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963 total results
Comments (917)
Sorry for all you guys are going through. Ask if an EMG test might give insight...
https://connect.mayoclinic.org/comment/853807/
I have CIDP and the EMG confirmed it
I've left 3 messages with the doctor's office, no one has replied. My next appointment is...
https://connect.mayoclinic.org/comment/730422/
;m not 100% convinced that he has CIDP
When I developed CIDP, I almost went crazy from the itching in my feet. It was...
https://connect.mayoclinic.org/comment/292669/
When I developed CIDP, I almost went
@stallen I don’t even know what CIDP is…definitely looking that up. All my doctor has said...
https://connect.mayoclinic.org/comment/1249102/
@stallen I don’t even know what CIDP
My out of pocket would be roughly 5k for the 5 sessions of Rituximab and honestly...
https://connect.mayoclinic.org/comment/1022762/
study I read that said it worked for CIDP
Don't use Google! Search the Mayo Clinic website or National Institute of Health (NIH.gov). Search your...
https://connect.mayoclinic.org/comment/1245978/
Then ask them if it COULD be CIDP.
Hi RWinney Thanks for all the great info. BTW, it sounds like you have a great...
https://connect.mayoclinic.org/comment/157950/
thought that IVIG was indicated for CIDP
I am 70 and was diagnosed in 2020. My CIDP neuropathy affects my right foot and...
https://connect.mayoclinic.org/comment/1111458/
My CIDP neuropathy affects my right ... I am very fortunate that the CIDP has
I was on IVIG for a year it did slow things down. But either it or...
https://connect.mayoclinic.org/comment/1114894/
It did help the CIDP (that they now
I am in Egypt now and I went to take a second opinion for my case:...
https://connect.mayoclinic.org/comment/243655/
polyneuropathy.The neuro surgeon thinks it might be CIDP
Yes, you are not alone. It took around 4 years of going in for more testing...
https://connect.mayoclinic.org/comment/812240/
they informed my wife and I of the CIDP ... CIDP is not a fun ride at all but, it
Hi Dave, CIDP (chronic inflammatory Demyelinating Polyneuropathy) does effect the peripheral nervous system directly by removing...
https://connect.mayoclinic.org/comment/667627/
Hi Dave, CIDP (chronic inflammatory ... Chronic-Inflammatory-Demyelinating-Polyneuropathy-CIDP-Information-Page
I took VYVGART Hytrulo subcutaneous for a couple of months. I don’t have CIDP. I have...
https://connect.mayoclinic.org/comment/1247758/
I don’t have CIDP.
I know it’s very frustrating. Been thru so much testing and prodding over the years with...
https://connect.mayoclinic.org/comment/926989/
Retuximab, for many things including CIDP
I have CIDP. My issues started about 4-5 years ago and, to date, consist of numbness,...
https://connect.mayoclinic.org/comment/648066/
I have CIDP.
My diagnosis at the Mayo Clinic in December was central sensitization disorder, but having since returned...
https://connect.mayoclinic.org/comment/81492/
this is my fourth diagnosis, (ALS, CIDP
Hi Barb @bjk3, Thank you for your comments, you're a sweet kid! I'm sorry to hear...
https://connect.mayoclinic.org/comment/1170771/
I'm sorry to hear you have CIDP
@slkanowitz , What an encouraging letter! Made ME feel better and I'm not even part of...
https://connect.mayoclinic.org/comment/1170632/
Have enough else, though, including CIDP
Yes I have CIDP started in my left arm in 2009 working its way through my...
https://connect.mayoclinic.org/comment/804618/
Yes I have CIDP started in my left arm
The IVIG treatments have helped me tremendously. I get a boost of energy every month, no...
https://connect.mayoclinic.org/comment/156936/
It keeps my CIDP from progressing.
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