Posted: Nov 18, 2024
@sassytwo If they can get to the bottom of what is causing small fiber neuropathy/small fiber...
get to the bottom of what is causing small ... fiber neuropathy/small fiber nerve ... If they can’t, it is called idiopathic ... get to the source of what is causing small ... fibers to die, that may be the best
Support Group: Neuropathy
Posted: Nov 3, 2024
Wow! Is it ever an eye opener for me read your story. It's also a good...
I also have idiopathic small fiber peripheral ... neuropathy and noticed that peripheral ... neuropathy is one of the common symptoms
Posted: Oct 26, 2024
Hi @kenhassen, Welcome to Connect. I only have the numbness in my legs and feet but...
diagnosis and it turned out to be idiopathic ... small fiber peripheral neuropathy and ... find helpful for learning more about neuropathy ... them. -- Foundation for Peripheral Neuropathy ... /neuropathy-overview I've tried
Support Group: Neuropathy
Posted: Jul 10, 2024
@phoenix0509 I had an Abbott scs implanted in June 2017. It's a Burst DR, so I...
It's small fiber polyneuropathy, ... idiopathic, and I'm also in the ... beginning of autonomic neuropathy. ... that I have could possibly have a neuropathy ... tongue, tinnitus, decreased sense of smell
Support Group: Neuropathy
Posted: Jan 11, 2020
Rachel @ rwinney, I have SFPN (small fiber peripheral neuropathy) idiopathic in origin for 8+ years....
Rachel @ rwinney, I have SFPN (small ... fiber peripheral neuropathy) idiopathic ... diagnosis of length dependent peripheral neuropathy ... Nortriptyline) and the Peripheral Neuropathy ... about getting tested for autonomic neuropathy
Support Group: Neuropathy
Posted: Jan 11, 2020
Hi! I have a rapidly progressing autoimmune mediated peripheral neuropathy and have found IVIG totally eliminates...
#39;t stopped the progression of my neuropathy ... member of my PN support group has short fiber ... idiopathic neuropathy and went from ... A small study at MGH found 74% of people ... with short fiber neuropathy had positive
Support Group: Neuropathy
Posted: Nov 22, 2019