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Comments (969)

Hello @coachrandy, I would like to add my welcome to Connect along with @goldacharna and others....

https://connect.mayoclinic.org/comment/896971/

Chronic Inflammatory Demyelinating Polyneuropathy ... cidp-chronic-inflammatory-demylinating-polyneuropathy

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 16, 2023

Your neuropathy has caused severe problems and I am wondering if a diagnosis of CIDP (chronic...

https://connect.mayoclinic.org/comment/943882/

chronic inflammatory demyelinating polyneuropathy

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Oct 7, 2023

Sometimes the cure seems worse than the ailment, especially when we read the fine print on...

https://connect.mayoclinic.org/comment/730389/

Chronic Inflammatory Demyelinating Polyneuropathy ... cidp-chronic-inflammatory-demylinating-polyneuropathy ... chronic-inflammatory-demyelinating-polyneuropathy-cidp

Discussion: CIDP and concerns about treatment risk factors

Support Group: Neuropathy

Posted: Jul 25, 2022

Hi @avmcbellar Thank you for your reply. I’ve developed so many types of neuropathy that the...

https://connect.mayoclinic.org/comment/609964/

I have small fiber neuropathy, polyneuropathy

Discussion: No wonder there is so little being done about Neuropathy!

Support Group: Neuropathy

Posted: Jun 18, 2021

Hi all, My name is Stephen. I was in a minor car accident that resulted in...

https://connect.mayoclinic.org/comment/97830/

metallosis triggering an immune-mediated polyneuropathy

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 17, 2018

@johnbishop hi John, I have had temporary loss of sight in one eye because the nerves...

https://connect.mayoclinic.org/comment/943377/

It is not from Polyneuropathy.

Discussion: Does anyone have eye problems because of neuropathy?

Support Group: Neuropathy

Posted: Oct 6, 2023

My daughters and I underwent EMGS, Needle EMGs and genetic testing (whole Exome Sequencing) at Weill...

https://connect.mayoclinic.org/comment/1102095/

Chronic and Severe Sensorimotor Axonal Polyneuropathy

Discussion: Question: What testing have you had for neuropathy?

Support Group: Neuropathy

Posted: Jul 9 8:20am

Hi: My name is Don and I live in PA. I have had chronic pain for...

https://connect.mayoclinic.org/comment/817369/

pain due to Idiopathic Chronic Axonal Polyneuropathy

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Feb 26, 2023

I have been diagnosed with Idiopathic SFN with Polyneuropathy and stomach and gut problems caused by...

https://connect.mayoclinic.org/comment/802991/

diagnosed with Idiopathic SFN with Polyneuropathy

Discussion: SFN fatigue

Support Group: Neuropathy

Posted: Jan 28, 2023

Hi I recently was told I have polyneuropathy but mostly in my left leg and foot....

https://connect.mayoclinic.org/comment/962669/

Hi I recently was told I have polyneuropathy

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Nov 11, 2023

Hi, Pots being a form of Dysautonomia I'd be looking into that. I'm dealing with Autonomic...

https://connect.mayoclinic.org/comment/1146186/

I'm dealing with Autonomic polyneuropathy

Discussion: Cause still unknown 7 years in

Support Group: Brain & Nervous System

Posted: Sep 23 1:54pm

Coffee has been proven to increase neuropathy pain. Coffee is a stimulant why would you drink...

https://connect.mayoclinic.org/comment/1171651/

severe axonal sensorimotor peripheral polyneuropathy

Discussion: Coffee and Neuropathy

Support Group: Neuropathy

Posted: Nov 11 9:18am

I have had polyneuropathy with radiculopathy for 15 years. I haven’t driven for two years due...

https://connect.mayoclinic.org/comment/1165738/

I have had polyneuropathy with radiculopathy

Discussion: Spasticity at night in legs/feet/cramping

Support Group: Spine Health

Posted: Oct 31 10:22am

I know well what he is feeling because it is exactly my symptoms , burning on...

https://connect.mayoclinic.org/comment/281826/

didn’t find any reason cause SF Polyneuropathy ... your body , it is called Small Fiber Polyneuropathy

Discussion: Unknown Cause or Idiopathic SFN

Support Group: Neuropathy

Posted: Nov 6, 2019

Glad to see this group. I have idiopathic sensorimotor axonal polyneuropathy, which means, in my case,...

https://connect.mayoclinic.org/comment/156111/

have idiopathic sensorimotor axonal polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 19, 2017

September 2023: The latest impression from MRI of Neck & Nerve Studies shows generalized acquired sensory...

https://connect.mayoclinic.org/comment/932152/

shows generalized acquired sensory polyneuropathy

Discussion: Polyneuropathy

Support Group: Neuropathy

Posted: Sep 18, 2023

John, I appreciate the quick response, means a lot to me. The IVIG treatment was a...

https://connect.mayoclinic.org/comment/1031750/

Chronic Inflammatory Demyelinating Polyneuropathy

Discussion: Anyone have the FGFR3 antibody gene?

Support Group: Neuropathy

Posted: Mar 11 1:02pm

I have SLE as well, but I highly recommend you see a neurologist with the idea...

https://connect.mayoclinic.org/comment/1070606/

chronic inflammatory demyelinating polyneuropathy

Discussion: Neuropsychiatric Lupus

Support Group: Autoimmune Diseases

Posted: May 19 12:37am

I just saw this upcoming webinar from the Foundation for Peripheral Neuropathy that I think might...

https://connect.mayoclinic.org/comment/1176031/

Chronic Inflammatory Demyelinating Polyneuropathy

Discussion: Current treatments and new guidelines for diagnosis of CIDP

Support Group: Autoimmune Diseases

Posted: Nov 19 8:16am

@sinjin I’m sorry you are having so much stress and worry about this and can’t get...

https://connect.mayoclinic.org/comment/931694/

I have severe polyneuropathy caused

Discussion: Electric shocks from peripheral neuropathy

Support Group: Neuropathy

Posted: Sep 17, 2023