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759 total results
Comments (721)
If your rhueny is good with the idea I developed my own titrating schedule that included...
https://connect.mayoclinic.org/comment/1165016/
I agree that if the PMR pain returned ... I would return to the last pain free ... steroid level and restart titrating
Actemra works well for PMR/GCA. What it doesn’t help with is adrenal insufficiency. My cortisol level...
https://connect.mayoclinic.org/comment/1221192/
Actemra works well for PMR/GCA. ... My cortisol level was checked at about ... My cortisol level was low so I needed ... hard to distinguish the aches and pains ... insufficiency and prednisone withdrawal from PMR
Other than an IL-6 level being interesting to know, I haven't had that level checked. I...
https://connect.mayoclinic.org/comment/1226858/
I would think an IL-6 level would be ... Kevzara for people newly diagnosed with PMR ... Otherwise, maybe the pain source isn ... conditions like fibromyalgia, where pain ... can be normal and you can still have PMR
I’ve had PMR for 15 years, on prednisone for 5 years now. Prednisone never got rid...
https://connect.mayoclinic.org/comment/1122382/
I’ve had PMR for 15 years, on prednisone ... Prednisone never got rid of my pain ... My pain levels have reduced drastically ... treated to accurately see where the PMR ... levels are.
@merpreb - My experience with PMR when it's active is that the pain is always there...
https://connect.mayoclinic.org/comment/327824/
it's active is that the pain is ... ;m tapering, if I go too fast, the pain ... returns with different levels of intensity ... protein (CRP) blood tests to check the levels ... not a diagnosis if the levels are high
Dear Deb, I'm truly sorry to hear about the challenges you're facing with polymyalgia rheumatica (PMR),...
https://connect.mayoclinic.org/comment/1274442/
may contribute to the resurgence of pain ... Prednisone can indeed elevate blood sugar levels ... Regular monitoring of your blood glucose levels ... bleachers, might exacerbate muscle pain ... helping to maintain your activity levels
I have pondered the same question as to why not start the Biologics first without the...
https://connect.mayoclinic.org/comment/1276940/
Regarding pain levels. ... When I tapered to 2 mg my PMR pain returned ... being said, I still have polymyalgia pain ... The winter cold increased my pain level
So, let’s say “remission” is the situation where you can drop a level without experiencing PMR...
https://connect.mayoclinic.org/comment/1279214/
the situation where you can drop a level ... without experiencing PMR pain. ... month with occasional transient non-PMR ... pains, and then to zero at 0.5 per ... month, again with only non-PMR issues
I wouldn't listen to everything you read on PMRGCAuk. The forum with all the people sharing...
https://connect.mayoclinic.org/comment/1156055/
between adrenal insufficiency and PMR ... being on Actemra which controlled PMR ... prednisone dose for any symptoms resembling PMR ... --- any pain at all. ... increase my Prednisone dose for any pain
"Had to add a dose in the night to control pain. 3 years of prednisone and...
https://connect.mayoclinic.org/comment/1149794/
add a dose in the night to control pain ... I understand the pain at night is a ... your body to sense a low cortisol level ... prednisone it might be a combination of PMR ... Cortisol levels are supposed to drop
I started lifting weight when I was 19. I never lifted competively but I always made...
https://connect.mayoclinic.org/comment/1149183/
yourself your whole life then get PMR ... Once I started steroids I was almost pain ... I was not feeling any pain. ... That has also added a level of humility ... I also after PMR had all my hormones
Thank-you for saying that. I think I'm doing "reasonably well" but I wouldn't go so far...
https://connect.mayoclinic.org/comment/1147500/
#39;t any need to check my cortisol level ... Then PMR resurfaced when I was off Actemra ... Unfortunately, PMR symptoms returned ... inflammation markers rose with more pain
Fatigue is hard to define let alone quantify. My recollection when I was first diagnosed with...
https://connect.mayoclinic.org/comment/1146712/
recollection when I was first diagnosed with PMR ... #39;t sleeping too well because of pain ... wide awake because that's what pain ... After my cortisol level improved, the ... I don't think PMR caused me to have
Prior to the recent PMR episode, during years of Chronic lower back pain, including 3 failed...
https://connect.mayoclinic.org/comment/1146693/
Prior to the recent PMR episode, during ... years of Chronic lower back pain, including ... potentially leading to higher blood levels
Sorry to hear the fingers are involved. Hoping you get some answers at your follow up...
https://connect.mayoclinic.org/comment/1146457/
I have joint pain at the base of my ... My first time with PMR was pretty awful ... until I could stop taking it and my level ... of pain was less than 2 when I got
I simply wanted to post here because you are the first person I have come across...
https://connect.mayoclinic.org/comment/1140433/
also was slightly above osteopenia level ... Super painful, and they can take a long ... This is the first I have heard of PMR
@mtr2601 is correct that small reductions can make a big difference. Normally this is not the...
https://connect.mayoclinic.org/comment/1135913/
That is the approximate level that adrenal ... kicks in and you can start having pain ... that feels like a PMR flare. ... drop at that low a dosage without pain ... about my plans if I started having pain
That's what I think too. The doctor in the video doubled down and said PMR can...
https://connect.mayoclinic.org/comment/1135638/
in the video doubled down and said PMR ... PMR and GCA are "associated" ... My rheumatologist said my uric acid level ... Passing the kidney stone was painful ... Now my uric acid level is high again
@70infl, I'm with @megz on going from 5mg to 2.5mg can be too big of a...
https://connect.mayoclinic.org/comment/1126363/
buckets/categories of patients with PMR ... on Connect and other platforms with PMR ... keeping a daily log of my dosage and level ... of pain (0 to 10) when I woke up in
If your pain levels decrease on steroids, then yes, it means you have PMR. Steroids don’t...
https://connect.mayoclinic.org/comment/1122415/
If your pain levels decrease on steroids ... , then yes, it means you have PMR. ... It was a year after my PMR pain started ... is if your pain levels decrease with ... levels are getting better every day
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