CIDP – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

861 total results

Comments (821)

I am not sure where you are located but it took 12 years to diagnose my...

https://connect.mayoclinic.org/comment/932617/

but it took 12 years to diagnose my CIDP

Discussion: Polyneuropathy

Support Group: Neuropathy

Posted: Sep 19, 2023

Welcome @kirbyukat, I have small fiber PN but haven't had the lumbar puncture but I did...

https://connect.mayoclinic.org/comment/1022449/

Approximately 90 % of patients with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 25 2:17pm

I have CIDP, peripheral neuropathy, and PPPD and yes stress is toxic and gives me huge...

https://connect.mayoclinic.org/comment/1048007/

I have CIDP, peripheral neuropathy,

Discussion: Any relation between flareups and stress?

Support Group: Autoimmune Diseases

Posted: Apr 9 4:03pm

I've had CIDP for 4yrs now. I go to the University of Minnesots to Drs. Now...

https://connect.mayoclinic.org/comment/81505/

I've had CIDP for 4yrs now. ... Wednesday they tell me I may not have CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Sep 7, 2018

I’d been on Gabapentinfor several yrs. Last dose was 300 mg 4x per day I had...

https://connect.mayoclinic.org/comment/1026034/

it, and it really wasn’t helping my CIDP

Discussion: Gabapentin and effexor withdrawal

Support Group: Chronic Pain

Posted: Mar 2 10:33am

I can really sympatize with you as I have same issues as you do. Having foot...

https://connect.mayoclinic.org/comment/906513/

All they say is that I have CIDP, cause

Discussion: Dose anyone else feel like neuropathy is taking over their life?

Support Group: Neuropathy

Posted: Aug 2, 2023

Hello @dlcutler, welcome to Mayo Clinic Connect. I'm sorry to hear you are still experiencing pain...

https://connect.mayoclinic.org/comment/55026/

has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: Educating others on autoimmune diseases

Posted: Nov 20, 2016

Hi. A highlight of my recent visit to the neurologist was his saying that I'd posed...

https://connect.mayoclinic.org/comment/911832/

you all the best in tackling your CIDP

Discussion: Preparing for a follow-up exam …

Support Group: Neuropathy

Posted: Aug 12, 2023

Thank you for asking. My primary autoimmune disease- CIDP (chronic inflammatory demyelinating polyneuropathy) started during the...

https://connect.mayoclinic.org/comment/852687/

My primary autoimmune disease- CIDP ... Accepting that CIDP is a chronic lifelong ... How has CIDP affected me? ... with life changing illnesses like CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: May 1, 2023

Well I recommend that you have the EMG repeated. My husband EMG on the first neurologist...

https://connect.mayoclinic.org/comment/835636/

neurologist repeated the EMG and sure enough CIDP

Discussion: Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

Support Group: Neuropathy

Posted: Apr 1, 2023

I too have started experiencing sharp pains, usually at bedtime, starting after about 2 months into...

https://connect.mayoclinic.org/comment/608152/

months into my IVIG infusions for my CIDP