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548 total results
Comments (480)
Found this online & I think these look like great places to have your Neuroendocrine Tumor...
https://connect.mayoclinic.org/comment/1266919/
look like great places to have your Neuroendocrine ... Tumor disease treated. "For neuroendocrine ... specialties and known for its specialized Neuroendocrine ... and Carcinoid Tumors Program. ... s my understanding that most early NET
@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in...
https://connect.mayoclinic.org/comment/1251442/
@hopeful33250
You asked about my Neuroendocrine ... April 2023 MRI showed progression of tumor ... to City of Hope in Duarte, CA where NET ... reduction, some tumors were no longer ... exceptional care and guidance from my NET
@ssf, I found this paper by Mayo experts in NETs that might interest you: - Targeted...
https://connect.mayoclinic.org/comment/1238372/
found this paper by Mayo experts in NETs ... the use of targeted beta emitters in neuroendocrine ... tumors?
My version of my NET journey: I am sorry to say that having diagnosis of Neuroendocrine...
https://connect.mayoclinic.org/comment/1235417/
My version of my NET journey: I am ... sorry to say that having diagnosis of Neuroendocrine ... Tumor cancer is likely to lead to frequent ... avenues of treatment available to us if tumor
In my opinion, you have the right attitude! Someone somewhere has it worse than we do....
https://connect.mayoclinic.org/comment/1206709/
I was diagnosed with neuroendocrine ... into a pre-FDA trial ([212Pb] VMT-Or-NET ... one infusion the largest of my 30 tumors
I have Lungs NETS. Now officially diagnosed,the old carcinoid syndrome flushing, bloating..l have developed bone pain....
https://connect.mayoclinic.org/comment/1195647/
I have Lungs NETS. ... seizure medication. a) anyone with Neuroendocrine ... it out histamines which feeds your tumors ... Only a NET specialist "might" ... walking around with aching where my tumor
My husband diagnosis came quickly. He passed out on Dec 11, 2022 and was rushed to...
https://connect.mayoclinic.org/comment/1172403/
Initially, they thought it was a GIST tumor ... so that could run all the test for neuroendocrine ... tumors- labs and Pet CT CU64 Dotate ... He follows up with a NET oncologist ... anomaly, from my understanding, in the neuroendocrine
Thanks for your comment. I have since learned that non functioning (no symptom) tumors do not...
https://connect.mayoclinic.org/comment/1166857/
do not become functioning tumors with ... treatment is the same for metastatic neuroendocrine ... tumors in the liver as neuroendocrine ... One Net Specialist says monitor with ... Another Net Specialist says to start
Double check with doctors to make sure you don’t have a G.I. neuroendocrine tumor situation going...
https://connect.mayoclinic.org/comment/1166574/
to make sure you don’t have a G.I. neuroendocrine ... tumor situation going on. ... NETS is pretty rare but a friend of
Hello @aulynn and welcome to the NETs support group on Mayo Connect. I'm so glad that...
https://connect.mayoclinic.org/comment/1161114/
Hello @aulynn and welcome to the NETs ... DIPNECH and carcinoid tumors are rare ... discussion/carcinoid-dyptik-on-lungs-neuroendocrine-does-anyone-have ... /
--Carcinoid tumorlets neuroendocrine ... tumor cell hyperplasia dipnech
https
Hello @lrittmiller and welcome to the NETs support group on Mayo Connect. We have many members...
https://connect.mayoclinic.org/comment/1107836/
Hello @lrittmiller and welcome to the NETs ... discussion/carcinoid-dyptik-on-lungs-neuroendocrine-does-anyone-have ... /
--Carcinoid tumorlets neuroendocrine ... tumor cell hyperplasia dipnech
https ... connect.mayoclinic.org/discussion/carcinoid-tumorlets-neuroendocrine-tumorcell-hyperplasia-dipnech
Hello @trixie1313 Your question is a good one and caused me to search for answers. Finding...
https://connect.mayoclinic.org/comment/297623/
in describing the different NET imaging ... for patients: - Imaging Tests for Neuroendocrine ... /nets-info/diagnostic-tests-for-neuroendocrine-cancer ... Dotatate PET is an excellent imaging for NET ... Some NET tumors may not have enough
@colleenyoung Unfortunately, 3/7 nodes were cancerous with one eroding, or metastatic, into the lymph nodes (from...
https://connect.mayoclinic.org/comment/297053/
into the lymph nodes (from the first tumor ... The second tumor was poorly differentiated ... with breast primary consistent with neuroendocrine ... treatment, however, after a second tumor ... is very little that I can find with NET
@colleenyoung Sorry - misspelled. NET is the correct acronym. I was told that the tumor had...
https://connect.mayoclinic.org/comment/297051/
NET is the correct acronym. ... I was told that the tumor had neuroendocrine ... differentiation which was the same as neuroendocrine ... This was after three tumor boards and
I anyone getting care or has anyone been diagnosed with a neuroendocrine tumor at Mayo and...
https://connect.mayoclinic.org/comment/283429/
or has anyone been diagnosed with a neuroendocrine ... tumor at Mayo and has anyone had the ... NET test (blood test) from WREN LABS
I last saw Dr. Kasi my net specialist in Feb. just before he left Mayo and...
https://connect.mayoclinic.org/comment/176697/
Kasi my net specialist in Feb. just ... Stone I believe is the new net specialist ... My Pnet was a low grade pancreatic neuroendocrine ... tumor-well differentiated w/ 1 node
@cindylb Well said, Cindy! I had my first lumpectomy which showed invasive and then asked for...
https://connect.mayoclinic.org/comment/87076/
then asked for an MRI which found neuroendocrine ... NET meaning my cancer can pop up anywhere ... My surgeon opted to remove all tumors
Hello Francis: I appreciate your asking about NETs. As @tomewilson said, NETs is a form of...
https://connect.mayoclinic.org/comment/176692/
Francis:
I appreciate your asking about NETs ... As @tomewilson said, NETs is a form ... www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors ... to share why you are interested in NETs
@sebley12 I have had three carcinoid lesions removed since 2003, however, I have never experienced carcinoid...
https://connect.mayoclinic.org/comment/110436/
some Carcinoid, also referred to as "NET ... " (stands for neuroendocrine tumor) ... Carcinoids, or NETs, are certainly rare
Good morning, @stephenluptak I just read your latest post and I see that you don't feel...
https://connect.mayoclinic.org/comment/153397/
I have a rare type of cancer, Neuroendocrine ... Tumors, and the national NET organization
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