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547 total results
Comments (479)
@lanamarie: You must be feeling really overwhelmed by wanting a path to resolution of your health...
https://connect.mayoclinic.org/comment/1277660/
group, for you will learn much about Neuroendocrine ... Tumor cancer and the many treatment ... tumors. ... tumors and questioned at stages of ... travel to a cancer center that has Neuroendocrine
I have neuroendocrine lung cancer stage 4, grade 1. Liver and bone nets. I've gotten good...
https://connect.mayoclinic.org/comment/1227132/
I have neuroendocrine lung cancer stage ... Liver and bone nets. ... have had some shrinkage in numerous tumors
I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...
https://connect.mayoclinic.org/comment/1217431/
After 14 injections of Lanreotide my NET ... and after 3 cycles all measurable tumors ... Unfortunately most Neuroendocrine cancers ... typically slow and if you get to a NET ... On FB search neuroendocrine cancer ronny
Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....
https://connect.mayoclinic.org/comment/1198328/
Hello
I have a couple of NETs tumors ... however they only biopsied the 2 largest tumors ... This reduced the tumors by 50%.. ... and follow the NETRF.org site for NET ... I have learned a lot by watching neuroendocrine
Using brand names for ease. I’ve been taking Kisqali 400 mg for 4 years for recurrent...
https://connect.mayoclinic.org/comment/1181951/
Once the tumor was removed, nothing ... showing except the non-related lung NETs ... neuroendocrine cancer — 50+ slow growing ... tumors. ... , I started octreotide for my lung NETs
@pamela1685 So many of us with this diagnosis can relate to what you said about slow...
https://connect.mayoclinic.org/comment/1172361/
It seems to be part of NETs. ... regular follow ups to keep up with the tumors ... Yes, NETs patients are often told about ... www.amazon.com/Good-Looking-Cancer-Neuroendocrine
I got a second opinion from MD Anderson's Neuroendocrine research doctors who also recommended Everolimus. My...
https://connect.mayoclinic.org/comment/1118230/
second opinion from MD Anderson's Neuroendocrine ... , the next set of scans showed the tumor ... Me in brief: Pancreas NET removed 2020
Sending you the biggest fucking hug you can imagine!!! So sorry to hear your story… Consider...
https://connect.mayoclinic.org/comment/1099579/
asking your endocrinologist about neuroendocrine ... tumors. ... These are rare tumors which can produce ... I am dealing with a gastinoma (tumor ... I only share this because NETs are rare
Hello @sherryboynton, As a survivor of three surgeries for neuroendocrine tumors (carcinoid type), I am so...
https://connect.mayoclinic.org/comment/257070/
a survivor of three surgeries for neuroendocrine ... tumors (carcinoid type), I am so sorry ... only thought would be to contact a NET
Hello @anotherfinemass Along with @johnbishop and @colleenyoung, I'd like to welcome you. As one who has...
https://connect.mayoclinic.org/comment/240039/
surgeries for a rare form of cancer, Neuroendocrine ... Tumors (NET), I can at least appreciate ... specifically has a doctor recognized as a NET ... s=thymic+tumor&submit=. ... will take you to the info on thymic tumors
@johnbishop and @lioness I have head a lot about fermented foods from websites that are frequented...
https://connect.mayoclinic.org/comment/107574/
that are frequented by people with neuroendocrine ... tumors (NET). ... As many of these tumors are in the digestive ... tract a lot of NET folks have had multiple
Hello @jls77 I appreciate your posting about this rare type of NET, paraganglioma tumor. I did...
https://connect.mayoclinic.org/comment/176683/
your posting about this rare type of NET ... , paraganglioma tumor. ... a little research about this rare neuroendocine ... tumor (NET) and found this information ... Also, is he being seen by an NET specialist
@gman007 I'm interested in your story in that I see in a previous post that you...
https://connect.mayoclinic.org/comment/155991/
in a previous post that you had a neuroendocrine ... tumor removed - is that correct? ... I have had 3 NETs removed from the duodenal ... bulb, so I'm interested in other NET
@gaylejean, I am REALLY sorry you have not received an answer .. I guess we were...
https://connect.mayoclinic.org/comment/60524/
for someone to jump in who knew what NET ... Lung NETs are an uncommon type of tumour ... These tumours can occur at any age with ... up of special kinds of cells called neuroendocrine ... NET or carcinoid.
Hello @gulzar, I see that you posted a discussion about neuroendocrine Gastrinoma cancer as it relates...
https://connect.mayoclinic.org/comment/102173/
that you posted a discussion about neuroendocrine ... I have had three neuroendocrine tumors ... (NET) over the past 14 years. ... My next NET was not until 2016, so I ... experience regarding the use of PPIs and NETs
@trixie1313, can you clarify the acronym NED in this case. I'm familiar with NED meaning "no...
https://connect.mayoclinic.org/comment/297050/
#34;no evidence of disease" and NET ... to mean "neuroendocrine tumor.& ... found reference in the literature to neuroendocrine ... and invasive breast carcinoma with neuroendocrine ... Is your use of NED neuroendocrine differentiation
Hello @sunflower1398, and welcome to the NETs support group on Mayo Clinic Connect. You are wise...
https://connect.mayoclinic.org/comment/1529372/
@sunflower1398, and welcome to the NETs ... obtaining a second opinion from a NET ... facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with NET ... U.S.; https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
@vickie; @ksnozal: My Gastroenterologist performed endoscopies and was able to diagnosis Neuroendocrine carcinoid disease. Primary tumor...
https://connect.mayoclinic.org/comment/1545088/
endoscopies and was able to diagnosis Neuroendocrine ... Primary tumor at duodenum/small intestine ... well-defined), Grade 1 (slow growing) tumor ... PET scan reveals specific sites of NET ... Neuroendocrine cancer patient support
Hi, my husband was diagnosed last year with grade 1, stage 4 neuroendocrine tumor. We found...
https://connect.mayoclinic.org/comment/1295489/
diagnosed last year with grade 1, stage 4 neuroendocrine ... tumor. ... please seek out consultation with a NET
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