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Comments (2,757)
Welcome, and glad you found the group while you’re going through this. @johnbishop provided some great...
https://connect.mayoclinic.org/comment/903462/
Unfortunately, PMR requires long-term ... what’s likely to be a long and slow taper ... My father was diagnosed with PMR in ... to confirm a diagnosis of PMR—if you ... right back if you speed through the taper
Good morning, Quick recap on my PMR. Diagnosed in May 2023, started on 25 mg. Prednisone,...
https://connect.mayoclinic.org/comment/901775/
Good morning, Quick recap on my PMR ... Prednisone, then increased to 30mg. ... Tapering has been slow and I am now ... out the discomfort than increase my prednisone
@gaylerenee Age might be a factor. I omit part of what my rheumatologist told me when...
https://connect.mayoclinic.org/comment/900826/
I took prednisone for PMR for roughly ... doing much better than I ever did with tapering ... Prednisone may be giving you the extra ... #39;t think I would ever be able to taper ... off prednisone so I wasn't even
I noticed you mentioned in a different post that you're also taking methotrexate and soon to...
https://connect.mayoclinic.org/comment/899913/
experience with the other medications for PMR ... does sound like a relatively fast taper ... My dad has PMR and if he is experiencing ... He was diagnosed and started prednisone ... in May 2022, and his current prednisone
Has anyone taken Vitamin B5 or B12 to help with Adrenal fatigue while tapering Prednisone for...
https://connect.mayoclinic.org/comment/897280/
to help with Adrenal fatigue while tapering ... Prednisone for PMR?
Hello @bhadfield, Welcome to Connect. I'm sorry to hear you had a bad flare up of...
https://connect.mayoclinic.org/comment/896965/
If the prednisone helped with the symptoms ... , I wonder if you might be tapering ... issue with polymyalgia rheumatica (PMR ... ) when tapering off of prednisone too ... talked with your doctor about a slower tapering
Hello @gerryandnancydupont, Welcome to Connect. What you are describing doesn't sound like the typical onset of...
https://connect.mayoclinic.org/comment/896964/
occurrences both were treated with 20 mg prednisone ... Then it was a struggle to begin the tapering ... process to get off of prednisone once ... listen to my body when I start to taper ... off of prednisone and to do it slowly
How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...
https://connect.mayoclinic.org/comment/895854/
been very effective in reducing my PMR ... /GCA symptoms as I taper off Prednisone
Hi @ vellen….I just noticed that you have fibromyalgia as well as PMR. I’m thinking I...
https://connect.mayoclinic.org/comment/895420/
that you have fibromyalgia as well as PMR ... Rate, but she gave me the one week prednisone ... script which tapers naturally by the ... changed my dosage to 8 mg regular prednisone ... your dr know you had both fibro and pmr
One would hope PMR patients of the future will have better options than prednisone. I took...
https://connect.mayoclinic.org/comment/892625/
One would hope PMR patients of the future ... for PMR and never could taper off. ... the only option for PMR and GCA. ... I was able to taper off prednisone in ... getting Actemra approved for me to treat PMR
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
https://connect.mayoclinic.org/comment/891301/
working well for me, and had helped me tapered ... down to 8 mg/day of Prednisone. ... Assuming no relapses, I should be off Prednisone ... My sleep returned once the Prednisone ... My blood tests are very near my pre-PMR
Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I...
https://connect.mayoclinic.org/comment/890554/
It just seemed like a life time of tapering ... Having only been on prednisone for only ... I understand this process of tapering ... log of the pain level and my dose of prednisone ... increasing dose to half of previous taper
I will try to answer your questions but I don't have any experience with Kevzara. My...
https://connect.mayoclinic.org/comment/889954/
What was your prednisone tapering schedule ... What is your tapering schedule now that ... After Actemra was started, I tapered ... Then I tapered by 1 mg per week down ... restarted and Humira was stopped, I tapered
Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...
https://connect.mayoclinic.org/comment/889839/
off of prednisone my first time with ... PMR. ... My second time with PMR six years after ... level when I woke up and my dose of prednisone ... pain flared, I sometimes increased my prednisone
I would like to weigh in about PMR coming on gradually. My symptoms began in Jan....
https://connect.mayoclinic.org/comment/888645/
I would like to weigh in about PMR coming ... PMR was diagnosed and I am now on prednisone ... and tapering. ... So yes, PMR can be a gradual decline ... The prednisone seemed like a miracle
Thanks, this is very helpful. You mentioned that Actemra can be stopped at any time (unlike...
https://connect.mayoclinic.org/comment/888206/
can be stopped at any time (unlike Prednisone ... Actemra would increase the risk of a PMR ... Otherwise it would have no advantage over tapering ... Prednisone alone.
That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...
https://connect.mayoclinic.org/comment/886875/
before Kevzara was FDA approved for PMR ... PMR flares haven't happened as long ... I was just fortunate to be able to taper ... 12 years to treat PMR. ... I had to taper down to 3 mg of prednisone
Hi, I have been dealing with PMR for a while. Started on Prednisone 15 mg last...
https://connect.mayoclinic.org/comment/886377/
Started on Prednisone 15 mg last July ... I am tapering off the prednisone as ... my diet, those types of things) The prednisone ... Tapering more than that can cause other ... issues so you must taper SLOWLY and
I finally saw a rheumatologist last week!! Been waiting since February! So, it’s officially PMR -...
https://connect.mayoclinic.org/comment/885712/
So, it’s officially PMR - my primary ... amazing and after being on 40mg of prednisone ... I now start decreasing prednisone by ... until I hit 20mg then wait 2 weeks and taper
@vellen I'm guessing 2 weeks was too soon to taper down. I've had 2 occurrences of...
https://connect.mayoclinic.org/comment/884478/
I've had 2 occurrences of PMR and ... I was started on 20 mg prednisone for ... the morning along with my dose of prednisone ... and 1-1/2 years the second time with PMR ... a prescription for 1 mg and 2.5 mg prednisone
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