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Comments (955)
I just checked online, and my search indicated that only Actemra is approved for GCA, while...
https://connect.mayoclinic.org/comment/1256394/
and my search indicated that only Actemra ... GCA, while Kevzara is approved for PMR ... I have GCA and PMR, so I have only used ... Actemra.
I have had PMR for five years. I have been on prednisone since then. I was...
https://connect.mayoclinic.org/comment/1256731/
I have had PMR for five years. ... 1 mg with the help of infusions of Actemera
I was diagnosed with PMR in November, 2023. On prednisone 20 mg until December, 2024 (tried...
https://connect.mayoclinic.org/comment/1244441/
I was diagnosed with PMR in November ... Then Rheumatologist recommended Actemra ... Now, on Actemra infusion alone…no prednisone
I think Kevzara is worth a try after a year or two of Prednisone with relapsing...
https://connect.mayoclinic.org/comment/1256801/
or two of Prednisone with relapsing PMR ... but I have done weekly injections of Actemra ... currently do a monthly infusion of Actemra ... Both Kevzara and Actemra are IL-6 receptor ... off Prednisone within a year after Actemra
Frenchfrank51 Several months after my pmr diagnosis, my CRP and ESR suddenly elevated. Haemoglobin plummeted, despite...
https://connect.mayoclinic.org/comment/1255919/
Frenchfrank51
Several months after my pmr ... Actemera.
Part of the reason is that PMR and GCA have a long history of being treated...
https://connect.mayoclinic.org/comment/1257151/
Part of the reason is that PMR and GCA ... /
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PMR ... That all changed in 2017 when Actemra ... The FDA approved Actemra (tocilizumab ... "first line treatment" for PMR
I was diagnosed with PMR and likely GCA in late July 2024. I was on 60...
https://connect.mayoclinic.org/comment/1249692/
I was diagnosed with PMR and likely ... rheumatologist PA if she would prescribe Actemra
I was diagnosed with PMR and GCA in late June 2024. I have had a good...
https://connect.mayoclinic.org/comment/1249119/
I was diagnosed with PMR and GCA in ... I have had a good experience with Actemra ... lost weight and strength from the PMR
No GCA eye issues but plenty of other eye problems. Actemra was used to treat refractory...
https://connect.mayoclinic.org/comment/1249766/
Actemra was used to treat refractory ... PMR and possible subclinical GCA.
Rheumatologist put me on Actemra in 2024 to help wean off prednisone (steriod) faster. I was...
https://connect.mayoclinic.org/comment/1251738/
Rheumatologist put me on Actemra in ... Actemra (not a steriod) infusion takes ... 12th month) and have a relapse with PMR ... start over - could be harder to get PMR ... I found that PMR and/or prednisone has
Eye issues are probably more of a Prednisone thing than an Actemra thing. I had many...
https://connect.mayoclinic.org/comment/1216743/
more of a Prednisone thing than an Actemra ... Of course, after PMR was diagnosed, ... that I'm on a biologic to treat PMR ... However, she is very happy that Actemra ... works for PMR and keeps me off of prednisone
I'm currently 70 years old. PMR was diagnosed when I was 52. I took Prednisone for...
https://connect.mayoclinic.org/comment/1216576/
PMR was diagnosed when I was 52. ... I took Prednisone for PMR every day ... At 65, a biologic called Actemra was ... PMR was not my first autoimmune diagnoses ... fast taper was routine for me until PMR
Yes … I also needed to get down to 3 mg before my cortisol level was...
https://connect.mayoclinic.org/comment/1217476/
After Actemra was started, I remember ... I wasn’t entirely convinced Actemra ... I figured Actemra was doing something ... again for other reasons not related to PMR ... worked for PMR.
My experience is different from yours. I had undiagnosed PMR for about 6 months, then caught...
https://connect.mayoclinic.org/comment/1217575/
I had undiagnosed PMR for about 6 months ... that about 20 percent of people with PMR ... vaccinations since beginning treatment for PMR ... I take prednisone and Actemra. ... I've read that PMR and GCA can be
"It's interesting too where you say prednisone is listed as one of your medical problems. In...
https://connect.mayoclinic.org/comment/1218893/
medical chart, GCA, prednisone, and Actemra ... Actemra hasn't made my problem list ... saw my treatment with prednisone for PMR ... was taking and less and less about PMR ... I truly want to be off Actemra!
My rheumatologist had suggested Kevzara for my PMR late last year. I was in the same...
https://connect.mayoclinic.org/comment/1259276/
rheumatologist had suggested Kevzara for my PMR ... of my GCA symptoms, she prescribed Actemra
"Some patients will start to see improvement within a few weeks, but it may take several...
https://connect.mayoclinic.org/comment/1271128/
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oops ... same for Actemra ... The way I knew Actemra "might be ... I wasn't sure Actemra was working ... were NOT the same as a full blown PMR ... Prednisone for a total of 12 years to treat PMR
I have appreciated the following point of view that is talked about in the following link....
https://connect.mayoclinic.org/comment/1228579/
long to taper off Prednisone until Actemra ... proclaimed experts not everyone) on another PMR ... criticized my doctor for treating me with Actemra ... chance at preventing my flares of PMR ... attempts to achieve remission of PMR
You should work with your rheumatologist to see what dose of prednisone you should be taking....
https://connect.mayoclinic.org/comment/1224930/
tell you if you still need it for PMR ... Prednisone can cause osteoporosis, but PMR ... take prednisone and other drugs like Actemra ... day of prednisone now for GCA and PMR
There is an interesting thread in this forum https://connect.mayoclinic.org/discussion/new-dx-of-pmr/ where @maye discusses getting off of prednisone...
https://connect.mayoclinic.org/comment/1241023/
connect.mayoclinic.org/discussion/new-dx-of-pmr ... completely in only 3 months by taking Actemra
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