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Comments (832)
@jeanniem, You will notice that we changed the title of your discussion a little to better...
I have idiopathic small fiber PN and ... you might find helpful. "Does neuropathy ... muscle shrinking." --- Peripheral Neuropathy ... ;Mar 29, 2021 — In contrast, motor neuropathy ... reflexes, lack of ..." --- Peripheral Neuropathy
Support Group: Neuropathy
Posted: Jun 10, 2021
@sf2021 - I have idiopathic small fiber PN but have never experience chest tightness that I...
@sf2021 - I have idiopathic small fiber ... tightness that I felt was associated with small ... fiber neuropathy.
Support Group: Neuropathy
Posted: Apr 8, 2021
@magnum52 - I was diagnosed with idiopathic small fiber peripheral neuropathy at the Rochester Mayo Clinic...
@magnum52 - I was diagnosed with idiopathic ... small fiber peripheral neuropathy at ... research but did find some peripheral neuropathy ... clinical-trials/diseases-conditions/peripheral-neuropathy
Support Group: Neuropathy
Posted: Mar 29, 2021
I often lose long messages just when I'm almost done, too, @artist01 . I also think...
vaccine won't make my very painful idiopathic ... small fiber sensory peripheral polyneuropathy ... and autonomic neuropathy.
Support Group: Neuropathy
Posted: Mar 9, 2021
Hello Dan @hansblix, Welcome to Mayo Clinic Connect. Thank you for the private message. I thought...
this post in the discussion - Member Neuropathy ... have the same diagnosis as myself - idiopathic ... small fiber peripheral neuropathy and ... I don't have the pain with my neuropathy ... discussion for shoes that help with neuropathy
Support Group: Neuropathy
Posted: Dec 19, 2020
Hello @tricia7681, I would like to add my welcome to Connect along with @artscaping and other...
My idiopathic small fiber peripheral ... neuropathy led me to searching for ... with the pain and other symptoms of neuropathy ... you may find helpful: - Member Neuropathy ... is the Neuropathy Commons website -
Support Group: Neuropathy
Posted: Dec 16, 2020
Hello @mechanicjesus, Welcome to Mayo Clinic Connect. You will notice that we have changed the title...
a neurologist I was diagnosed with idiopathic ... small fiber peripheral neuropathy with ... I posted my neuropathy story along with ... the following discussion - Member Neuropathy ... find some interest in - "Why do I smell
Support Group: Neuropathy
Posted: Oct 12, 2020
@chrs6 Here on Mayo Connect, talking is done via text. As the old ad said, "let...
can learn a lot from people in the Neuropathy ... Can you tell us more about your neuropathy ... helpful for you, written by fellow neuropathy ... I have idiopathic small fiber polyneuropathy ... in a discussion labeled "member neuropathy
Support Group: Neuropathy
Posted: Sep 13, 2020
@bustrbrwn22, The 525 Protocol is a product that includes different supplements packaged together by a non...
treat the pain symptoms of peripheral neuropathy ... slowed or stopped the progression of my idiopathic ... small fiber PN.
Support Group: Neuropathy
Posted: Aug 29, 2020
@magnum52 I've had idiopathic small fiber peripheral polyneuropathy for over 7 years, gradually progressing to more...
@magnum52 I've had idiopathic ... small fiber peripheral polyneuropathy ... tried every medication available for neuropathy ... I went into this neuropathy journey ... Neuropathy has added another layer of
Support Group: Neuropathy
Posted: Aug 25, 2020
Hello @ladyvanilla, Welcome to Mayo Clinic Connect. Thank you for the private message. I thought I...
small fiber peripheral neuropathy. ... /discussion/ideas-for-pain-from-small-fiber-neuropathy ... / Small Fiber Neuropathy lecture: https ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy-lecture ... Anne Louise Oaklander | Small Fibers
Support Group: Neuropathy
Posted: Jul 14, 2020
The stimulator is from Nalu Med, https://nalumed.com/, and it works on the same principles as a...
website the implanted device is very small ... My idiopathic small fiber peripheral ... neuropathy is very painful and without
Support Group: Neuropathy
Posted: Jun 5, 2020
@laurask SSSSAP - that's a mouthful. I have idiopathic small fiber polyneuropathy that started with tingling...
I have idiopathic small fiber polyneuropathy ... I also have autonomic neuropathy, and ... Neuropathy is no laughing matter, is
Support Group: Neuropathy
Posted: Mar 16, 2020
@davidwrenn WOW I've just read this study. It almost 6 years old and shocking these PPIs...
Been diagnosed with Small Fibre Neuropathy ... (SFN) which is a sensory axonal neuropathy ... No reason except "probably idiopathic
WOW Ive just read this study. It almost 6 years old and shocking these PPIs are...
Been diagnosed with Small Fibre Neuropathy ... (SFN) which is a sensory axonal neuropathy ... No reason except "probably idiopathic
Hello Francine @richardfrancine, I have had several MRI's with contrast but haven't experienced the same side...
not related to the scans but to my idiopathic ... small fiber peripheral neuropathy diagnosis ... I shared my neuropathy journey in another
Support Group: Neuropathy
Posted: Oct 16, 2025
@771 Sorry to hear you are also suffering. Did you ever get MRIs of your cervical...
There really isn’t a cure for small ... fiber neuropathy and the best they can ... Chemotherapy can also cause neuropathy ... I am assuming you did if your neuropathy ... was classified as idiopathic.
Support Group: Neuropathy
Posted: Sep 19, 2025
Hello @debbie316, Welcome to Connect and our neuropathy club (of sorts 🙃). While there is no...
debbie316, Welcome to Connect and our neuropathy ... to improve our quality of life with neuropathy ... Mine is idiopathic small fiber PN and ... difficult thing to manage with your neuropathy
Support Group: Neuropathy
Posted: Jun 25, 2025
I’m amazed and happy that your neurologist prescribed it for chronic pain! Hopefully my physicians will...
Mine is idiopathic small fiber. ... Journavx did studies with diabetic neuropathy ... Tegretol works really well for my neuropathy
Support Group: Neuropathy
Posted: Jun 23, 2025